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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

an important research study in autism

Posted by on Apr. 16, 2012 at 9:28 PM
  • 2 Replies

So i just wanted to share with you that my family will be participating in this important study into autism looking at enviromental and genetic factors and reoccurance with siblings.  If you wish to read aboutthe study here is the information below.  We are going to start on Wednesday by them readministering the ADOS to my son and studying his IQ.  I am expecting my second child in the fall and this child will be looked at at 6 months, 12 months, 24 months, and 36 months.  So we will be in it for three years.  The study will last a total of ten years.  Hopefully something positive will come from it.  Please pray for all those involved and some important answers. (and for my sanity as they will be coming in vaccuuming samples from my house, asking me to record my diet, etc...=])  Here is the info:

EARLI is short for the Early Autism Risk Longitudinal Investigation. EARLI is dedicated to studying families that already have a child with an Autism Spectrum Disorder who are pregnant or who might become pregnant in the future. The EARLI Study focuses on the prenatal (the time between conception and birth) and early life periods in newborns who have brothers or sisters already diagnosed with an Autism Spectrum Disorder. EARLI will closely follow families from the start of the pregnancy to the time the baby reaches age three. The comprehensive data we collect will be analyzed to help us better understand the complex causes of Autism Spectrum Disorders.

The study will take place at four locations across the country:

  • Southeast Pennsylvania: by researchers from Drexel University, The Children’s Hospital of Philadelphia and the University of Pennsylvania
  • Northeast Maryland: by researchers from Johns Hopkins University and Kennedy Krieger Institute
  • Northern California, UC Davis: by researchers from University of California, Davis, and the M.I.N.D. Institute
  • Northern California, Kaiser Permanente: by researchers from Kaiser Permanente Division of Research

Information collected will be analyzed to examine:

  1. How environmental exposures during pregnancy and early life might play a role in the development of an Autism Spectrum Disorder
  2. How genetics may influence risk of Autism Spectrum Disorders – especially how genetic make-up might make certain children more vulnerable to environmental exposures
  3. Whether there are biological markers (for example, things we can easily measure in blood or urine) that will predict whether a baby eventually develops an Autism Spectrum Disorder
  4. How the behavior of newborn siblings of children with an Autism Spectrum Disorder changes over time and what behaviors might be early signs of an Autism Spectrum Disorder
by on Apr. 16, 2012 at 9:28 PM
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Replies (1-2):
mallowcup17
by on Apr. 16, 2012 at 9:29 PM
1 mom liked this

good luck with the study! and thank you for sharing this info with us!

philipmommy4834
by Bronze Member on May. 6, 2012 at 8:22 AM

BUMP!

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