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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

Is seeing a holistic docter who specializes in autism a waste?

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     I am the mom of a very sweet 9 year old boy who falls on the spectrum.  I guess I'm pretty lucky as he doesnt really have any behaviors.  He struggles with language has some tic behavior.  He has mild social problems.  My main issue is he is in a mainstream classroom.  He has an IEP but I just want to feel that I'm giving him the best shot possible.   He struggles in school and will not focus and stay on task. I made an appointment for him to see a holistic docter that specializes in autism.  He treats the medical aspect of autism with ideas such as supplement and change of diet. My husband feels it's a waste of time.  Does anyone have any opinions on the subject?

by on Jan. 10, 2013 at 12:09 AM
Replies (31-40):
TinaNicu
by Member on Jan. 14, 2013 at 8:58 PM

Be careful and go in with eyes wide open and educate yourself first. Know what kind of practitioner they are ( MD, DO, chiropractor, naturopath, etc). Be aware that they may be in it for the money. We went to two MDs over 4 years with some improvement. But a lot of money and an enormous amount of supplements later, we decided to quit. 

marlew
by on Mar. 31, 2013 at 9:01 PM

  I've been so super busy I havent been on here for a while but just wanted to thank everyone for the incite.

MomOfOneCoolKid
by Gold Member on Mar. 31, 2013 at 10:00 PM

 


Quoting humbledmom310:

I really have No concerns. My number one reason for not going down this route is that I do not think it is necessary. My children have not had any physiological conditions that would point me in the direction of any of these biomedical treatments. I believe there are a small percentage of children who have conditions severe enough where they would require such treatments ,but most do not. 

As far as my comment about being dangerous. I was referring to a small percentage of children who may become sick from restricting their diets of certain food nutrition sources and then replacing it with supplements. Especially since many of our children have a very limited nutritional diet to begin with. We were meant to get our nutrition from a food source , not from man made supplements. Even whole food supplements. We need to be helping these children feel comfortable with food and encourage them to try new things ,not give them more hang-ups.

Unless the child has actual physical problems that would suggest these treatments would be necessary ,in which case your pediatrician would recommend.

But...every responsible parent needs to do their own research and make up their own minds. This is just my own personal opinion. :)

Quoting KatyTylersMom:

We discussed everything our DAN! Doctor was doing with our kids with our regular pediatrician and all she had to say was well none of this looks dangerous, if this is how you'd like to approach your sons health then just keep me informed.  What kills me is that even now with our kids doing SO much better with huge gains in language and being so much more engaged all she has to say is "just keep me informed".  I think this is what bothers me the most about how modern medicine has approached autism: it's either all or nothing and the American Academy of Pediatrics has to specifically tell doctors to start treating the gut and immune problems so often seen with autism.  Shouldn't that just be part of treating a patient?  

Also I hear so often that the DAN! Protocols are "dangerous" and I'm confused as to what part of the GFCF diet, vitamin supplementation, fish oils, and treating yeast and harmful bacterial infections in the gut while providing probiotics, is dangerous?  If its just chelation that is "dangerous" then please address that fear, so that we can explain that most kids don't need chelation, and that it is only done once the child is healthy and has enough nutritional and immune support to handle it.  And that the few deaths attributed to chelation used the wrong agent by mistake, but that using calcium EDTA is free of the dangerous drops in blood calcium levels which caused the deaths.  So what exactly are your concerns?

 

My son actually has a lot of tummy issues. So do I. I'm thinking about seeing a pediatric gastroenterologist. Personally, if I think there is an issue with the gut, I'd see (am going to see) a gastroenterologist not a DAN! doc. Plus the gastro doc is covered by insurance.

 

Maybe i'd see a nutritionist too cause they are covered by insurance.

 

Also, i take a lot of advice from the biomed community. My son is taking fish oils. I'm trying to find b6 and magnesium gummies, etc. These things I see as having a low risk, low cost, possibly high reward ratio.

 

A Dan doc that costs thousands a yr, no insurance reimburseable, the medical community is not all on board, the risk to reward ratio keeps me at bay.

 

Paperfishies
by Member on Mar. 31, 2013 at 10:10 PM
Yes. There has been more and more issues coming out with DAN! "Doctors".
I ask any parent who is considering this, to go to an independent lab NOT the lab the DAN! Person specifies. I feel they are witch doctors who are taking advantage if desperate parents.


Quoting Dot102:

We took our daughter to a DAN doctor who had us go to Doctor's Data for heavy metal testing as well as food allergy testing.   Please do your own homework!  Many of these doctor's are scientologists.  A child in our state went into cardiac arrest and died from too much chelation therapy to "remove" heavy metals from the body.  Even the lab they use to run their testing has been under investigation for fraud.  I would have never put my daughter through treatment from a DAN doctor if I had done some research first.  

http://leftbrainrightbrain.co.uk/2006/11/07/autism-scientology-and-the-moonies/  




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marlew
by on Mar. 31, 2013 at 10:13 PM

  I just got the labwork back and it is saying that he has multiple food sensitivities.  All the foods he likes.  Which leads me to question.  It recommends some supplements and states that his mercury is high.  Im freaking out a little bit.   I havent had my follow up visit but I will go and see what he says, but I'm questioning this choice already.  I dont want to do chelation it scares me, and how am I going to take my son who is actually a very good eater and tell him he cant have any of his favorite foods.

