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Confusing Weight Issue for DS HELP! **Update 9/17**

Posted by on Sep. 12, 2012 at 7:32 PM
  • 22 Replies

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I have a question.

Is this an okay weight?

Backstory:

DS is 5, autistic with texture adversions in food. While there are some things he cannot eat (they make him throw up) he does eat a crap load of what he can. My DD is 4 and is barely two inches shorter than DS. DD is 36 some odd inches and DS is roughly 38. Both weigh in at a few ounces over 36lbs. They are trying to say that my DS is underweight and have started him on pediasure regimen 3xs a day. Im confused by this seeing how DD is so close in age and size with DS and shes perfectly "healthy"? Im taking him back to his nutritional specialist on the 17th but after speaking with the RN under that specialist she says that his weight is fine but that they will do blood work to determine vitamin nutrient levels. She also said that one of the first presenting signs of a child that isnt thriving is anemia? DS is far from anemic (just had his levels done Aug 27th). Im getting conflicting info from these people and really am at a loss so if anyone has any advice I could really use it right now.

 

Thanks!

 

** Well his previous pediatrician is in a world of hurt at the moment.  Before anyone asks Ive already lodged complaints with both my insurance company and the Board of Health here about it.  We have also since switched Pedis and theyre seeing a very good one now.  I took him to his Nutritionist Appointment and was shocked to say the least.  The previous Pedi faxed over their records of my son and the Nutritionist confirmed that they infact had only plotted TWO (including last visit) points on his growth chart.  My son had been seeing them since 2009.  Also the Dr found that the other visit plotted on his growth chart said that he was 39 inches and 38 lbs last apt!! 

The nutitionist did all his bloodwork and what not.  Everything came back fine!  Hes in fact 45 inches and weighs 44 pounds not what that idiot had put on his paperwork.  So mysteriously my son grew an obscene amount of inches and gained alot of weight in two weeks.  Go figure.  The nutritionist said that he is not in a very high percentile (12th) but that he is far from being underweight.  We both agreed that we would like to see him in a bit of a higher percentile so we are toning down the pediasure to twice a day every other day basicly.  Or primarily when he chooses not to eat etc.  But she felt him getting the pediasure three times a day ontop of his regular diet was far into the overkill zone.

Another issue found when they faxed over their paperwork that they have double vaccinated my son twice with MMR and DTAP!!!!!!!!!!!!!  So Im really kind of at a loss as to what my options or what I should do.  My son is on SSI (Autism and Encephalopathy) and so gets medicaid.  The social worker at Childrens Hospital and I sat in her office and made all the calls to medicaid and the state.  It was a whirlwind of red tape but between the social worker, me (grammar ugh), and the nutitionist and her attending we sent all the proof to the state office.  They reccomended that i contact an attorney immediately.  He is now scheduled with another doctor to discuss what if any issues could arise from the double vaccinations. 

So I guess Ill update again.  I dont want money from those assholes by any means.  But they are a moderately large practice that handles MANY disabled peoples cases.  I can only imagine what has/hasnt been done for the other people there as a result of their shoddy practices. **

by on Sep. 12, 2012 at 7:32 PM
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Replies (1-10):
ardiaxe
by Member on Sep. 12, 2012 at 7:46 PM
My 4 yr old is 39 inches and 34lbs. He looks super healthy. I hate when Drs give grief about weight, because it destroys a mothers confidence. His height to weight ratio is perfect, his BMI is great, I would even say that at 38 inches and 36 lbs he looks far from underweight. Forget about the scale and take a good look at your son, does he look well nourished?
Don't force in extra calories or make him drink the god awful pediasures, because you can actually do more harm than good. So many children have feeding aversions and issues because Drs insist the child needs MORE. In an overweight society, I would let him be who he's supposed to be,
Btw Your sons BMI is in the 94% meaning he is heavier than 94% of children his height.
Xandriasmommy
by on Sep. 12, 2012 at 8:34 PM
It sounds like your sons weight is FINE to be honest. To me it sounds like they are just going off his age not his height as well. When my dd was 12 months she was 27 inches and 17lbs. When I would tell family she was 17lbs they thought she would be skinny, I then told them she was on 27 inches. She had rolls galore. However on another child (my neighbor) he was 17lbs but 33 inches at 12 months and he was skinny as a rail.

Height and weight need to be taken. My dd Is underweight, but she is 43 inches and 32lbs.

