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New here :)

Posted by on Sep. 14, 2011 at 7:15 AM
  • 24 Replies

Hi everyone!  My name is Beth, and I'm the mother of Chance (17) and Little Bryan (5). 

First off let me say that Little Bryan has not been diagnosed yet.  For the first five years + of his life, I basically kept him home to myself.  It was hard taking him places, and we really didn't have anywhere to go anyway (lol).  He did seem a bit behind other kids his age in maturity and speech, but I honestly thought he just needed time, ya know?  He started school Aug. 15th, and it wasn't pretty.  The first two days, he resisted every attempt to help him be in a regular class and had meltdowns regularly.  The word autism came up frequently that first week.  Then after a meeting with the principal and others, it was decided he could go to the school's preschool until his birthday (Halloween) to try and acclimate.  This was both good and bad.  He gets more one on one time with his special education teacher, and they keep him in the general class as much as possible.  BUT, the preschool rules are no packed lunch, and my little guy is incredibly picky... so he wasn't eating well.  Also he hates naptimes.  I have to lay down with him for him to do one at home.  (The school has now given me permission to pack a lunch, thank God!)
Anyway, autism has been said and talked about frequently.  He's being observed by behavioral specialists and the school will do their testing near his birthday.  Also, I have my pediatrician in on the matter and we will be going to the Dennis Developmental Center for testing as soon as I can get an appointment... which is hard because they're super backed up.  Meanwhile, while some things are getting better (speech, understanding situations, nonverbal communication), the meltdowns have gotten worse.  Last night he was up until 11 p.m. fighting me about going to sleep.  And friday he had a huge meltdown at school, kicking and hitting teachers and other students.  Which breaks my heart to think about.  They say if he is autistic, he's high functioning.  He reads at a high level and is very smart on many things... other things he is severely lacking in, it seems. 

Anyway.  I'm in here because I need advice on how to handle this stage... I'm in uncharted territory here.  I don't want to assume autism, but know there's definitely a problem going on.  IF he DOESN'T get diagnosed with autism, I will bow out of this group and wish everyone the best.  If I'm wrong for going ahead and joining this group, please let me know!  I won't mind... just grasping at straws here. 

Thanks for listening. 

by on Sep. 14, 2011 at 7:15 AM
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Replies (1-10):
aidensmomma508
by Wendy on Sep. 14, 2011 at 7:36 AM

Welcome to the group! You are more than welcome to be here with or without a child on the spectrum. My son Aiden is also 5 and goign through a hard time behavior wise so I understand what you are going through.  I'm glad the school and therapists are working with your son and it sounds like they have it together for a good start to get him help and his needs met. Please feel free to vent, ask questions or post here anytime.

arkansasmama08
by on Sep. 14, 2011 at 7:44 AM
Research research research. Ds was/is exactly the same way. When he was 3 we put him in preschool and he flipped out. We'd never had trouble with him before then. He was hitting and kicking his teachers, wetting his pants, peeing on the bathroom walls and not playing with the other kids. I pulled him after a few months. Last year he did a home based head start program and we had him evaluated thru them. I had suspicions of aspergers/hfa and I was right. We got the word from the schools behaviorist that he has all signs of aspergers and so is now "educationally identified" as autistic. We too are waiting to get into Dennis developmental to have him and our 2 younger children evaluated. Better safe than sorry. Where are you at? Maybe we're neighbors?
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drewsmom12
by on Sep. 14, 2011 at 7:47 AM

Welcome to the group. I am new also. I have a 12 yr old son who is on the waiting list to get tested for Aspergers. I am so sorry for what you are going through. I can not give any advice of how to handle your son. My son has struggled in other ways. It has been a long journey for me & a very long story on my son & his education. But I hope that your son soon gets the help that he needs. Good luck & keep us posted. You are a great mom & doing the right thing.

