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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

Change of DX (updated chart of test score done by parents and teacher)

Posted by on Feb. 13, 2012 at 9:14 PM
  • 38 Replies

My son was DX'ed with autism over a year ago. He is 7. last week the specialist took off that DX and is thinking all of the following...

Mixed receptive expressive language disorder

Developmental articulation/ phonological disorder
 

Learning difficulties - cognitive deficit verses learning disorder 

Primary nocturnal enuresis - bedwetting

Feeding disorder

At risk for anxiety disorder and ODD

Sensory integration

I guess I posted this to get some insight. I'm really, really confused. I mean don't these all fit under autism? When I started crying in the office, he said...you should be happy he doesn't have autism. OK, fine....but what now!? What do I say .....my son has this and this and this and this!!!? 

I mean, WTF!? Do I start from square one? 

Just when I thought I had everything stright. 

I don't even feel like I'm making sense now. I'm I?

Mom and Dad

                                  Teacher

Significant T scores on the empirically based scales 

Anxiety 88

Withdrawn 70

Thought problems 73


anxiety 76

social problems 70

aggressive behavior  72


                                                                                                       Borderline

Somatic complaints

Social problems

Aggressive behavior


thought problems




DSM oriented scale

Affective problems 79

Oppositional defiant problems 70

Anxiety problems 73


affective problems 70

Oppositional defiant problems 70




by on Feb. 13, 2012 at 9:14 PM
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Replies (1-10):
jacky7141
by on Feb. 13, 2012 at 11:06 PM
1 mom liked this
That really dosent make sense I would be mad too. For me that list falls into autism why dont u try seeing another specialist. And hiw did he come to this conclusion. Why was ur child dx at such an older age n noy younger?
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Tigress22304
by on Feb. 13, 2012 at 11:18 PM

This is why we took DD to 3 different specialists-2 agreed with each other-the 3rd said she was just painfully shy (she had all the classic symptoms) since she's been in an autism school-she's doing better.

if you're able to-get him seen by another specialist. i understand your frustration-it took 45 (yes 45) different orthopedics to diagnose DD's pseudoarthrosis. They thought it was a variety of things-and it wasn' until her first surgeon actually sliced her leg opened and had her bone tested did we get an answer.

I wish you all the best-I know its frustrating but hang in there-and hopefully you'll get the answers you're looking for.

E_is_4_Ethan
by on Feb. 13, 2012 at 11:19 PM


Quoting jacky7141:

That really dosent make sense I would be mad too. For me that list falls into autism why dont u try seeing another specialist. And hiw did he come to this conclusion. Why was ur child dx at such an older age n noy younger?

They took a long time to give him the DX of autism in the 1st place because they were not completely sure what was going on with him back then either. Then when the school would not give him extra help when starting kindergarten, the MD specialist said, OK autism. 

BTW he just turned 7. 

They come up with the conclusion after an hour of testing him, and of course his history. they have been seeing him since he was 3. 

Aaronsmom18
by on Feb. 13, 2012 at 11:24 PM

Take a deep breath and tell the doctor you want an answer in lamans terms. If he won't give it to you see if you can find someone who can. Don't stress! It will not help and I would just say my son is Autistic. it sounds that way to me. Does this doctor understand what you are going through???

E_is_4_Ethan
by on Feb. 14, 2012 at 12:15 AM


Quoting Aaronsmom18:

Take a deep breath and tell the doctor you want an answer in lamans terms. If he won't give it to you see if you can find someone who can. Don't stress! It will not help and I would just say my son is Autistic. it sounds that way to me. Does this doctor understand what you are going through???

Maybe I do need to explain to them how confused I am. I have done a lot of research on each of those. I understand what each of those are, but still...I'm still just as confused as the day I left his office. I have to go in tomorrow after school and show the teacher of his autism class his new DX. I'm so scared that she is going to say that he can no longer be in the class since he is no longer under ASD, but then again maybe there is a better class for him. I don't know. I just don't know. UGH! I really am starting from square one. 

