I've lost faith...please help!
My son is 9 years old as of December 9th, 2012. He has had quite the developmental and medical history. He was born premie; 13 weeks early. Developmental delays were apparent by 6 months old. He began having seizures at 11 months old. ADHD symptoms were obvious by preschool. He continues to have these issues today. He has yet to be diagnosed with ADHD, but does recieve medication. He was just diagnosed within the last year with PDD-NOS & Moderate Intellectual Disability.Today, most of his development is that of a 2 year old, and he has behavior issues that reflect that. :)
My son is an incredibly sweet kid. Very charming and can be incredibly funny. As with many kids with his type of disabilities, he doesn't have much recall. He needs step by step instruction daily for most things, such as bathroom duty & washing in the bath/shower. I've incorporated PECS visuals for his bathroom routine, but just recently he is neglecting to even turn on the light before peeing all over the toilet in the dark! So my own personal issue here is that I have lost faith that my dear, wonderful boy CAN & will grow and learn. I am not expecting 100% independence. I am just meaning, the babysteps we work with our children on daily basis. I need motivation and my faith restored that it is worth it to work with my boy, and not just feeling defeated and frustrated everyday.
On a similar note, my son is repetative in his play. He loves to cook and anything related to kitchen play are things he can do ALL day. It is extremely amusing to me, and I am so proud of him. Cooking is the only area where he is really creative. However, he does get stuck in doing the same thing over and over. Other areas of play, he is not too imaginative, but he does enjoy trucks, and his favorite vehicle is the bus; specifically the stop sign on the bus. ;) I love that he has such strong interests, but I've found that I have almost no interest in taking part in them. On a daily basis, I have no idea what to do with him to spend quality time with him. He invites me to "watch" him cook, and he wants to offer me food and such, and coming from a preschool background, this is great, but it is literally all he does, and I haven't felt too obligated to take part in it recently.
I would really like some compassionate motivation, suggestions, advice, and maybe even your own stories in how you interact with your Extra-Special child on a daily basis. It would be really helpful to get a lil boost in enjoying my amazing boy again. Thank you all in advance.