So my son has been getting headaches on and off for some months now, they were getting worst and recurring more and more often. So about two months ago he had gotten a cat scan of the head and an MRA of his head, thank u god that was normal. Last week he went for his MRI, he was supposed to have it done with sedation he's 9 years old, and I was so so proud of him because he did it without sedation (his choice).
Well I called the Dr today and he said my baby has Chiari Malformation level 1, and that he's going to refer him to a Neurosurgeon for possible surgery :( . I did not tell my son anything but I have done my research and I'm. It just going to let the first Dr do surgery on my son, I will get a few different opinions first. Ahhhhhhh my baby boy, have any of u ever gone thru something like this? Need some comfort.....
on Sep. 18, 2012 at 9:18 PM