Ela18
by Member on Feb. 14, 2012 at 1:13 AM
1 mom liked this

HI,

I am sorry you are getting so many mixed messages.  

You do not need to tell the school the new diagnosis.  They have the original diagnosis and they are treating your son to help him have a good education.  He did not change overnight to something different and a change in educational placement based on a change in label is not warrented.

The school cannot contact your doctor unless you give them the release of information form. 

I would strongly urge you to not tell the school.   Even though you want to talk a lot and share info you may want to discuss this with an advocate before telling the teacher.    The diagnosis of autism opens doors to a lot of therapy and support from government and non profit agencies.    Without the diagnosis of autism sometimes you cannot get the services that you want or benefits such as from MediCal or Medicaid. 

I would also look for second opinion from another MD.  

Best wishes,

Ela

 

 

ROGUEM
by on Feb. 14, 2012 at 1:15 AM
6 moms liked this

 This is completely crazy - all of those things add up to be autism.

It is like saying ---- I am sorry that you always thought this was a dog but it is not anymore.  It is now going to be defined by the following descriptions. 

It has shaggy fur.

It eats bones.

It's babies are called puppies.

It barks and howls.

It is man's best friend.

You know, I would think the doctor is doing this for more money.  Maybe he gets more for treating 7 disorders than one. 

I am completely blown away!

Leobaby2007
by on Feb. 14, 2012 at 1:21 AM
3 moms liked this

To me it's like, why give 7 different dxs when it all fits under the category of one- autism.

I could list the same kinds of things for my son separately:

ADHD

Mixed exp/rec language disorder

sensory integration

auditory processing disorder

language based learning disorder

ODD (possibly)

It all adds up to, in my book, autism.

You don't need to tell the school district squat until and unless you want to.

I would also SO look for another opinion, another doctor. I mean, WTH?

As for his comment, "You should be happy he doesn't have autism..." That's so ridiculous and it kind of pisses me off! He listed off 7 dxs your son DOES have, in his opinion. How is that supposed to make you feel better? Call it whatever you want- autism, 7 different dxs or purple spotted elephant disorder, it is what it is and your child needs help regardless of how he or she is labeled, KWIM?

(((HUGS)))

E_is_4_Ethan
by on Feb. 14, 2012 at 2:38 AM

LOL... OK I was really starting to think something is wrong with me. Like your post...is it you or your husband? I was starting to think and still kind of think... maybe it's ME. Maybe I  too have problems, and that's why I'm so confused! 

Quoting ROGUEM:

 This is completely crazy - all of those things add up to be autism.

It is like saying ---- I am sorry that you always thought this was a dog but it is not anymore.  It is now going to be defined by the following descriptions. 

It has shaggy fur.

It eats bones.

It's babies are called puppies.

It barks and howls.

It is man's best friend.

You know, I would think the doctor is doing this for more money.  Maybe he gets more for treating 7 disorders than one. 

I am completely blown away!


E_is_4_Ethan
by on Feb. 14, 2012 at 2:41 AM


Quoting Ela18:

HI,

I am sorry you are getting so many mixed messages.  

You do not need to tell the school the new diagnosis.  They have the original diagnosis and they are treating your son to help him have a good education.  He did not change overnight to something different and a change in educational placement based on a change in label is not warrented.

The school cannot contact your doctor unless you give them the release of information form. 

I would strongly urge you to not tell the school.   Even though you want to talk a lot and share info you may want to discuss this with an advocate before telling the teacher.    The diagnosis of autism opens doors to a lot of therapy and support from government and non profit agencies.    Without the diagnosis of autism sometimes you cannot get the services that you want or benefits such as from MediCal or Medicaid. 

I would also look for second opinion from another MD.  

Best wishes,

Ela



yeah, you are right. I'm going to put it off telling the school for now, and see where I should go next with all this.

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