Is he staying on his own growth curve?
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karamille
by on Sep. 12, 2012 at 9:37 PM

Where is he on the growth curve?  Where has he been in the past?  You can't really go by a snapshot of their weight, unless its REALLY low.  What matters more is if he is falling off his curve.  If he used to be at the 25th percentile and now he's at the 5th percentile, then he's dropped 20pts and thats something to be concerned about

Created by MyFitnessPal - Nutrition Facts For Foods

fusonjen
by on Sep. 12, 2012 at 9:41 PM


Quoting ardiaxe:

My 4 yr old is 39 inches and 34lbs. He looks super healthy. I hate when Drs give grief about weight, because it destroys a mothers confidence. His height to weight ratio is perfect, his BMI is great, I would even say that at 38 inches and 36 lbs he looks far from underweight. Forget about the scale and take a good look at your son, does he look well nourished?
Don't force in extra calories or make him drink the god awful pediasures, because you can actually do more harm than good. So many children have feeding aversions and issues because Drs insist the child needs MORE. In an overweight society, I would let him be who he's supposed to be,
Btw Your sons BMI is in the 94% meaning he is heavier than 94% of children his height.


To be honest with you Im not even sure hes that tall because the nurse wouldnt tell me exactly what he was at.  I just knew their height from the tape measure I use at home (you know marking it off on the wall lol).  I tried to look it up on one of those BMI indexes but got lost.  The nurse even said if he was as tall as 43 inches that his weight would just then be starting to fall into the underweight area. 

As for looking at him its kind of odd.  Hes tall, 5t pants are barely long enough for him but he is skinny.  Everyone says hes a little guy.  Hes always been that way once he got past a year old.  knobby kneed and really lanky.  The other part that is confusing is I was reading with children that are underweight their hair falls out, skin does wonky things, nails wont grow etc.  My son has none of that. He just looks skinny to be honest, but as I said before hes looked like this since he was about a year old and I know for sure that he was nowhere near underweight at that age. So needless to say Im so confused and turned around my ass is going forward while my head is going backward lol

fusonjen
by on Sep. 12, 2012 at 9:48 PM


Quoting karamille:

Where is he on the growth curve?  Where has he been in the past?  You can't really go by a snapshot of their weight, unless its REALLY low.  What matters more is if he is falling off his curve.  If he used to be at the 25th percentile and now he's at the 5th percentile, then he's dropped 20pts and thats something to be concerned about


Theres where my problem truly is.  The pedi that has seen him since 2009 recently switched to computerized records.  During this process that god awful office has lost his shot record (which by the grace of god he had been registered with the national database thing for vacs) and most if not all of his previous medical history.  They didnt even have record of him being diagnosed as autistic when theyre the ones that gave me the referral and Childrens Hospital faxed their chart on him over to the pedi 3 different times. 

The growth chart that the pedi showed me only had his Aug 27th visit and a visit back in July of last year on it.  They do not have any other information on his growth to even accurately determine his growth curve.  They were trying to say that he was underweight at that appointment also but they did not say anything about it.  He was also almost a full four inches shorter than now and weighed just barely over 30 or so pounds. But like I said there are only two points plotted on his growth chart so Im kind of confused as to how they can make an accurate diagnosis without proper information.

Another thing is that we was on the WIC program for quite awhile.  He was never suspected of being underweight at ANY of those appointments at any time and they currently have more information on his growth than the Dr office does.  The pedis lack of records btw was just discovered at his Aug apt.

ardiaxe
by Member on Sep. 12, 2012 at 9:49 PM
Quoting fusonjen:



My son looks super skinny, but his BMI is in the 60th percentile, so the Dr. Told me to watch his weight and give him 2% milk instead of whole. She said that we are so used to seeing overweight children, that we don't know what normal and healthy look like.
My friends used to tease me about my "skinny" son, when I calculated their own children's weight, they were considered obese!
egyptian_mommy
by on Sep. 12, 2012 at 9:53 PM
He sounds fine. He's not a huge guy, but he doesn't have to be to be healthy.
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fusonjen
by on Sep. 12, 2012 at 9:54 PM


Quoting ardiaxe:

Quoting fusonjen:



My son looks super skinny, but his BMI is in the 60th percentile, so the Dr. Told me to watch his weight and give him 2% milk instead of whole. She said that we are so used to seeing overweight children, that we don't know what normal and healthy look like.
My friends used to tease me about my "skinny" son, when I calculated their own children's weight, they were considered obese!

