Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

Developmental evaluation questions

Posted by on Aug. 17, 2011 at 5:53 PM
  • 15 Replies

So they (doctors, different pediatricians and specialists) have thought it was possible my son is on the spectrum. He has some behavioural issues and because of them 2 neurologists have suggested and referred him to the psychology department at his hospital. I finally got a hold of them today (oh boy, long story. Referral was sent and approved in JUNE!). They asked what the appt was for so I told them about the behavior stuff and possible autism suspicions. She said it will be a developmental evaluation most likely then. She said it will take 3 appts. 1-1hour appt and 2-2hour appts. Does that sound right? And we're going to the psychology department so I am not sure who all they will have evaluating  him, but if he does have autism, will someone in that department be capable of making that diagnosis or noticing it?


Our pediatrician wants us in with a developmental pedi but the one he wanted us in (which works in the neuro dept with the psychs and his neurologist) was booked solid and refusing new patients. So he has an appt with another developmental pedi but it's not til October (and honestly, I made that appt so long ago I would have to call to find the date and time out again!) and his neurologists know about his appts or trying to get appts with the dev. pedis and they sent him to psych to hopefully get SOMEONE to look at him sooner, you know? And help us. So, does this just sound like we are headed in the right direction whether it be autism or a mood disorder or anything else?


And forgot to mention that they are mailing me out a huge packet today of questions to fill out before his appts, so what will they have us do during the appt? What should we expect at these appts? Any suggestions for them?




(Just an FYI: my son is developmentally delayed and in special education program in preschool. He is receiving speech therapy in home and in school. And will get communication, motor, and social therapy in school. Then feeding and occupational therapy at his hospital and probably OT in home and possibly OT at the school. Then we are waiting to get a PT on board too.)

Patrick Star. Pictures, Images and Photos

by on Aug. 17, 2011 at 5:53 PM
Add your quick reply below:
You must be a member to reply to this post.
Replies (1-10):
shell3m
by on Aug. 17, 2011 at 5:57 PM

yes, the amount of time does sound right.  At the beginning you spend HOURS filling out paperwork and while they do "test" for them, you get to sit there and fill out questions about your child.  I felt like I was back and school and was taking a test where you have to fill in the bubble, remember those....LOL  It's easier after you past the first part of it all.  The fallowing years it does get faster and easier.  :) 

Mipsy
by Member on Aug. 17, 2011 at 5:58 PM

Oh yeah I forgot to mention that they are actually sending me out a huge packet she said to fill out before the appointment. So if I fill that out before the appt, what will they have us do during the appt?

Quoting shell3m:

yes, the amount of time does sound right.  At the beginning you spend HOURS filling out paperwork and while they do "test" for them, you get to sit there and fill out questions about your child.  I felt like I was back and school and was taking a test where you have to fill in the bubble, remember those....LOL  It's easier after you past the first part of it all.  The fallowing years it does get faster and easier.  :) 


Kittie26
by on Aug. 17, 2011 at 5:59 PM

Hi, and welcome! How old is your son? Why is he in the hospital? What state are you from?

My daughter just turned 2 in June. I went to a government program (infants and toddlers here in MD) for an evaluation for speech therapy just before her 2nd birthday, and they found her more than 25% delayed in speech, cognitive, social/emotional, and adaptive. That finding was after a 2-hour in-home visit that included observations, questions, and IFSP writing. After one session each w/ special ed teacher and speech therapy, they suggested I have her evaluted for autism. That involved an in-home visit with a psychologist (1 hour), filling out questionnaires by me and by daycare, and an in-center play-based testing (another hour). At the end of that, a week later, the psychologist delivered the autism diagnosis. As long as whoever you are seeing is certified to do the testing and does all the appropriate research to reach that diagnosis, then yes, by the end you should know whether your son is on the spectrum.

Kittie26
by on Aug. 17, 2011 at 6:04 PM

I think what happens in every evaluation is different to a degree -- some people have said they filled out paperwork while their kids were tested. But like you, I filled out the paperwork before the last appointment, so what we did was in the beginning they asked that we just go into the room and sit on the wall, and just let Aly do her thing and see what toys she went to, how she interacted with them, if she tried to involve us (but we couldn't prompt anything or interact w/ her other than letting her do what she wanted to do). Then we got on the floor with her and played w/ her like we would have at home (except two people are watching us which was kind of a strange experience). Then we went back to the wall where we could do nothing while the two evaluators tried to play with her with various things, see how she reacted to those things, see how she asked for things, etc. It was actually a pretty laid back experience and Aly did really well with it. I honestly didn't expect an autism diagnosis -- she doesn't have a lot of typical behaviors -- but here we are, three weeks later w/ our diagnosis. I was in your shoes very, very recently!

Mipsy
by Member on Aug. 17, 2011 at 6:05 PM

My son just turned 3 and he isn't in the hospital right now, sorry. I say his hospital cuz we are there like everyday! Almost would be easier to stay there, LOL! He has a lot of medical issues, epilepsy, asthma, dysphagia (difficulty swallowing) tracheobronchomalacia (floppy airways), possibly MODY diabetes (rare genetic form of diabetes, undergoing testing at a research facility in Chicago right now), GERD, other GI issues, and severe food allergies.

