Clinical trial... good thing or too dangerous?
http://www.autismspeaks.org/science/science-news/researchers-launch-study-oxytocin-nasal-spray
I'm not sure what I think about this. Obviously, we as mom's want the best for our children, but would this be too dangerous to even consider? I'm looking for opinions from both sides. Please just be gentle.
I never want my son to be "normal" because most of the normal people out there act more like sheep than they do humans who can think for themselves. No offense to anyone here. Just my opinion in general, no one in specific. I just would LOVE for my son to have a few less challenges on a daily basis.
I just don't know if the results of this would be worth any possible negative side effects.
Would I let my kid be in a trial? Probably not. Would I consider this when my kid hits his teen years if he is struggling with repetitive behaviors, forming and keeping friendships, and generally with being a teenager with autism which makes it like 100x worse than just being a teenager (which sucks anyway)? Yeah. After another 10 years I'd expect that any bad side effects would be well documented and the dosages worked out (if the study proves Oxytocin to be effective, if not then it will go by the wayside and be a non-issue).
From what little I read on studies dealing with autism and Oxytocin it sounds like many autistics lack either receptors for, or the ability to convert oxytocin which makes it as if the person does not have enough Oxytocin in their system, even though their levels are normal. So like any SSRI such as Prozac, giving more Oxytocin just allows there to be more available in the system. The only negative side effect I read was a decrease in urine production at very high levels. Safer than anti-depressants which have side effects such as suicide!
Anyhoo, to me I'm not going to involve a kid in a clinical trial unless the behavior or condition is so out of hand and detrimental to the child's health that living with the problem is worse than whatever might happen as a result of a failed "cure". My son does not meet that criteria and so I'd wait until Oxytocin was proven or disproven to be effective and until I felt like my kid needed it in his daily functioning.
Thank you. I have decided to not try for the trials. And to wait to even consider it.
My son's doctor hasn't brought up anything. Thinks my son is doing extrememly well. Loves seeing him.
What you said here makes a lot of sense. Thank you for responding.
Quoting KatyTylersMom:Would I let my kid be in a trial? Probably not. Would I consider this when my kid hits his teen years if he is struggling with repetitive behaviors, forming and keeping friendships, and generally with being a teenager with autism which makes it like 100x worse than just being a teenager (which sucks anyway)? Yeah. After another 10 years I'd expect that any bad side effects would be well documented and the dosages worked out (if the study proves Oxytocin to be effective, if not then it will go by the wayside and be a non-issue).
From what little I read on studies dealing with autism and Oxytocin it sounds like many autistics lack either receptors for, or the ability to convert oxytocin which makes it as if the person does not have enough Oxytocin in their system, even though their levels are normal. So like any SSRI such as Prozac, giving more Oxytocin just allows there to be more available in the system. The only negative side effect I read was a decrease in urine production at very high levels. Safer than anti-depressants which have side effects such as suicide!
Anyhoo, to me I'm not going to involve a kid in a clinical trial unless the behavior or condition is so out of hand and detrimental to the child's health that living with the problem is worse than whatever might happen as a result of a failed "cure". My son does not meet that criteria and so I'd wait until Oxytocin was proven or disproven to be effective and until I felt like my kid needed it in his daily functioning.
It's so hard sometimes
- Basherte
on Sep. 14, 2012 at 9:19 PM