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Posted by on Jul. 11, 2013 at 10:21 AM
  • 2 Replies
Anyone else dealing with loeys Dietz syndrome in a child
by on Jul. 11, 2013 at 10:21 AM
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leahbeah143
by Leah on Jul. 11, 2013 at 10:30 AM

 I am not ~ I haven't heard of it, what is it?

I am here to listen though :-)

dflowers
by on Jul. 11, 2013 at 10:34 AM
It is a connective tissue disorder that affects the vessels in the body mainly the heart. My so has a dialated aortic root he is 20 myths old and we are in the process of genetic testing meds and finding out when he will have to have surgery


Quoting leahbeah143:

 I am not ~ I haven't heard of it, what is it?


I am here to listen though :-)


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