So my son has been getting headaches on and off for some months now, they were getting worst and recurring more and more often. So about two months ago he had gotten a cat scan of the head and an MRA of his head, thank u god that was normal. Last week he went for his MRI, he was supposed to have it done with sedation he's 9 years old, and I was so so proud of him because he did it without sedation (his choice).
Well I called the Dr today and he said my baby has Chiari Malformation level 1, and that he's going to refer him to a Neurosurgeon for possible surgery :( . I did not tell my son anything but I have done my research and I'm. It just going to let the first Dr do surgery on my son, I will get a few different opinions first. Ahhhhhhh my baby boy, have any of u ever gone thru something like this? Need some comfort.....
Well I called the Dr today and he said my baby has Chiari Malformation level 1, and that he's going to refer him to a Neurosurgeon for possible surgery :( . I did not tell my son anything but I have done my research and I'm. It just going to let the first Dr do surgery on my son, I will get a few different opinions first. Ahhhhhhh my baby boy, have any of u ever gone thru something like this? Need some comfort.....
Posted by
on Sep. 18, 2012 at 9:18 PM
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by
Nikki
on Sep. 20, 2012 at 10:53 AM
1 mom liked this
I was diagnosed with the same thing at age 15. I saw a neuro surgeon and did not need surgery. It has not caused any sort of an issue in my life. I wouldn't get concerned just yet. Good luck mama
by
Member
on Sep. 20, 2012 at 11:41 PM
I never heard of this but with how brave ur son is im guessing hes gonna fight thru it and be just fine. Good luck
by
Member
on Sep. 21, 2012 at 12:45 PM
((big hugs)) to both you and your very brave boy. Im not familiar with it at all, but I just wanted to lend you some support. I hope everything turns out for the best for your son.
by
Bronze Member
on Sep. 22, 2012 at 8:45 PM
Awwwe hugs. Never heard of it. Be strong and brave for ur lil man. You can do it. Im praying for u guy!
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by
New Member
on Sep. 22, 2012 at 9:45 PM
I have Chiari, was diagnosed about 12 years ago, I see a neurologist but so far have been able to avoid surgery. I have headaches every day...but my doctor told me I will know when surgery is necessary. I have a friend that did have the surgery for this and she said it made an amazing difference for her!!
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The Mom Below Me Game
- mommyivy25
on Sep. 18, 2012 at 9:18 PM