My son too had the evaluation by our EI program here in AZ and he too was found delayed like your daughter. He was over 50% delayed actually. After a year of speech he has made a lot of progress. His epilepsy I know has contributed to other factors such as his physical issues (issues walking and jumping and climbing like other kids, and writing). They to have suggested we get him looked at for autism and they have suggested he been seen by a genetecist. If he comes to have MODY then we will push for the genetcist, but since it is hard to get insurance to cover we decided to wait on that. My son is in our states Division of Developmental Disablities program. They have been a lot of help to us!

Quoting Kittie26:

Hi, and welcome! How old is your son? Why is he in the hospital? What state are you from?

My daughter just turned 2 in June. I went to a government program (infants and toddlers here in MD) for an evaluation for speech therapy just before her 2nd birthday, and they found her more than 25% delayed in speech, cognitive, social/emotional, and receptive. That finding was after a 2-hour in-home visit that included observations, questions, and IFSP writing. After one session each w/ special ed teacher and speech therapy, they suggested I have her evaluted for autism. That involved an in-home visit with a psychologist (1 hour), filling out questionnaires by me and by daycare, and an in-center play-based testing (another hour). At the end of that, a week later, the psychologist delivered the autism diagnosis. As long as whoever you are seeing is certified to do the testing and does all the appropriate research to reach that diagnosis, then yes, by the end you should know whether your son is on the spectrum.


LStambaugh
by on Aug. 17, 2011 at 8:57 PM
My son is 4 and was diagnosed in Feb. We went to a place called the melmed center in Scottsdale. I had a packet to fill out and bring in, and then more that the psychologist gave us. It was 3 hours of evaluation done in one day split into two sessions and then a week later we went back for the results. We were told to not interact or talk during the process. She used lots of toys to test. Just a couple examples would filling a balloon with air and letting it go to see his reaction. Using a doll to see if he "pretend" plays, puzzles, ect. It was kid friendly and my son actually had a lot of fun! Good luck to you and your family.
Posted on CafeMom Mobile
Mipsy
by Member on Aug. 17, 2011 at 10:21 PM
A friend from church just told me her son went there and she absolutely raved about them!!! We have an appt with a dr Johnson or something and he's located in Scottsdale. Our DDD coordinator said if he evaluates and dx our son, then things like SSI won't send us to 20 of their doctors for an eval. She said everyone accepts his evaluations and dx. I dunno if he is part of mailmed though?

Quoting LStambaugh:

My son is 4 and was diagnosed in Feb. We went to a place called the melmed center in Scottsdale. I had a packet to fill out and bring in, and then more that the psychologist gave us. It was 3 hours of evaluation done in one day split into two sessions and then a week later we went back for the results. We were told to not interact or talk during the process. She used lots of toys to test. Just a couple examples would filling a balloon with air and letting it go to see his reaction. Using a doll to see if he "pretend" plays, puzzles, ect. It was kid friendly and my son actually had a lot of fun! Good luck to you and your family.
Posted on CafeMom Mobile
LStambaugh
by on Aug. 17, 2011 at 10:29 PM
We had a really good experience with them. We live in Yuma but if I lived in the phx area I would continue going there. They also have all kinds of programs for parents.


Quoting Mipsy:

A friend from church just told me her son went there and she absolutely raved about them!!! We have an appt with a dr Johnson or something and he's located in Scottsdale. Our DDD coordinator said if he evaluates and dx our son, then things like SSI won't send us to 20 of their doctors for an eval. She said everyone accepts his evaluations and dx. I dunno if he is part of mailmed though?



Quoting LStambaugh:

My son is 4 and was diagnosed in Feb. We went to a place called the melmed center in Scottsdale. I had a packet to fill out and bring in, and then more that the psychologist gave us. It was 3 hours of evaluation done in one day split into two sessions and then a week later we went back for the results. We were told to not interact or talk during the process. She used lots of toys to test. Just a couple examples would filling a balloon with air and letting it go to see his reaction. Using a doll to see if he "pretend" plays, puzzles, ect. It was kid friendly and my son actually had a lot of fun! Good luck to you and your family.

Posted on CafeMom Mobile
Mipsy
by Member on Aug. 17, 2011 at 10:29 PM
*Melmed and I will call them tomorrow.
Posted on CafeMom Mobile
Mipsy
by Member on Aug. 17, 2011 at 10:31 PM
We live in Casa Grande, but there are absolutely 0 doctors here worth anything! So we drive to Phoenix Childrens and all over Phoenix for doctors. We're lucky we live as close as we do though, you know?

Quoting LStambaugh:

We had a really good experience with them. We live in Yuma but if I lived in the phx area I would continue going there. They also have all kinds of programs for parents.




Quoting Mipsy:

A friend from church just told me her son went there and she absolutely raved about them!!! We have an appt with a dr Johnson or something and he's located in Scottsdale. Our DDD coordinator said if he evaluates and dx our son, then things like SSI won't send us to 20 of their doctors for an eval. She said everyone accepts his evaluations and dx. I dunno if he is part of mailmed though?





Quoting LStambaugh:

My son is 4 and was diagnosed in Feb. We went to a place called the melmed center in Scottsdale. I had a packet to fill out and bring in, and then more that the psychologist gave us. It was 3 hours of evaluation done in one day split into two sessions and then a week later we went back for the results. We were told to not interact or talk during the process. She used lots of toys to test. Just a couple examples would filling a balloon with air and letting it go to see his reaction. Using a doll to see if he "pretend" plays, puzzles, ect. It was kid friendly and my son actually had a lot of fun! Good luck to you and your family.

Posted on CafeMom Mobile
Add your quick reply below:
You must be a member to reply to this post.
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)