My son was just diagnosed with Pervasive Development Disorder
I am really overwhelmed right now. My husband and I don't know which way to turn how to get the help and services that our son needs, and how to find out what to expect as he grows
My name is Ann and I have a 5 yr old son that also has PDD-NOS. I think most of us can relate to you as to be overwhelmed and scared and sad when we first get the diagnosis. It will be okay. Your child is still your sweet child and things will be ok.
How old is your child?
Best of luck!
As of right now he is in regular classroom. Going to be working on getting him all the services and support that he is entitled to and needs through our school district.
His challenges are changes in routines and going on any type of trip. He doesn't like any amusement rides and we are taking him swimming for the 4 th time this year if he will leave the house. He also was diagnosed with anxiety and mood disorder.
As of now he does receive any services, we are waiting on a call to have all of that scheduled and started. I was told to start getting a case manager from sam inc but I don't know how or where to find more about that or how to contact that agency.
Like I said this is all new to the whole family, and we are all scared and overwhelmed and don't know how to help our son be the best he can be.
I had him in Early Intervention until age 3, then special needs preschool in the public school. Now we're at a nice, private Christian school that has a loving, nuturing and accepting atmosphere but I have had to seek private therapies (ST and OT) where I pay a $50 co pay each time. It adds up, but to me, it's worth it and the private services here are WAY better than what kids receive in our lousy public school system. (I live in AZ and I was SO disappointed in the quality of services).
Still, it's a very difficult thing to digest. It takes awhile to sort through all the BS, but once you do and you get your son on the right track regarding therapies, you'll feel better. The beginning of this journey is often the toughest in many ways.
(((HUGS)))
Welcome. My son is 8 and has PDD-NOS (among other things). It is very overwhelming when you first receive the diagnosis despite the fact that you've probably been aware of their uniqueness for quite some time. Just remember that all the diagnosis does is gives them the abiltiy to acquire the extra support they need and gives you a better insight into the why they do what they do. This is a great group to voice your questions, your concerns, ask for advice on things. You are not alone. No matter what you are feeling, guarenteed someone else here has felt the exact same way. We are here to support each other.
It's so hard sometimes
- tammy1742
on Jul. 12, 2012 at 9:33 AM