It's been a while since I stopped in and said hi. Kaylee is doing great, I can't believe it'll be a yr already in Sep since she's had her decompression surgery. Her scar is almost non existant at this point but she still wont wear her hair up cause she is so self concious about it : ( Good news is, is she hasn't been having as many headaches as she did pre-surgery!!! Bad news is (not really, just kinda annoying), is she has developed a couple of other annoying symptoms like severe vertigo sometimes and motion sickness : ( So long car rides are out of the question lately but hey at least we don't have the pain anymore right... :-/ She goes back in Dec for another check up and another MRI to make sure everything is improving : )
I do however have some other bad news... Ds who is 2 is showing some symptoms of Chiari : ( He doesn't sleep good at night and he just started telling me his "head hurts" and I catch him holding the back of his head at times... I'm beside myself right now because I don't want to see another one of my children go through this...
Oh wow! Ya it sounds about what Kaylee is going through too. She said her brain feels weird when she rides in the car and it makes her sick to her tummy : ( It's not as bad as it was right after the decompression but it still is there. I'll try to be on more often and keep everyone updated a little more. We go back in Dec for a check up, and I'm calling to make ds an appointment tomorrow to be seen. His pedi is probably going to think im wacko but I don't give a hoot.
Quoting preacherskid:
Glad to see you :) Dustin developed car ride issues after decompression. Something about the vibrations of the vehicle and the "jiggling" it makes their brains do, and the fact that their support column is not as stable as it used to be. Dustin can make it about twenty minutes before he starts to zone out, longer than forty five minutes and he will "sleep" for an hour or more to cope with the enhanced symptoms.
Quoting 3greatkids751:
Better to be a wacko who knows than a surprised parent ten years down the road :). We had Maggie scanned as soon as she turned three, because she has some sensory issues, and we wanted to rule out ACM because Dustin also has sensory issues. Her pediatrician is thankfully very understanding and made all the arrangements; she is clear so now we know that is not the source of her quirks, and we can focus on her allergies right now and deal with the rest a little later.
:)
- 3greatkids751
on Jul. 23, 2012 at 11:26 AM