My child was diagnosed with beckwith-wiedemann syndrome and at 1st I felt like it was all my fault! There is a foundation website for this syndrome and it helped me to feel a bit better about the situation. http://www.beckwith-wiedemannsyndrome.org/tp40/default.asp?ID=28722. I am glad the... MORE

My child was diagnosed with beckwith-wiedemann syndrome and at 1st I felt like it was all my fault! There is a foundation website for this syndrome and it helped me to feel a bit better about the situation. http://www.beckwith-wiedemannsyndrome.org/tp40/default.asp?ID=28722. I am glad the hospital caught it early and it may get rougher for us in the future, but for now things are going well. We will have to get ultrasounds on her every 6 months and I figured it could have been worse. I pray she doesn't get tumors or cancer, but know she my have it happen! What's your experiences??