So I have been up like since 4am can't sleep, tried havng a snack, tried to watch a movie finallyI decided to just get up. And I was thinking about our kids and how we cope and I fet like I just had to write this out. When I first realized my son was developmentally delayed I could deal with that I was too as a child so was my brother, when they started saying ADHD I could deal with that to so am I still am. With these issues you can move past them and still go to college and be successful. When they started saying autism I was like no at first then I started questioning it and realized it fit. I was more devestated. They ask you all these questions about their health and your pregnancy like it's your fault nope I did everything right and in fact he was overdue. Realizing my son would struggle like I have and realizing he would have more struggles was hard because all I ever wanted was for him not to have to struggle as much and more as myself. Accepting this is hard it feels hopeless at times you feel helpless at times. But accepting it and having a name gives you a way to deal with it. It gives you tools. People will label them developmentally delayed and ignore the ASD aspects of what's going on which is frustrating they don't want to "label" them and just want to see how it developes and retest them later like it's just going to go away, which it may or most likely not and if that'sthe case we need to deal with it and know how to deal with it. I had a friend of mine kinda scold me saying don't label your child. I don't feel like I am labeling it bu giving it a name. It helps me I don't refer to Russell as a autistic child to people I met, I will say he he's on disability, I will say he's ADHD which is more acceptable to say in society than autism which is really weird I think. I will say he's different and he is. It gives a name to the struggles Igo through at night, it gives a name to the hurt I feel for him in his isolation. It has affected my son to the point his own cousin don't want to play with him over this summer, he can't go to our community YMCA here at my apartment, he can't go to a daycare. He's delayed, more agressive and very active. He's cousins don't want him to go over to his great grandma's house this really hurt, we are suppose to be a family, so I talked to her an this year their are going to be consequences he hurts he has to go home it's just not going to be allowed and I am only a block away, I am hoping since he is doing well n his new medication he will do better. But without medication is heany less autistic I ask? Is he anyless disabled? I have had one friend laugh at me when I told her my son was recieving SSI for his issues. Is autism not a disability? I think it is when it affects every social interaction he has and his learning abilities. When I can't sleep at night because he's up and I can't get him to bed, when I have bruises and marks from him hurting me and telling me he hates me. When I have so much anxiety I don't like anyone other than myselfand my mom and my grandma watch him without fear of what's going to happen who is he going to hurt and even though you may be watching him he can still dothings very quickly, it's like youave to have 10 sets of eyes on him. I am going to frasiers today with him so I hope it goes well. I wonder what have your experiences been?