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First appointments, Sensory Processing Disorder, also need someone in GA!

Posted by on Nov. 16, 2012 at 8:23 AM
  • 7 Replies

My 2.5yo DD doesn't have an official diagnosis yet. We went for our first appointment at Babies Can't Wait (early intervention in GA) so that they could find out what kinds of therapy she needs. I thought they were just for Speech but the "Early Intervention Specialist" seemed to know a lot about a lot. She did our intake info and was to write up a report for the therapist. The next step with them is for the therapist to come to our house, ask some more questions and begin therapy.

The woman we saw yesterday said she could see "major sensory processing issues" in my daughter. She recommended that we set up therapy at a place called Peach State. We already have an appointment in January for Marcus Autism Center in Atlanta. They are supposedly one of the best places for Autism and other associated issues (forgive my ignorance here, I'm still trying to figure it all out). I am eager to get started with therapy so that we can find some peace for my little girl (and my family in general) but will starting OT at this place interfere or prevent any possible services at Marcus?

The woman also recommended that she see a developmental pediatrician. Does anyone know of one in the Atlanta area? I'm closer to Gainesville really, but I'm having a hard time finding any at all. I've only seen a handful online and they are toward Cobb county or in Atlanta.

Who gives an official diagnosis? And when? Is it normal to start therapy for SPD without an official dx? I'm so confused. Worse, my library doesn't have a single book dedicated to SPD... only Autism (BTW she doesn't have the usual Autism symptoms, we suspect PDD-NOS at worst... but this is only going by my own research).

Sorry this post is all over the place. That's where my mind is right now. :(

by on Nov. 16, 2012 at 8:23 AM
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Replies (1-7):
cindyjean68
by on Nov. 16, 2012 at 11:13 AM

I am in GA but closer to Athens. I am using Positive Outreach there...but they are not pedi's ..just child psychologists. They are giving him evals and will give me the results Dec 5...sorry I can't be more help

SilverLining2
by on Nov. 16, 2012 at 10:44 PM

Only a licensed Doctor can make the diagnosis.  SPD is commonly used by early intervention to get children into therapy before they get an official diagnosis.  Since it can take several months before you can get an appointment with a specialist it gives families the oppertunity to get started with speech, occupational and developmental therapies.  In Illinois if you notify EI that you suspect the problem is greater than what EI has discovered they will set you up with an appointment with a developmental team.  the team I met with had a Developmental Ped, speech therapist, physical therapist,occupational therapist and social worker.  Good Luck

rocky_mtn_mama
by on Nov. 17, 2012 at 2:29 PM

I'm not in GA, but you might give a look at austismspeaks.org.

goofy4875
by on Feb. 4, 2013 at 11:20 PM

I hope you were able to get through the first appointment and are well on your way to a plan for your daughter.

I don't believe either of my kids have SPD, but I think I may. Getting a diagnosis as an adult feels next to impossible. I have scoured the internet for information and thought I would share some of those sites.

1.  One Place for Special Needs:  http://www.oneplaceforspecialneeds.com/main/library_sensory_processing.html

2.  SPD Foundation:  http://spdfoundation.net/library/living.html

3.  Imagination Soup:  http://imaginationsoup.net/2012/09/our-daughters-anxiety-connected-to-sensory-processing-disorder/

4.  Child Mind Institute:  http://www.childmind.org/en/posts/articles/2011-10-26-sensory-processing-issues-explained

5.  Try Defying Gravity:  http://trydefyinggravity.wordpress.com/

6.  Band Back Together:  http://bandbacktogether.com/sensory-processing-disorder-resources/

Good luck on your journey!

Hottubgodess
by Jackie on Feb. 5, 2013 at 6:54 PM

Welcome!

I have a 9 yr old boy who was dx'd at 7 with "uncategorized disruption of the central nervous system (SPD)" and then at 8 with PDD-NOS Asperger's Traits.  

We started OT for the SPD because that presented the most.  2nd grade was a nightmare (even with an IEP for school) so we forced the school to pay for an independent evaluation with a pediatric Neuropsychologist.  He gave the Asperger's dx.  Our pedi is great for illness, but he was honest and told me he didnt know about SPD or Aspergers, so he allowed me to take the lead.  

To clarify - Aspergers is a FORM of Autism.  Classic Autism is what most people think when a child is listed with Autism.  :)  My son is only non verbal when overloaded and in shut down.  :)  Otherwise, he was highly verbal at an early age, as well as converses great with adults, but is clueless with peers.  But I digress...lol.

Dont get wrapped up in the "A" word.....deal with the SPD....andmuch will fall into place.  :)  You are lucky to have professionals catch it now.  She is lucky.  :)  

Check out this link.  They are a great fount of info on SPD

SpnFulOfSugar
by on Feb. 5, 2013 at 6:55 PM
I am no help but we also have an apt. at the Marcus institute. I've heard wonderful things about them!
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SpnFulOfSugar
by on Feb. 5, 2013 at 6:57 PM
I'm pretty sure the Marcus institute would be considered a developmental pediatrician. They should be the ones that give the official diagnosis.
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