Our son, Henry, turns three in December.
We've noticed a lot of quirks with Henry over the past few years, and this summer, we started putting together some pieces. Henry marches to the beat of his own drum. He's a picky eater, he's terribly OCD in a lot of ways, and he doesn't talk as much as other kids his age. We kind of chalked it up to kids developing differently, and weren't all that concerned because he's so strong in other areas. He loves numbers, creates number patters, shapes patterns, counts forwards and backwards. He's also huge into words/letters. He spells at at least a Kindergarten / first grade level, and loves to read.
But on thing I noticed this summer that didn't quite seem normal was what I call 'side-eyeing.' Just viewing lots of things out of the corner of his eye. Liking walking back and forth up the wall, looking at it out of the corner of his eye. He'll also sit on the ground, with, say, a belt or something, and just run it back and forth in front of his face and look at it out of the corner of his eye. He'll also walk around and around the pool and do this.
I called our pediatrician, and she said that we could certainly bring him in, but that without seeing him, she recognizes that the 'side eye' thing isn't quite normal. She recommended that we call the Early Start program where we live (DC), which is funded by the city. They do evaluations, and can set up services.
The whole thing has been a nightmare. Henry had several evals... behavioral, cognitive, others, etc, and then we worked with them to set up an IFSP, which is like an IEP, but for younger kids. Further, they referred us to an actual developmental pediatrician for MORE evaluations to see if there is any sort of diagnosis.
Couple that with the fact that in less than a month, he turns three years old. When he turns three, Early Start can't work with him any more, and all this gets transferred to DCPS. So now we have DCPS on our backs, because they need to complete THEIR evaluations for Henry so we can get services in place for him. We're only just getting services in place for Henry at this point with Early Start.
I've missed a ton of work trying to get Henry to these evals (although one has been done at home), and the thought of going through these evals again is just overwhelming. We're also not finished the evals for the developmental pediatrician, and another round of evals for DCPS? I'm totally overwhelmed.
My question -
How do you keep all this organized? And I mean that literally? I can't keep track of who is calling and emailing me from day to day.
I'm so overwhelmed.