Dos and Don'ts for dealing w/ somone w/ a chronic condition
1. Don't assume because I look well that I feel well. Looks can be very deceiving. Many days I look great, but I feel terrible.
2. Don't tell me that you know how I feel. Non one knows how anyone else feels. Two people with the same disease may feel totally different. We all have varying thresholds of pain and pain cannot be measured.
3. Don't tell me "It could be worse". Yes, it could be, but I don't need to be reminded.
4. Don't decide what I am capable of doing. Allow me to decide what activities I can participate in. There may be times I make the wrond decision, and I do, I'll know soon enough.
5. Don't be upset that you cannot ease my problems. It won't do any good for both of us to be miserable.
6. Don't ask me how I feel unless you really want to know. You may hear a lot more than you are prepared to listen to.
7. Don't assume because I did a certain activity yesterday that I can do it today.
8. Do learn everything you can about the disease. The more you know, the better equipped you will be to know what to expect.
9. Do realize I am angry and frustrated with the disease, not with you.
10. Do let me know you are available to help me when I ask. I will be grateful.
11. Do offer me lots of hugs and encoureagement.
12. Do understand why I cancel plans at the last minute. I never know from one day to the next how I will feel.