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The Park Bench The Park Bench

Meet Sophie! A teen who doesn't let anything stop her!

Posted by on May. 4, 2012 at 11:51 AM
  • 15 Replies

Sophie has a rare form of muscular dystrophy called Emery-Dreifuss. She is celebrating her 13th Birthday and is Vice President of her student council! She has incredible control over her feet and is able to paint and play computer and Wii games with her right foot.

Isn't Sophie amazing?  Do you know anyone who has been through something similar who has been just as determined to overcome all the obstacles in his/her life?

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by on May. 4, 2012 at 11:51 AM
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Replies (1-10):
LancesMom
by on May. 4, 2012 at 12:02 PM

This is an amazing little girl! I have a GF who has a son with CP and is totally dependant on her. He is in his 20s now and they told her he would not make it to 5yrs. old! She is amazing how she has raised her son.

Cafe AmyS
by Head Admin on May. 4, 2012 at 12:20 PM

 That's so cool!

I used to go to church with a man who had CP.  It really only affected his legs, but he was able to do all of the things anyone else could do, including play football in high school.  He just had to make sure he did the stretches and things required or his muscles/tendons would get too tight and he'd have trouble walking.

Quoting LancesMom:

This is an amazing little girl! I have a GF who has a son with CP and is totally dependant on her. He is in his 20s now and they told her he would not make it to 5yrs. old! She is amazing how she has raised her son.

 

earthangel1967
by on May. 4, 2012 at 12:54 PM

She is awesome.

Of my 5 kids 3 have had bipolar disorder and 1 has had paranoid schizophrenia with full blown visual and hearing hallucinations since they were only toddlers and they have gone through so much but grew up to be just exceptionally beautiful human beings (they are all young adults now) and learned to cope with their illnesses to the point I am in awe of them.

 

YVONNE

Cafe AmyS
by Head Admin on May. 4, 2012 at 12:57 PM
1 mom liked this

 Yvonne, that's amazing and quite the testiment to what a good mom you are!

Quoting earthangel1967:

She is awesome.

Of my 5 kids 3 have had bipolar disorder and 1 has had paranoid schizophrenia with full blown visual and hearing hallucinations since they were only toddlers and they have gone through so much but grew up to be just exceptionally beautiful human beings (they are all young adults now) and learned to cope with their illnesses to the point I am in awe of them.

 

 

earthangel1967
by on May. 4, 2012 at 1:02 PM


Quoting Cafe AmyS:

 Yvonne, that's amazing and quite the testiment to what a good mom you are!

Quoting earthangel1967:

She is awesome.

Of my 5 kids 3 have had bipolar disorder and 1 has had paranoid schizophrenia with full blown visual and hearing hallucinations since they were only toddlers and they have gone through so much but grew up to be just exceptionally beautiful human beings (they are all young adults now) and learned to cope with their illnesses to the point I am in awe of them.

 

 

thank youhugs Awww thank you so much, that means a great deal to me. It was soooo scary back then bc I had no internet and no cafemom and never even HEARD of children having such disorders I didnt even know it was possible and it took 11 yrs of going to all kinds of specialists and tons of tests before we got the first poor child diagnosed, after that getting the other kids diagnosed was easier but it was really sad and scary and I felt so alone at the time. I really worried badly that they would every be OK or be able to live a normal happy life, I am so grateful that they are able to.  Eccentric admittedly but still good and happy. : D

YVONNE

snuggiewoogie
by on May. 4, 2012 at 1:12 PM

 That's wonderful :)

CoeyG
by on May. 4, 2012 at 1:35 PM

All I can say is WOW.  One of my best friend's has a son with Down's Syndrome.  When he was born back in the 70s everyone advised her to "put him away" into a "facility" where they would "deal" with his problems.  Instead she opted to raise him herself.  Her parents didn't like that idea so they took the "hands off" approach but she didn't suffer, she had a good job and lots of loving, caring friends and together we all had a part in his raising.  He got a paper route when he was still in elementary school, now as an adult he still has that route but has added customers over the past 30+ years (by the way he has had only three cancellations and those were due to death).  He also delivers pizzas to businesses close to the pizza shop, he doesn't have a deriver's license but his bicycle is all tricked out.  He also lives in a group home and does all the cooking because he is a fantastic cook...he even has a girlfriend.  Oh yeah and his grandparents?  Seeing how well he actually has done they now speak of him with pride, as if they had something to do with him becoming the independent productive member of society he has become.  

Reina13
by on May. 4, 2012 at 1:38 PM

What a remarkable young lady.  A beautiful testament to the human spirit.

Cafe AmyS
by Head Admin on May. 4, 2012 at 1:58 PM

There is nothing wrong with eccentricity. ;)

Quoting earthangel1967:


Quoting Cafe AmyS:

 Yvonne, that's amazing and quite the testiment to what a good mom you are!

Quoting earthangel1967:

She is awesome.

Of my 5 kids 3 have had bipolar disorder and 1 has had paranoid schizophrenia with full blown visual and hearing hallucinations since they were only toddlers and they have gone through so much but grew up to be just exceptionally beautiful human beings (they are all young adults now) and learned to cope with their illnesses to the point I am in awe of them.

 

 

thank youhugs Awww thank you so much, that means a great deal to me. It was soooo scary back then bc I had no internet and no cafemom and never even HEARD of children having such disorders I didnt even know it was possible and it took 11 yrs of going to all kinds of specialists and tons of tests before we got the first poor child diagnosed, after that getting the other kids diagnosed was easier but it was really sad and scary and I felt so alone at the time. I really worried badly that they would every be OK or be able to live a normal happy life, I am so grateful that they are able to.  Eccentric admittedly but still good and happy. : D


Cafe AmyS
by Head Admin on May. 4, 2012 at 1:59 PM

Awww.... proof that it takes a village and that young man can do anything he sets his mind to.  

Thanks for sharing!  :)

Quoting CoeyG:

All I can say is WOW.  One of my best friend's has a son with Down's Syndrome.  When he was born back in the 70s everyone advised her to "put him away" into a "facility" where they would "deal" with his problems.  Instead she opted to raise him herself.  Her parents didn't like that idea so they took the "hands off" approach but she didn't suffer, she had a good job and lots of loving, caring friends and together we all had a part in his raising.  He got a paper route when he was still in elementary school, now as an adult he still has that route but has added customers over the past 30+ years (by the way he has had only three cancellations and those were due to death).  He also delivers pizzas to businesses close to the pizza shop, he doesn't have a deriver's license but his bicycle is all tricked out.  He also lives in a group home and does all the cooking because he is a fantastic cook...he even has a girlfriend.  Oh yeah and his grandparents?  Seeing how well he actually has done they now speak of him with pride, as if they had something to do with him becoming the independent productive member of society he has become.  


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