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Williams Syndrome (piog)

Posted by on Jul. 8, 2011 at 1:36 AM
  • 16 Replies
http://www.williams-syndrome.org/

Here is a link in case anyone is interested in what WS is.

Are there any moms on here with kids that have WS?

Ds finaly got his referal to the specialist to get tested for WS.

Do they just do an evaluation first? Or just blood work?

Im trying to figure out what to exspect from first-hand experiences.

I have googled and researched WS for months and think first-hand stories would help.

What made the pedi decide to persue WS as a diagnoses for you kid?

Did they have the "look?"

Ds's pedi was watching a show and called mom asking her to bring him in to discuss WS (origionally they thought he has autism). The doc said he has the "look."

So any stories or advice is great :)

Thanks in advanced
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by on Jul. 8, 2011 at 1:36 AM
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Replies (1-10):
twins0506
by on Jul. 8, 2011 at 7:30 AM

i dont know anything about it sorry. but here's a bump!

RockinMama0608
by on Jul. 8, 2011 at 7:41 AM

I looked it up not too long ago although I still do not know much about it.  Hoping that you find the answers you are looking for!

mallowcup17
by on Jul. 8, 2011 at 9:42 AM

i have no advice but hope you find the answers your family needs! ((hugs))

mstkn.identity
by on Jul. 8, 2011 at 12:02 PM
Thanks
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mstkn.identity
by on Jul. 8, 2011 at 4:14 PM
Bump
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aidensmomma508
by Wendy on Jul. 8, 2011 at 5:20 PM

marisab's son has it *BUMP!*

mstkn.identity
by on Jul. 8, 2011 at 5:21 PM
Thanks. I wonder if she would mind me finding her and pming her?


Quoting aidensmomma508:

marisab's son has it *BUMP!*


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aidensmomma508
by Wendy on Jul. 8, 2011 at 5:41 PM

I'm sure she would be fine with that Marisab

mstkn.identity
by on Jul. 8, 2011 at 5:46 PM
Kay thanks. I dont know if i can search for her on mobile so ill do it in a bit. Thanks much :)


Quoting aidensmomma508:

I'm sure she would be fine with that Marisab


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