 

PadmeJnz
by on Sep. 14, 2011 at 8:18 AM

OHHHHH thank you!  I'm so relieved, didn't want to go somewhere where I didn't need to be!  I'll be back online later, trying to get Little Bryan ready for school right now.  Arkansasmama08, I'm in Paragould which is north of Jonesboro and almost on the Missouri state line.  We might not be neighbors, but us Arkies gotta stick together!  Right?  :) 

Thanks again! 

arkansasmama08
by on Sep. 14, 2011 at 8:20 AM
Lol right. Too bad your on the other side of the state! I'm dying for a irl support group here :(
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RockinMama0608
by on Sep. 14, 2011 at 8:27 AM

Welcome to the group Beth!  You are welcome here and we will not push you away  =)  I have a 5 year old as well and he is on the spectrum.  Any time you have a question or just want support, feel free to post here.  We are here to help you through this process.

If you want to learn more, there are several websites that provide good information.  My favorite is Autism Speaks.  They have a 100 day kit that has a ton of information to help you through. 

I look forward to getting to know you more!  I am glad you joined us!


PadmeJnz
by on Sep. 14, 2011 at 9:40 AM


Quoting RockinMama0608:

Welcome to the group Beth!  You are welcome here and we will not push you away  =)  I have a 5 year old as well and he is on the spectrum.  Any time you have a question or just want support, feel free to post here.  We are here to help you through this process.

If you want to learn more, there are several websites that provide good information.  My favorite is Autism Speaks.  They have a 100 day kit that has a ton of information to help you through. 

I look forward to getting to know you more!  I am glad you joined us!



Thanks for the resource!  I did go to their website, but didn't go into it fully.  Honestly, lots of websites seem to be just "preaching for the cause".  Which I agree IS NEEDED, but I'm more needing a guideline to go by now.  Pure logic, really.  Right now I have everyone coming at me at all sides with "THEIR OPINION" of the matter.  Which just kills me.  My husband is working two jobs and going to school full time... so I'm the main one dealing with this.  I'm the Mom, anyway... that's what I do.  :)

I will be off and on, try to talk and share as much as possible.  This week is going to be full of doctor's appointments and meeting with educators tho.  And somehow I gotta clean up this house, LOL!  Anyways, I feel much better knowing I have people to discuss this with now!

 

PadmeJnz
by on Sep. 14, 2011 at 9:45 AM


Quoting arkansasmama08:

Lol right. Too bad your on the other side of the state! I'm dying for a irl support group here :(


Is there a central located Autism group?  There's one here in northeast Arkansas... but I have yet to hear back from them.  Which really makes me wonder how busy they are, honestly.  Like The Dennis.  I was told they were the best of the best, but you gotta hound them for an appointment. 

Maybe we can meet someday tho!  My in laws live in Hot Springs and we go down to visit them when we can.  Might be a bit of a trek, but it's closer than I am now, lol!  :)

PadmeJnz
by on Sep. 14, 2011 at 3:01 PM


Quoting arkansasmama08:

Research research research. Ds was/is exactly the same way. When he was 3 we put him in preschool and he flipped out. We'd never had trouble with him before then. He was hitting and kicking his teachers, wetting his pants, peeing on the bathroom walls and not playing with the other kids. I pulled him after a few months. Last year he did a home based head start program and we had him evaluated thru them. I had suspicions of aspergers/hfa and I was right. We got the word from the schools behaviorist that he has all signs of aspergers and so is now "educationally identified" as autistic. We too are waiting to get into Dennis developmental to have him and our 2 younger children evaluated. Better safe than sorry. Where are you at? Maybe we're neighbors?


GIRL... just got off the phone w/ the head of the Autism Association of Northeastern Arkansas. She agreed that The Dennis people were the "best of the best" here in Arkansas.  But the waiting list can make it difficult for those of us who need a dx NOW.  So she suggested Le Bonheur and that a place called Family's Inc. might be doing testing now too.  I'm gonna find all the contact info, I'll pass it along when I do.  I'm still putting in for a appointment at The Dennis... but two dxs couldn't be bad, huh? 

NancyHey
by on Sep. 14, 2011 at 5:02 PM

Hi!  Long time no see!  I don't know what advice to give you about your sons, but I remember the days when you used to post on the site called "Maya's Mom".  Remember me?

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