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new here(sorry I know there are a million posts that start this way!)

Posted by on Dec. 3, 2011 at 2:11 PM
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Hi, Ive been lurking around on this board for a couple of weeks! I have a 4 year old son who was diagnosed in feb. with every (sub)type of ADHD, and has been attending special education preschool since. He has always been different from the time he was a little baby, he was having tantrums over toys by the time he was 8 months old, he has always been very verbal and was speaking complete sentences by 14 months. In june my doctor put him on adderall xr, he is very hard to control and can be very aggressive, the adderall wasnt working for him and after doing research I discovered he more than likely has aspergers syndrome. My doctor recently put him on intunive, which seemed to help for about a week. The school refuses to retest him, saying they can only test him once every 5 years, our county special education will only help if your child is younger than 3 years(funny they told me I had to wait when he was 2 1/2 because the school would have to help me when he turned 3!). The school has told me he will get whatever help he needs at school reguardless of his diagnosis because they treat the symptoms and not the disorder, which is great, dont get me wrong, however he is not getting all the services I feel he is entitled to. He doesnt get any help outside of the normal special ed classroom, the speech and language lady recently asked me if she could take him out of class to work with his language skills even though his speech is good because when he is asked a question he gets a deer in the headlights look. The OT comes into the classroom and works with the kids as a group but they told me she will take any kids who are willing to go with her to her room to work and apparently my son refuses to go with her. He could also use some PT because he has a very hard time with small motor functions so his self help skills are not so good, they told me he would need an RX from the doctor to get him the PT at school. My son is EXTREMELY hyper,  I cant take him and my 2 year old out of the house alone together because my son runs away from me, he refuses to listen and he can have a meltdown as soon as something doesnt go his way, he has alot of sensory issues which are getting worse and worse as he gets older, he has never slept through the night(a few months as an infant but at a year old that stopped). He is having a hard time learning things at school because he cant sit still, he has a 3 second attention span and his teacher said in alot of ways he is like a 2 1/2 year old. I just dont know where to start to get help for him.(I have 5 children all together 16 ADD, 13 ADHD, 10, 4 ADHD(possible aspergers), and 2. Sorry this sounds like a crazy rant, and Im sure I left out tons of info, but I think Im in the right place on this board!

by on Dec. 3, 2011 at 2:11 PM
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Replies (1-7):
RockinMama0608
by on Dec. 3, 2011 at 2:19 PM

Has he been evaluated for autism or aspergers?  Maybe if you get a diagnosis the school will be able to do more for him and you would be able to get some outside resources.  I am bumping because there are other moms who have more knowledge about this kind of thing.  I wish you luck!  And welcome to the group  :)

nicksmom217
by on Dec. 3, 2011 at 2:21 PM

 the school has to do evaluation every 3 years, if he has IEP. check on Regional Center, it is free testings, they offer social group skills, babysitting services, for parents, there is groups, how to deal with kids behavior and i would check with his pediatrician. he is young, there is a lot you can check on. good luck

Kitten1555
by on Dec. 3, 2011 at 2:26 PM

He has an IEP, what is Regional Center? We have a family doctor not a ped. and I dont want to take him to just any psych dr, Ive read so much about these other moms have negative experiences with them that I would like to find someone who  specializes in autism or aspergers. I live in the metro detroit area, and you would think there would be a ton of specialist but there isnt! 

ROGUEM
by on Dec. 3, 2011 at 2:49 PM

 Hello and Welcome...yes, you have a lot going on.  The thing I would tackle first is his lack of sleep.  I have found from my three boys if they don't get enough sleep they are more irritable and aggressive. They are not able to learn properly.  If you haven't already tired it, melatonin is a good over the counter medication for sleep.  If that doesn't work then prescription medication is needed.  One of my boys is able to just use melatonin, but the twins have to have a presciption sleep medication.  Without it they will only sleep a couple of hours. Sleep is so important, if you are sleep deprived then you can't learn at your full capacity and won't get as much out of the therapies.

Is he is aggressive, I might suggest a drug in the risperdone, geodone, albilify class (anti-psychotic drugs).  Intuitiv is just a blood pressure med that usually doesn't work as well for aggression and is used more for ADHD.  My son was aggressive and unhappy and was not progressing.  I tried one of these medications, and he became calm and happy.  He started learning at a rapid rate.  He is now almost caught up on speech and is able to spend most fo the day in Reg ed.  Oh he is 8 by the way.

Over in California they have regional centers.  My state doesn't do it that way.  You need to see a developmental pediatrician.  Usually primary care won't dx.  Or a neurologist in some states does dx.

There is private therapies for speech, OT, PT, ABA, etc. .  On a whole they are usually better than school because they focus one on one based on your children's needs.  I would still use the school's resources because the more he gets the better and faster he will learn and progress.

Hope this helps.

HUGS

milfanyway
by Member on Dec. 3, 2011 at 3:47 PM
I agree with seeing the developmental pediatrician. Ours helped us so much! The other advice I want to give you is to not give up! I think every mom on here could tell you the horror stories of trying to get the correct dx and then the needed therapies. Also as far as medication goes if something is not working done be afraid to ask your doc to try something else. The developmental ped manages my sons meds, and she is a godsend. I think the real trick to all of this is to not stop looking until you find a doctor who listens.
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milfanyway
by Member on Dec. 3, 2011 at 3:50 PM
Also try searching your whole state for a developmental psychiatrist or psychologist. We finally found who specialized in developmental delays about two hours from our home. Absolutely worth the trip!
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Kitten1555
by on Dec. 3, 2011 at 4:49 PM

Thank you guys! Does anyone happen to know of any good devlopmental peds in the southeastern michigan(or metro detroit) area? 

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