Hi my name is Lindsay and I have two kids........a 3.5 year old son, Keanan, and a 13 month old daughter, Kyleigh.
This summer has been horrible health wise for my kids. My son has had hand, foot, and mouth twice.
But the worst of the summer has been my daughter. I really need advice on what to do. I feel really lost and unsure of what to do with the all that is going on. So this may be long but here is what has been happening with my daughter.
June 29th- one day after my daughter turned 1 she had her one year check up. I mentioned that she was bruising very easily.........a few weeks earlier she had bumped her face and had a huge black eye for 3 weeks. So her Doctor did a blood test just to make sure.........she called me that night panicked that I needed to rush my daughter to the children's hospital 1 1/2 hours away that her platelets (typically at 150,000) were only at 19,000 and it was a very serious danger. So we rushed her up there. They ran tests and concluded that they believed she had ITP and had had it for some time now and that she should just continue to get better.
She was checked July 2nd and her platelets were at 36,000 so they assumed she was fine. That ITP typically goes down and then constantly improving. So it should just get better. But they wanted to continue to see her weekly.
She saw a hematologist/oncologist and he assumed the same thing.
That week she had three days of random fevers........between 101-102 but no other symptoms of illness
On July 11th she had her blood draw. Her platelets had dropped to 26,000 and her white blood count was high and her hemoglobin was low. Leukemia was mentioned. They looked at her blood on a slide and they saw abnormalities so they sent it to a specialist.
The following day they called and said the specialist did not see abnormalities.
So we went back to weekly checks.
On July 19th her levels jumped to 114,000 but her hemoglobin was low so she was put on iron.
She had the following odd things happen- throwing up for an entire day (called doctor assumed it was milk allergy although she is fine now)
-Massive diarrhea that is dark (they assume it is a virus)
-Horrible diaper rash (prescribed a cream)
-blood in her snot (again they assume a virus)
We saw the doctor on August 2nd and her levels went down to 110,000 and although she is on iron her hemoglobin dropped (normal is 12-15) she dropped from 10.9 to 10.1. So they upped her iron and had me take some stool samples. She was also only having 2-3 diapers daily so they put her on pedialyte constantly.
So now this week.....
I called on the 7th because she spiked a 102 fever. They told me it was probably a virus. Called the 8th asking to talk to her doctor..........talked to her nurse explained the random fevers (she is completely fine but the fever......no sore throat, no coughing, no sneezing, no throwing up) and she said she would call back after talking to the doctor..........no call back. Today she still has fevers and the doctor never called back. She is exceptionally moody and wants me to pack her everywhere. She is also not sleeping well and waking up screaming constantly.
I guess I am just confused. They went from constantly seeing how she was to not caring at all! If I call they act annoyed and like I am just thinking she is sick..........like I am crazy.
Should I find a new doctor? Do you ladies think I should be worried?