I want to scream

[arkansasmama08]

On top of everything else I just had a "friend" message me and say she agrees with the dr. Zack can't have autism. After all, he's nothing like her daughter (lfa) or her cousins kid who has aspergers or any other autistic kid she's met. So, I need to stop making excuses, quit avoiding social situations, and put him in school and he will be just fine. I feel sick. What do you do when you know something is wrong and nobody will listen??

[kajira]

welcome to my world, for both me AND my son.

It took hand picking a specialist who wanted to listen to us, and was willing to really observe and pay attention and focus on what we actually needed, and not what anyone else said. They didn't ask about school teachers or outside people, she jsut focused on "us" and did testing based on numbers and came up with an unbiased conclusion either way.

You need to find someone unbiased, who wants to help people, and our doctor, if we weren't autistic, told us that she'd have been willing to point us in the right direction for figuring things out.... however... since were ASD, she didn't need too.

You may need to find the right doctor.

[unusualmom]

Simple...you fight and advocate and forget what everyone else says. Your his mama. You know whats in your heart. I didnt fight for my son for over 2 years for nothing...keep moving forward. If your friend isnt supportive how much of a friend is she?

[smarieljlee]

She said all that? I'm sorry (hugs)

[greenmommo]

Yes, fogettabout all the "friends" who are "helping." Do what you need to.

[kajira]

Also - my friends and family are still having a hard time understanding how were not only autistic but "classic" autism.

Actually, a lot of the reactions on this group are similar to friends/family who wondered how we could be classic autism because I can type on here, and have kids and a healthy relationship with a man who tries hard to work with our family and make it work.

Being different is hard for people to understand when they don't even understand what it means completely from the inside.

[beckiew68]

You are his mom and you know him better than anyone else in the world!!!!   NO TWO children on the spectrum and ever the same!  If this is what you truly feel then press on and get another opinion.  I am a big on video taping my daughter when her behaviors are out of sorts...per say.  She may not act out at an appointment so would bring the evidence with me to an appointment to show the pediatrician with her own eyes what has happening.  Try that if you can.  My pediatrician ended up apologizing to me after a specialist saw her and diagnosed her with ASD.  She said she didn't see the things I did so that was why I taped her.

This is the time to surround yourself with people that love you and trust your judgement.  If something is happening to your child you are the best advocate he could have!!!!

Blessings to you!

[jkb_unlike]

 i feel the exact same way *hugs*

[mallowcup17]

((hugs))

[badgermom2012]

My son was DXd with autism at age 2 1/2, but I remember when I was making the appts to have him seen by various specialists and my MIL told me there was no way my son could have autism b/c he didn't act like some second cousin who also has autism.  People just don't know what they're talking about and feel the need to spew misinformation.  

[Austinsmom4544]

Don't listen to other people go with your gut feelings.  If you feel something is wrong keep moving ahead until you get answers :)