Hello! My name is Hannah and I am new to this group. We have not lost our baby, but have been diagnosed with fetal hydrops and with it there is an 80% chance of miscarriage. Right now we are at 15 weeks, and we were only diagnosed as of last week. I was recomended towards this group for learning and the possibility of support in case we end up losing our baby girl. My first question though, is if there is anyone on this page that has dealt with fetal hydrops? It's only a curiosity. I know that hydrops cases have a huge range of causes and outcomes. After days of research though, there truly aren't many Mothers talking about their experiences and I couldn't find anything on a cafemom search posted here about it either. I appreciate your time and responses!
I haven't heard of fetal hydrops but I'm 28 weeks preggo with a baby girl (first girl but 3rd child) and was given a fatal diagnosis for her at 12 weeks. Isabelle has anencephaly (missing part or all of the brain and skull). They told us that I could miscarry her at anytime or her heart just stop beating but so far I've had an uncomplicated pregnancy. I just wanted to offer you support and if you want to talk to anyone you can message me. While Isabelle doesn't have the same complication as your angel its still fatal and she will die shortly after birth and I may be able to relate to some of your feelings and thoughts. Its a bad shock when your given a fatal diagnosis for your baby and just know your not alone if you ever need to talk. I'm sorry you have to go through losing an angel.
I really am so appreciative of your loving response... I am so sorry that you understand because as comforting as it is to have someone to share fears with, I could never be happy to hear about your pain. I'm so sorry that you've had to go full term while preparing a potential loss. I'm terrifyed to make it that far in this pregnancy because I just don't know how to deal with the loss or how to help my 4yo and 3yo through it either. I think that's truly the scariest part for me... DH and I have not told them anything this far and they are fairly oblivious to the situation. Do you have a plan for your family yet or have you crossed that bridge already..? I appreciate you...
By the way, my name in Hannah.
Quoting blessedmommie07:
I haven't heard of fetal hydrops but I'm 28 weeks preggo with a baby girl (first girl but 3rd child) and was given a fatal diagnosis for her at 12 weeks. Isabelle has anencephaly (missing part or all of the brain and skull). They told us that I could miscarry her at anytime or her heart just stop beating but so far I've had an uncomplicated pregnancy. I just wanted to offer you support and if you want to talk to anyone you can message me. While Isabelle doesn't have the same complication as your angel its still fatal and she will die shortly after birth and I may be able to relate to some of your feelings and thoughts. Its a bad shock when your given a fatal diagnosis for your baby and just know your not alone if you ever need to talk. I'm sorry you have to go through losing an angel.
I appreciate your response and your prayers <3 I feel like I made a good decision in joining this group, the support I see is really amazing. I'm happy to hear that it's helped you and so sorry to hear about your heartbreaking loss. Prayers for you <3
Quoting StefG28:
Praying for both of you and your babies! I miscarried back in October and am just now dealing with my issues and health surrounding that. Since joining this blog I have found peace and validation in my own thoughts and feelings, and appreciate every post here. Hannah-belle and blessedmommie07 thank you for sharing. Every post on this website brings needed comfort to someone. And I'll bee thinking of you both, praying for a miraculous out come.
I am so sorry that you are having to deal with this. It do understand how scary it is to be told you may miscarry, my daughter flew to Heaven at 21 weeks due to Trisomy 18. I am familiar with hydrops, but I also have read that there is a belief that is may be caused by the RH factor, and it has been recorded that some infants were born without them when the mother was given the shot at 28 weeks. So do not give up hope, it is there and I would advise you to ask for a Level 2 ultrasound that will allow the doctors to see more closely if there is something more going on. If your little one does not have any other malformations such as heart issues or genetic markers for Trisomies, then that might change what the doctors are saying. Until then, try to bond with your child as much as you can, it will not change how you feel if she shold leave you, and you will not have guilt that you did not do more. I am saying a prayer for you and your baby, as well as for "blessedmommie07" and Isabelle. And it you are religious, call the church/temple and ask for their blessing on your child, it gave me such piece of mind and solace to know that Grace was cared about.
I wouldn't share my pain with you if you don't want but I can lead an ear if you need. But I don't really view my pregnancy as pain, I have hard times but at the same time I want to enjoy every precious minute of this pregnancy. I'm not sorry to carry Isabelle full term because its precious time with her that I'll cherish forever. When I first found out though I was a mix of emotions for a week. I couldn't see carrying her full term and going through the pain but at the same time I couldn't think of terminating my pregnancy either. After thinking and taking about it hubby and I decided as long as this pregnancy does not put my life at risk we would carry her as long as are supposed to. I have a 2 yr and a 4 yr old (5 in March). We actually recently just told our boys even though we have known since Nov 2011, maybe about 3 to 4 weeks ago. I used books to help explain it to them (it really helped my 4 yr old). I reccomend them, they are called "Something Happened" and "We were going to have a baby but got an angel instead." If you get them I would read them yourself first before reading them with the kids because they are emotional and its a little easier to keep your emotions in check if you read them first by yourselves. It was really hard to tell my boys and thats part of why we waited so long. My 4 yr old understand fairly well and he was really sad at first and kept saying he didn't want her to go and he'd miss her, it was heart breaking. Now its cute because he's very protective of my belly and gets upset when my 2 yr old is too rough.
Quoting Hannah-Belle:I really am so appreciative of your loving response... I am so sorry that you understand because as comforting as it is to have someone to share fears with, I could never be happy to hear about your pain. I'm so sorry that you've had to go full term while preparing a potential loss. I'm terrifyed to make it that far in this pregnancy because I just don't know how to deal with the loss or how to help my 4yo and 3yo through it either. I think that's truly the scariest part for me... DH and I have not told them anything this far and they are fairly oblivious to the situation. Do you have a plan for your family yet or have you crossed that bridge already..? I appreciate you...
By the way, my name in Hannah.
Quoting blessedmommie07:
I haven't heard of fetal hydrops but I'm 28 weeks preggo with a baby girl (first girl but 3rd child) and was given a fatal diagnosis for her at 12 weeks. Isabelle has anencephaly (missing part or all of the brain and skull). They told us that I could miscarry her at anytime or her heart just stop beating but so far I've had an uncomplicated pregnancy. I just wanted to offer you support and if you want to talk to anyone you can message me. While Isabelle doesn't have the same complication as your angel its still fatal and she will die shortly after birth and I may be able to relate to some of your feelings and thoughts. Its a bad shock when your given a fatal diagnosis for your baby and just know your not alone if you ever need to talk. I'm sorry you have to go through losing an angel.
I am so sorry you are going through this! My heart breaks for you. I did not have any complications and Ryder was healthy as could be until 40 weeks, the day after he was due I went in for a routine check up and he had no heartbeat. I was induced that day and after 27 hours delivered my angel baby. My girls (2 and 4) were with me when I found out and I couldn't keep it from them and so I told them while we waited for my husband to come, my 4 yo took it the hardest and kept saying she didn't want baby Ryder to be an angel... It was really hard.
If you need to talk, or anything just pm me, I just lost Ryder a month ago so we are still trying to deal with it.
I'm sorry, I really am unfamiliar with fetal hydrops. I just wanted to let you know that we're all here to support you, and pray for you that your little one beats the odds. (((hugs)))
The Day My Heart Broke.
- Hannah-Belle
on Feb. 23, 2012 at 7:41 PM