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diagnosing Dante... meet my son! :) dealing with SPD

Posted by on Nov. 9, 2011 at 8:05 AM
  • 5 Replies

Right around my sons 2nd birthday, my pedi asked to have him evaled by Early Steps. I knew he was behind in speech, but he was so physically advanced! We go in, I expected them to tell me nothing was wrong, he was a normal little boy, but then they would preform their "tests" and I would watch them shake their heads and write things down. After about 20 mins, one of the ladies said she feels he needed the intervention, he needed to start ST and OT as soon as possible. At 2 years old he said no words, wouldnt respond to loud noises or his name being called, couldnt preform the tasks given at an age appropriate level, etc... They then mentioned Autisim. I had suspected maybe sensory processing disorder since it runs in SOs family, so I told her this and she agreed but went on to say "some kids have SPD, but most kids with Autisim have SPD." I was crushed. Here I was hopefully for a "nope, your son is normal..." But that is not what I got. :/ 3 months later, he has over 25 words, can say his alphabet and count to 20, knows most shapes and colors, he just has a problem using his words functionally, he is progressing in leaps and bounds, but every step forward is also a step back. Right as he decided to try to speak, he forgot how to put his shoes on and a handfull of other things. At 27 months old, he functions at a 17 month old level. He has trouble making eye contact and showing affection. He likes to jump into people, he just likes to jump! One of his nicknames is "hippity hop!" He is always hopping around, jumping on the couch/bed, or anything bouncy. He is just now handing me his cup, saying "cup", and walking to the fridge and repeating milk or juice, depending on what he wants, this is a huge improvment from chucking his cup onto the floor and yelling/whining/crying/screaming. :) All of his specialists are on the fence on whether he has Autisim or not, we are pretty positive on the SPD. Im just hoping since we started early that things will only be easier from here on out...

Ive gone through acceptance, frustration, devastation, realization... And now ive found this group. Thanks for reading if youve made it this far, he is my awesome little man!!
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by on Nov. 9, 2011 at 8:05 AM
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Replies (1-5):
tairakittie
by on Nov. 9, 2011 at 10:20 AM
Bump!
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kaydynsmomma
by on Nov. 9, 2011 at 10:50 AM

I think we are going through similar siuations!  My daughter will be 3 in March and she has been receiving speech and occupational therapy for a year.  She would only moan last year and now can count to 10 in Spanish and English!  We had an educational based Austim eval done and she scored within the means to receive the services; we ultimately did not pursue them as they did not have adequate staffing.  Since she has to be enrolled in pre-kindergarten in March in order to continue receiving services, we met with our local school last week and they expressed concern that she could be autistic and asked for a medical eval to be done.  Currently we are waiting to hear when the appt is going to be.  Kay loves dancing and music, cuddling and watching her fav shows like the Backyardigans and Phineas and Ferb.  She does really well on imitation now but still struggles to communicate with us.  She will say "eat" when she wants to eat but cannot tell us specifics, she is also very reliant on her pacifier which I have been told is normal since she has sensory issues.  I look forward to the evaluation but I'm also nervous about it; no matter what, she is my beautiful, happy princess and I wouldn't change her for anything!

tairakittie
by on Nov. 9, 2011 at 11:04 AM
1 mom liked this
Aww! My Dante is such a cuddle bug, he loves to be held tight and squeezed. He is a thumbsucker, so his thumb is almost always in his mouth and he has a stuffed Zebra he cannot live without. Its nice to know there are others moms out there dealing with the same things. :)
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suziler
by on Nov. 9, 2011 at 11:10 AM
Hello welcome to the group! I have a 5 year old with high functioning autism and a 3 year old who is nt.
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aidensmomma508
by Wendy on Nov. 9, 2011 at 12:25 PM

Wow it sounds like he has made a TON of progress that is so awesome!!!!! he is so cute!

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