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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

Today is the big day, not sure how to feel and what to expect.

Posted by on May. 11, 2012 at 10:53 AM
  • 8 Replies

Today we begin the evaluation process. We are scheduled to see a pediatric neuropsychologist at 3:30pm. It's weird because for the first time in my life I don't know howI feel. I mean I am happy we are starting the process but hate that we are "here" so to speak. My dh is usually quite chatty in the morning but this morning I reminded him that we have this appointment and he nearly bit my head off, it made me cry on the way to work this morning. Don't know if I was crying because my dh was horrible or because we are seeing a specialist for our son.

Can any of you ladies share your process with me and how long it took to get a diagnosis. I am also worried about what to say to Odin, he's so smart that I can't lie to him. He will want to know who she is and why we are there. I don't want to tell him we are here because we think something is wrong with you, how horrible would that be. Ok so now I'm at work crying, geez I hope no one comes into my office!! Is it too early for wine?

 

by on May. 11, 2012 at 10:53 AM
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Replies (1-8):
aidensmomma508
by Wendy on May. 11, 2012 at 11:08 AM

((hugs)) i went through alot of emotions.  denial, sad, relief that i can get him help,  scared, glad to be further on the journey...  it took a couple weeks, just it took a long time to get the appointment but ya. its normal to go through the emotions and some of us feel upset when we go through it, its normal, just keep in mind its to help your child, and hes still the same son you loved before!   I would tell Odin its a DR and she wants to see how he plays.  straight and to the point.  

momtoscott
by on May. 11, 2012 at 1:13 PM

 I find kids are pretty comfortable with the idea of being tested.  They get tested and evaluated and talked to all the time at school. 

Now that you have come to the day of the appointment, a dx probably won't take too much more time.  You may have a couple of visits where evaluations are done, and then the doctor should also schedule a separate visit with you where he/she will give you reports that summarize the findings and discuss them with you.

Not excusing your DH's behavior, but this process is stressful for everyone involved.  Hopefully the two of you will get back on good terms soon and you'll have a happy Mother's Day together.

kitkatred
by on May. 11, 2012 at 1:26 PM

It's a roller coaster ride of emotions.  I went through so many my husband (at the time - we are seperated now) didn't even believe there was anything wrong - nor did anyone else in my family or his pediatrician I took my son to LA for two weeks to see the leading dr in autism to finally get a diagnosis.  I thought I was crazy at the end and even though I knew what the dr was going to say before she said it I balled when she finally told me he is ADS and has SPD.  Then came the anger that I felt towards everyone else for telling me I wanted something to be wrong with him when there wasn't.  So many tears and then finally the relief of finally getting an accurate diagnosis.  It's hard even when you know what is coming.  We may see whats wrong and we won't ignore it but when those words come out of the drs mouth it's finaly true.  And it's heartbreaking we don't want anything ever to be wrong with our kids.  It's hard.  Our process like I said took two weeks but we were from out of town and everyone was kind of finding room for us, I think normally it would have only taken a week.  Good luck to you today! 

marisab
by on May. 11, 2012 at 5:42 PM

as soon as w emet the specialist we had a general dx and after full tessting we had more

Siobhan69
by on May. 15, 2012 at 11:41 AM

 We met with the specialist last Friday but she mostly asked us questions while Odin played and she did observe him a little. She gave us questionnaires and one for his preschool teacher to fill out. We will meet her again on the 21st but this time she wants to sit with Odin and try to engage him in conversation. She didn't think he needed therapy?? I asked about OT and she said that is for motor skills which he is fine in that area. He doesn't need ST or PT either. She did mention ABA but I'm not really sure what that is. Can any of you share if your child attends ABA and what it is?

navyjen
by Gold Member on May. 15, 2012 at 11:46 AM

 

Quoting Siobhan69:

 We met with the specialist last Friday but she mostly asked us questions while Odin played and she did observe him a little. She gave us questionnaires and one for his preschool teacher to fill out. We will meet her again on the 21st but this time she wants to sit with Odin and try to engage him in conversation. She didn't think he needed therapy?? I asked about OT and she said that is for motor skills which he is fine in that area. He doesn't need ST or PT either. She did mention ABA but I'm not really sure what that is. Can any of you share if your child attends ABA and what it is?

 Hey momma.  We havent ever met with an aba before but I bet if you make a new post about aba specifically it will get alot more attention than just a reply in your original post.  

Lilypie - Personal pictureLilypie Third Birthday tickers
Siobhan69
by on May. 15, 2012 at 11:47 AM

 

Quoting navyjen:

 

Quoting Siobhan69:

 We met with the specialist last Friday but she mostly asked us questions while Odin played and she did observe him a little. She gave us questionnaires and one for his preschool teacher to fill out. We will meet her again on the 21st but this time she wants to sit with Odin and try to engage him in conversation. She didn't think he needed therapy?? I asked about OT and she said that is for motor skills which he is fine in that area. He doesn't need ST or PT either. She did mention ABA but I'm not really sure what that is. Can any of you share if your child attends ABA and what it is?

 Hey momma.  We havent ever met with an aba before but I bet if you make a new post about aba specifically it will get alot more attention than just a reply in your original post.  

 Thanks. I am going to do that now.

navyjen
by Gold Member on May. 15, 2012 at 11:50 AM

 

Quoting Siobhan69:

 

Quoting navyjen:

 

Quoting Siobhan69:

 We met with the specialist last Friday but she mostly asked us questions while Odin played and she did observe him a little. She gave us questionnaires and one for his preschool teacher to fill out. We will meet her again on the 21st but this time she wants to sit with Odin and try to engage him in conversation. She didn't think he needed therapy?? I asked about OT and she said that is for motor skills which he is fine in that area. He doesn't need ST or PT either. She did mention ABA but I'm not really sure what that is. Can any of you share if your child attends ABA and what it is?

 Hey momma.  We havent ever met with an aba before but I bet if you make a new post about aba specifically it will get alot more attention than just a reply in your original post.  

 Thanks. I am going to do that now.

 Great!  Didnt want such an important question to get buried in the middle of a thread!

Lilypie - Personal pictureLilypie Third Birthday tickers
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