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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

not diagnosed they say its too early something is wrong though

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NEED HELP!!!!!

my son is 18 months old and has violent tantrums. he gets mad very easy and bangs his head to the point of serious bruises and knots. he pinches and slaps himself and me. he has screaming fits that can be from 5 min to an hour or more i have tried time out talking distractions and sadly even spanking ( lightly tapping his hand when he hits). nothing is helping. i talked to his doctor and he says he is jjust a boy hitting that stage but i see it as more. i worry hes autistic but they say its too early to diagnose. i need help im so overwhelmed i have been breaking down and crying with him

by on Jan. 20, 2013 at 9:54 PM
Replies (11-20):
MomOfOneCoolKid
by Gold Member on Jan. 21, 2013 at 11:39 AM

 


Quoting mypbandj:


 Hey mypbandj!

I don't know if you remember me, but when i first had concerns about my son and didn't know how even to start, you helped me out and told me about early intervention and school districts, etc. At that time i didn't even have insurance.

 

Anyways, i don't know if I went back and thanked you but if not THANK YOU!

 

thank you

 

LIMom1105
by Silver Member on Jan. 21, 2013 at 11:54 AM
I agree with the others. You can have a great pediatrician, but they just aren't equipped to diagnose autism or even recognize some symptoms.



Go to your early intervention and start there. Evaluations are free, and fun for the kids. And make an appt. to see a developmental pediatrician or neurologist. Waits for appts. can be long, so you can start spoech or other services that might be needed in the meantime.



My son acted like yours st that age, and I was at my wits end and convinced I was doing something very wrong as a parent. But I didn't know how to parent him, typical advice did not apply. To me now, that's a red flag for some issue, if typical methods don't work more often than not.
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coleysmama
by Member on Jan. 21, 2013 at 12:01 PM

Please call early intervention and a developmental pediatrician.

Don't worry about a diagnosis just yet. He needs help with whatever issues he is having now.A diagnosis is far off if he has not started therapies and specialists yet.

My son was not diagnosed until March of 2012 but had been in Early Intervention since 16 mos old. He had been tested but did not fit the criteria of ASD just developmentally delayed till that point. He was still treated for the individual issues he had like sensory issues, speech, sleep disorder, PT, behavioral issues, etc.

Hugs mama :( We know how you feel.

StoneColdKiller
by Member on Jan. 21, 2013 at 12:06 PM
After a horrible process we found a pediatric neurologist is the best for this diagnoses.
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mypbandj
by Jen on Jan. 21, 2013 at 1:30 PM

Aww..thanks! I'm glad that I was able to help someone. I'm always spouting of this or that and never know if anyone ever takes me seriously. I'm SO glad that I could help you!! How is your son now? 

Quoting MomOfOneCoolKid:



Quoting mypbandj:


 Hey mypbandj!

I don't know if you remember me, but when i first had concerns about my son and didn't know how even to start, you helped me out and told me about early intervention and school districts, etc. At that time i didn't even have insurance.


Anyways, i don't know if I went back and thanked you but if not THANK YOU!


thank you



TheJerseyGirl
by Michele on Jan. 21, 2013 at 1:33 PM
Absolutely!!!

Quoting jaydensmom1726:

tell your dr. you want a refferal to get him evaluated .if they wont give you one i would find a new dr.

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MomOfOneCoolKid
by Gold Member on Jan. 21, 2013 at 1:49 PM

 


Quoting mypbandj:

Aww..thanks! I'm glad that I was able to help someone. I'm always spouting of this or that and never know if anyone ever takes me seriously. I'm SO glad that I could help you!! How is your son now? 


He's doing. lol.

Like i said, he is four now. i started the process when he was 3 yrs 6 months. it seems like a long time ago. The school district gave him special education, a non-cat SN preschool. Skills wise i think he's doing well. He can answer wh-type questions. He's asking wh-type questions. He's understanding stories better and retelling them -- though not in complete sentences. He is conversing a lot. Sometimes he doesn't stop talking lol

 

But he has a lot of trouble right now with self-regulation, etc. i know he wants to "play with children" but i think he feels intimidated or something, b/c he often -- almost always :( -- goes off alone by himself... so, its a work in progress, but its def progressing :)

 

Since then i got insurance -- thank God. He got eval'd by a dev pedi. He dx'd him "primarily with ADHD" and "secondarily with PDD-NOS" meaning, he def thinks its ADHD but there is a possibility that it might be PDD-NOS. The insurance gives him ST and OT.

 

My husband got a job and we are pay out of pocket for 2 hrs of aba a week. To me, the aba is like ST. ST does squat imo. I'm switching ST b/c i think i just got bad apple. :/

 

lady_katie
by Silver Member on Jan. 21, 2013 at 3:58 PM

No way - 18 months is NOT too early for a diagnosis. In some cases they can even diagnose autism before one year of age. I recently had an autism evaluation center try to tell me that it cannot be diagnosed before 2 1/2 ... I found myself educating them! Can you believe that? Of all the people who should know what they're talking about....ugh. 

Anyway, I think that others have already mentioned this, but you can have him evaluated by your county's early intervention program. It only took a few weeks from the time I made the initial phone call to them to start therapy. Also, you don't need a doctor to refer your son for an autism evaluation, you can do that yourself. Waiting lists can be very long though, so don't hesitate to start the process. 

My son is also 18 months and he has the same behaviors that you've mentioned. At this point, the best strategies I've found to deal with it is to have a strict routine with a good balance between activities and down time, and to make every effort to avoid the tantrum in the first place. Having a good "sensory diet" seems to help a bit too. 

ToonPlane
by on Jan. 21, 2013 at 4:13 PM
1 mom liked this

I would look for a developmental pediatrician.  You should not need a referral.  If your doctor will not listen to you, find a new one.  Moms know when something isn't right--go with your gut.

Confused122
by on Jan. 21, 2013 at 4:17 PM

Request an appointment and keep requesting it.  I wish I could help you with the temper tantrums.  We have the same problem with our 5 year old.  We usually just have to take him to his room and wait it out.  I've broken down crying several times while he is in this stage and it doesn't phase him in the slightest.  Try sitting in a room with him for a time out.  Try and block the hits as best as possible and wait him out.  I've found out with my son there is no distracting him.  It's all a waiting game unfortunately with him.  We go tomorrow to try and get a diagnosis.  Does your son eventually just shut down?  My son will shut down and just sit by me or be really quiet for awhile.  Hope it gets better for you!  If I find out any hints tomorrow...I will send you a message.  I wish I could help more.

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