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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

Is everyone willing to believe the doctor that your kid is just autistic?

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As in, no underlying causes of these symptoms it's just autism and good luck to ya!

Is anyone else not willing to believe that this is all there is? We were told our now 4 year old will be like this forever and just keep him happy and healthy until you can't take it anymore (yes, we were actually told this) but I just can't believe that this is all he is, I think it has other things causing these symptoms but doctors are unwilling to look internally and just diagnose his symptoms that you can see.

He is 4 years old with the mind of a 10 MONTH old.

by on Jan. 13, 2013 at 12:00 PM
Replies (11-19):
valleymomma1
by Bronze Member on Jan. 14, 2013 at 2:34 AM

No not at all I see progress each & every day my child amazes me.  

Macphee
by Bronze Member on Jan. 14, 2013 at 7:09 AM
My son also would not eat. He was severely underweight. We supplemented with omega3 and a promoting. He had digestive and inflammation issues.

BTW. What a cruel doctor. I would change pediatricians immediately.

Some kids catch up, some take longer, but therapy improves quality of life.


Quoting icn_mom:

I have to tell you I have felt this same exact way!! my daughter for a long time was anorexic (yes started at 15 months old and we are still battling it at almost 6!! we ended up putting in a tube for feedings) and the doctors could only say "well you know she is on the spectrum right? this a symptom of the asd".. I refuse to believe that! It frustrates me, once my dd was diagnosed ASD they stopped looking at ways to help her, and just blame the ASD!!!! Prior to the diagnosis they were all jumping to get things straightened out now its "oh itll take time because of the ASD".. so I feel your pain!!!


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Basherte
by Silver Member on Jan. 14, 2013 at 7:29 AM

It could be autism. Without any further information as to how he acts and stuff though...

I think you should find another doctor. Honestly, autism isn't the end of the world, and things can get better for your child. It takes a lot of hard work on your part and his part. Therapy, and lots of other stuff. It is possible though. There is also a diet that some people think helps as well. 

I'm kind of confused by medication being offered. My son's doctor has never offered any medication for my son other than the flouride. Which is because our water supply has no flouride in it. He never offered any due to my son's autism.

I was the first one to suspect that there was something just not right. Everyone kept telling me I was worrying for nothing. Then he started to bang his head and his doctor took me seriously and gave me a number to get him evaluated. early intervention. Although they don't work with kids over the age of 3.

icn_mom
by on Jan. 14, 2013 at 8:57 AM
1 mom liked this


Quoting Macphee:

My son also would not eat. He was severely underweight. We supplemented with omega3 and a promoting. He had digestive and inflammation issues.

BTW. What a cruel doctor. I would change pediatricians immediately.

Some kids catch up, some take longer, but therapy improves quality of life.


Quoting icn_mom:

I have to tell you I have felt this same exact way!! my daughter for a long time was anorexic (yes started at 15 months old and we are still battling it at almost 6!! we ended up putting in a tube for feedings) and the doctors could only say "well you know she is on the spectrum right? this a symptom of the asd".. I refuse to believe that! It frustrates me, once my dd was diagnosed ASD they stopped looking at ways to help her, and just blame the ASD!!!! Prior to the diagnosis they were all jumping to get things straightened out now its "oh itll take time because of the ASD".. so I feel your pain!!!



The tube really was a last resort. We tried everything we possibly could, but then her kidneys started to shut down and she was getting very sick.. the tube was actually placed before the diagnosis of autsim, but once she was disagnosed, that was it, there was no more looking into WHY she wouldnt eat  I feel that the tube saved her life, I ust wish that people would stop blaming the ASD for literally everything!!!

Marcy_182
by Bronze Member on Jan. 14, 2013 at 9:09 AM
2 moms liked this

We see our pediatritian, we see a neurologist, we see a developmental specialist and we see an autism specialis. And all 4 of them have a different view on this... There is always something else and something more you can do... If they are telling me 10 hrs a week of therapy will do, we do 20 to 25, nothing will stop us i gather all of these doctors information and take what i think it works best for our son, im not against them i love learning from their experiences with children like mine and if i come across with new info ill call them and run it by them to get their opinions; if i want blood work for reasurrance i call and ask all of them until one of them give me the ok and send the request...

When our son was dx they told us he was severely impaired, now he is running, jumping, talking, going to typical school, painting, cutting, tracing, pasting... i believe with all my heart that we can all do more

AMom29
by Bronze Member on Jan. 14, 2013 at 1:44 PM

 It's not the end.  I would explore resources in your area -- every second counts. 

Get a different doctor.  Find specialists.  Try ABA.  Do unconventional things.  I've put my children into sports, which is unusual for ASD kids, and I've had mixed results so far.

MomOfOneCoolKid
by Gold Member on Jan. 17, 2013 at 7:20 PM

 


Quoting Marcy_182:

We see our pediatritian, we see a neurologist, we see a developmental specialist and we see an autism specialis. And all 4 of them have a different view on this... There is always something else and something more you can do... If they are telling me 10 hrs a week of therapy will do, we do 20 to 25, nothing will stop us i gather all of these doctors information and take what i think it works best for our son, im not against them i love learning from their experiences with children like mine and if i come across with new info ill call them and run it by them to get their opinions; if i want blood work for reasurrance i call and ask all of them until one of them give me the ok and send the request...

When our son was dx they told us he was severely impaired, now he is running, jumping, talking, going to typical school, painting, cutting, tracing, pasting... i believe with all my heart that we can all do more

thats an amazing story!

 

scarlita88
by on Jan. 17, 2013 at 7:43 PM

 you know what YOU know! knowledge is power ...and power to fight this is essential. whether it means floortime, diet modification, aba,or anything else out there. you are the childs parent and yes a diagnoses can be limiting but it can also set you free to explore. so get on it and good luck! you will find something that works for your family. i also believe that autism is all it is( along with extreme prematurity) but if anything it finally gave me a starting point.my boy is six and this is brand new to me. but it fits. and now? the sky is the limit. good luck and godspeed!

Confused122
by on Jan. 17, 2013 at 8:21 PM

start researching, talk to others like you are here, get another opinion.  You know your child the best so follow your heart.  If there is one thing I've learned from being a mom is to listen to your heart.  Your heart is clearly questioning with good reason.  You are a great mom just by questioning and standing up for your child. Listen to your heart and follow that mothers instinct.  Hang in there!!  

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