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AUTISM MOMS

Posted by on Mar. 31, 2013 at 4:21 AM
  • 9 Replies

 

May I make a suggestion, as a mom of a 14 yr old, high functioning child. Keep a detailed daily journal. Because they are going to ask you the same questions over and over. Be sure you know his developmental ages, when he started talking, walking, etc. Put this info on the inside of the cover. And in your journal take a RED pen and right your questions down across the top of the page. When you have an appointment coming up, turn to the VERY next blank page, write across the top in large letters, "QUESTIONS" and the date of the appointment. Leave space between writing down each question to write with blue or black the answers to you questions. Then when you go to ANY doctor take this journal with you. It's a good idea to have a pic of him on the front inside cover,(change this out, EVERYTIME, he gets his pics made. Also a copy of his ins card. That way if your wallet is lost (as I often do) you have a backup of everything you need.

I wish that I would have thought of this in the beginning of our journey 14 yrs ago, I am still seeing the exact same neurologist as we did at 3 and they STILL want all dev info.

Anyone needing help or any questions (ask me ANYTHING) related to autism contact me anytime, I will do my best to help you with whatever you are going thru or if you just need to talk.

Then as far as the IEP goes. You are with your child more than anyone! Tell them what he needs. Also you can ask if they will retest him if you have concerns about your diagnosis. Take all papers that you have with you. At his age make a picture schedule with real pics and velcro, when he completes the task he moves it over to the completed column. Do this for everything (get up, brush teeth, brush hair, etc). Ask them to make one at school just as detailed. This will help with meltdowns. If he has a lot of meltdowns, ask his teacher if she can make a small space somewhere in the room that would be "his safe place, have a CD player or music device with some music that will calm him down.This will be a place that he can go ANYTIME that he feels overwhelmed and when he is calm, he goes back and joins in what the class is doing. But he will need some safe territory or they will be calling every day They will do this if they have any experience with autistic children.

by on Mar. 31, 2013 at 4:21 AM
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Replies (1-9):
new_mom808
by Andrea on Mar. 31, 2013 at 12:16 PM
1 mom liked this

 Thank you for sharing from your experiences.

Charizma77
by on Mar. 31, 2013 at 8:20 PM
1 mom liked this

Good idea. Thanks!

Xandriasmommy
by Nycole on Apr. 1, 2013 at 10:27 AM
1 mom liked this
When my dd was diagnosed I was sent to a social worker. We sat down and first thing she did was give me a 3 ring binder. It was loaded with papers to fill out so when I go places I can just hand them over to make copies. It has sections for the stuff you are talking about, plus it includes an area for info on IEPs, what to watch for and advocate for or against, and then a place to keep the IEPs!

It goes to EVERY appointment. Wether it's relevant to the situation or not. Even goes to school appointments.
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TigerofMu
by Sonja on Apr. 1, 2013 at 12:19 PM
1 mom liked this

That's a really good idea.  Documentation and Observational anecdotes are a huge part of diagnosis and finding solutions that work for your child and family.

PrincessZ20
by on Apr. 1, 2013 at 12:45 PM
1 mom liked this

Great information, thank you for sharing.

I think it could probably be applied to all children! 

lexiemmysmom
by on Apr. 2, 2013 at 9:57 AM

I'd love more details on the velcro/picture schedule. I am not crafty but my daughter loves loves routine and she is a visual learner so this would help out greatly. Thank you for the information. My daughter just turned 9 and it actually took us years until she was properly diagnosed with autism spectrum disorder and adhd. 

SAMI_JO
by on Apr. 2, 2013 at 1:54 PM

 You just start at get up. And do EVERY individual act, through the entire day. you can do it by time or by to do and done. Finish up with brush teeth and go to bed. you can actually take pics or use pics of internet, this one is not as detailed as the on I made for my son. He is also OCD, ODD; so I had to do time and done. But it MUST be VERY DETAILED.  I she asks you " mommy what are we going to do today? You better not forget to tell her if you need gas, that will blow the whole day. I know from experience.

lexiemmysmom
by on Apr. 3, 2013 at 9:19 AM


Thank you. That is a wonderful idea! I might have to do one for the hubby too ;)

Quoting SAMI_JO:

 You just start at get up. And do EVERY individual act, through the entire day. you can do it by time or by to do and done. Finish up with brush teeth and go to bed. you can actually take pics or use pics of internet, this one is not as detailed as the on I made for my son. He is also OCD, ODD; so I had to do time and done. But it MUST be VERY DETAILED.  I she asks you " mommy what are we going to do today? You better not forget to tell her if you need gas, that will blow the whole day. I know from experience.



SAMI_JO
by on Apr. 3, 2013 at 9:42 AM

 I made EVERYONE in the house use ours. Everbody does basically the same things, and it makes the child feel less different.

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