Thats what Im saying! My mom told me that when I was my sons age that I was as skinny as a bean pole.  She said my father's family swore up and down she wasnt feeding me but my pedi said I was healthy as a horse just on the skinny side.  My DD is thick and not quite chunky but very "healthy" I guess you could say lol So the two of them carry weight very differently.

karamille
by on Sep. 12, 2012 at 9:59 PM


Quoting fusonjen:


Quoting karamille:

Where is he on the growth curve?  Where has he been in the past?  You can't really go by a snapshot of their weight, unless its REALLY low.  What matters more is if he is falling off his curve.  If he used to be at the 25th percentile and now he's at the 5th percentile, then he's dropped 20pts and thats something to be concerned about


Theres where my problem truly is.  The pedi that has seen him since 2009 recently switched to computerized records.  During this process that god awful office has lost his shot record (which by the grace of god he had been registered with the national database thing for vacs) and most if not all of his previous medical history.  They didnt even have record of him being diagnosed as autistic when theyre the ones that gave me the referral and Childrens Hospital faxed their chart on him over to the pedi 3 different times. 

The growth chart that the pedi showed me only had his Aug 27th visit and a visit back in July of last year on it.  They do not have any other information on his growth to even accurately determine his growth curve.  They were trying to say that he was underweight at that appointment also but they did not say anything about it.  He was also almost a full four inches shorter than now and weighed just barely over 30 or so pounds. But like I said there are only two points plotted on his growth chart so Im kind of confused as to how they can make an accurate diagnosis without proper information.

Another thing is that we was on the WIC program for quite awhile.  He was never suspected of being underweight at ANY of those appointments at any time and they currently have more information on his growth than the Dr office does.  The pedis lack of records btw was just discovered at his Aug apt.

Well... even with that 3 yr old data, that shows a pretty big fall.  Kids usually find their true curve by 2.    30lbs is a good weight for a 2 yr old.  Kids usually grow 2 inches per year, so if its been 3 years he should have grown 6 inches.  That's why they are concerned.  Lack of linear growth is a big marker being undernurished.   

Created by MyFitnessPal - Nutrition Facts For Foods

karamille
by on Sep. 12, 2012 at 10:04 PM


Quoting fusonjen:


Quoting ardiaxe:

My 4 yr old is 39 inches and 34lbs. He looks super healthy. I hate when Drs give grief about weight, because it destroys a mothers confidence. His height to weight ratio is perfect, his BMI is great, I would even say that at 38 inches and 36 lbs he looks far from underweight. Forget about the scale and take a good look at your son, does he look well nourished?
Don't force in extra calories or make him drink the god awful pediasures, because you can actually do more harm than good. So many children have feeding aversions and issues because Drs insist the child needs MORE. In an overweight society, I would let him be who he's supposed to be,
Btw Your sons BMI is in the 94% meaning he is heavier than 94% of children his height.


To be honest with you Im not even sure hes that tall because the nurse wouldnt tell me exactly what he was at.  I just knew their height from the tape measure I use at home (you know marking it off on the wall lol).  I tried to look it up on one of those BMI indexes but got lost.  The nurse even said if he was as tall as 43 inches that his weight would just then be starting to fall into the underweight area. 

As for looking at him its kind of odd.  Hes tall, 5t pants are barely long enough for him but he is skinny.  Everyone says hes a little guy.  Hes always been that way once he got past a year old.  knobby kneed and really lanky.  The other part that is confusing is I was reading with children that are underweight their hair falls out, skin does wonky things, nails wont grow etc.  My son has none of that. He just looks skinny to be honest, but as I said before hes looked like this since he was about a year old and I know for sure that he was nowhere near underweight at that age. So needless to say Im so confused and turned around my ass is going forward while my head is going backward lol

BMIs are not an accurate tool for determining if a child is underweight.  Because linear growth is affected by caloric intake, you can have a child who's body has slowed down linear growth because it knows its not getting enough nutrition.  In order to preserve itself, it puts the calories to brown fat to protect itself from starvation rather than growing upwards.  So because the child is short, it skews the BMI drastically.  My son's BMI said he was fine/overweight when he was so underweight he had no muscle tone, his skin sagged, and resembled the children on the "feed the children" commercials.   We have sinced found his underlying problem and fixed it, but for about 2 years we battled failure to thrive.  His hair and nails always grew.  Those types of things more often show up when its a sudden reduction on nutrients rather than a gradual tapering off.

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