OFIH
by on Mar. 31, 2013 at 10:50 PM
1 mom liked this

It is the BEST thing I did for our kids. I thought it was quackary at first, big time. Then I saw what happened when the right supplements and diet changes for given for my child and I never looked back. I often tell our biggest change due to supplements story and people are shocked. I have seen things work like near magic and then watched much slower changes in my children's health and well being and symptoms. I have labs to show how my children's bodies are getting healthier and stronger. I have more money in my proverbial pocket to show how much less we go to the doctor due to illness. I believe, if you find a good one, it can be one of the best things you do for your child.

OFIH - Controller of chaos, laugher at children's antics, creator of messes, lover of God.
OFIH
by on Mar. 31, 2013 at 10:54 PM
If you don't want to chelate, don't. A good biomedical doctor will 100% respect a parent's decision and won't push. That's part of their typical philosophy on medical care. If they push, run from their office. We very gently detoxed our son with heavy metals. It took longer, but their bodies were healthy and didn't have to deal with chelation. We used things as simple as Epsom salt baths, added a few specific foods into his diet (to help detox naturally, nothing freaky food-wise), and removed a few temporarily (and some permanently like high fructose corn syrup, etc). He never showed any signs of anything other than his levels going 100% to normal. Many times they don't ask you to remove all the foods. There might be a very that are so high they should be removed for a certain amount of time, or possibly forever. But many times they request a rotation diet to help them overcome lesser food reactions.
Quoting marlew:

  I just got the labwork back and it is saying that he has multiple food sensitivities.  All the foods he likes.  Which leads me to question.  It recommends some supplements and states that his mercury is high.  Im freaking out a little bit.   I havent had my follow up visit but I will go and see what he says, but I'm questioning this choice already.  I dont want to do chelation it scares me, and how am I going to take my son who is actually a very good eater and tell him he cant have any of his favorite foods.


OFIH - Controller of chaos, laugher at children's antics, creator of messes, lover of God.
Koltie6
by on Mar. 31, 2013 at 11:19 PM
1 mom liked this
Absolutely the best thing we have ever done. The Dr we see was a brain surgeon from Baylor in Houston. He used his experience in doing Biopisies on the brain to help treat people with many issues. autism being one of them. As you know the brain and how it works is crucial for our children. I am sure we can all agree on this. However many Drs do not have this knowledge. This Dr has taken what he knows and is helping children from all over the world. His webpage is very educational for those of you who do not understand how the brain works. Everything in the brain must be in perfect balance. One missing thing and you have all kinds of problems. Do any iof you know if your child absorbs folic acid? If not they will never have the speech we consider normal no matter how much speech therapy you do. So before you dismiss these Drs educate yourself. My son was non verbal had severe GI issues uncontrolled seizures and was a very sick child in general. He has been tested for many things all covered by insurance. We have never done chelation as a matter of fact these kids can rid there own bodies of toxins if everything is in balance. I don't know where you are but this Dr is in Austin Texas . A therapist told me about him. His website is Dr Kendal Stewart . Com . Please give this a chance. These kids have many medical issues that need to be addressed. Even the American academy of pediatrics recently issued a statement recognizing that our kids have gut issues and approving of the GFCF diet . Also please read Arkansas children's hospital research on folic acid in children with autism. It will make you a believer.
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MomOfOneCoolKid
by Gold Member on Apr. 2, 2013 at 2:28 PM

 


Quoting Koltie6:

Absolutely the best thing we have ever done. The Dr we see was a brain surgeon from Baylor in Houston. He used his experience in doing Biopisies on the brain to help treat people with many issues. autism being one of them. As you know the brain and how it works is crucial for our children. I am sure we can all agree on this. However many Drs do not have this knowledge. This Dr has taken what he knows and is helping children from all over the world. His webpage is very educational for those of you who do not understand how the brain works. Everything in the brain must be in perfect balance. One missing thing and you have all kinds of problems. Do any iof you know if your child absorbs folic acid? If not they will never have the speech we consider normal no matter how much speech therapy you do. So before you dismiss these Drs educate yourself. My son was non verbal had severe GI issues uncontrolled seizures and was a very sick child in general. He has been tested for many things all covered by insurance. We have never done chelation as a matter of fact these kids can rid there own bodies of toxins if everything is in balance. I don't know where you are but this Dr is in Austin Texas . A therapist told me about him. His website is Dr Kendal Stewart . Com . Please give this a chance. These kids have many medical issues that need to be addressed. Even the American academy of pediatrics recently issued a statement recognizing that our kids have gut issues and approving of the GFCF diet . Also please read Arkansas children's hospital research on folic acid in children with autism. It will make you a believer.

I have to say, that sounds interesting.

The fact that it is insurance reimbursable (though I guess they don't directly bill the insurance company) def gets my attention.

There are a lot of things I do -- lower salt, sugar, carbs in general. I try to get my son to get more veggies, fish, etc. Fish oil supplements, etc. More exercise. There's no way i'm going to do GFCF. I believe other moms who say its made a world of difference, its just not happening in our household.

 

That doctor has sparked my attention. http://www.drkendalstewart.com/

But why hasn't the MIND institute or the NIH researched or replicated his findings? That bugs me.

 

Roo1234
by on Apr. 2, 2013 at 2:32 PM

We are very close to some friends who have a child with autisum.  I know that they have travelled hundreds of miles to see difference types of specialists and doctors and have never regretted their efforts.  They use diets and supplements for years with postive results.

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