Been dealing with this for a very long time
I usually do not post that often if ever , mostly because I never have the time or my beautiful daughter interrupts what ever time i try to get.. part of her autism dx. We work on this continually not interrupting, quiet time.
She is no longer a little child not physically , she is 18 and I will tell you that I would like to find somewhere for her to be able to be safe and make friends and fit in somehow. She has a connection where she cannot read or write although she tries her hardest and loves books.. and littel people dolls. She was bullied in high school somehow so she is home schooled not the best for her social abilities. She is funny and has a well interesting sense of humor. These kids needs somewhere for them , no a facility but where they can have fun and be creative. She cannot go to college, she cannot it seems get in voc school due to she cannot read or write or process things well. She is influenced by peers , she cannot count but she can work a computer and video and cameras and other wondrous things . She has never been on a date , never will be able to drive. She cannot read names or text on a cell phone or a computer but she loves it , looking watching.
She will repeat the same thing over and over and over. I am with her 24/7 most of the time. Once I went outside to take care of the dogs and she wanted to use the micro wave ,, i had told my husband to get the one with the pictures , he did not so we worked on 1 m in , 2 min , 3 min .. she does not like number 3 and she put it on for 30 min.. ok i came in smelt the burnt smell.
I guess i am just getting tired. I used to work full time and she went to school , now i work from home part time. huge pay cut. We are also losing our home and this upsets her and I understand but we tried , we really did try. We even were apart as a family for over 2 years so my husband had to work somewhere else for a job. He has now lost his job .. so he is home and it is hard between them.
She is attached to me and has been since birth, we had her in numerous activities while growing up , we tried, soccer , voice , karate , school kept telling me on her iep she was doing better , i kept saying she cant read , she is getting worse especially once she started high school
I noticed many posts on here are of young and this is good that diagnosis and treatment are improving for many. My daughter was diagnosed in the 90s and their are way less girls then boys.
I wanted to just share about what happens a little bit as they get older, it is not easier and sometimes it breaks your heart. I see her pick up a dvd or a cd in a store and if she see other kids her age she pretends to be reading it .. because she wants to so bad. I dont know if anyone else has had to deal with this or could imagine going to a store and trying to get shampoo and not know what it says and bring back shaving cream or conditioner. I could not imagine in her head how hard each day must be.
Because now we are all a world of words and typing and data.. what i need is a talking picture dictionary for her.. Any ideas moms and dads
Red Cardinal 571