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Holland Schmolland By Laura Krueger Crawford

Posted by on Jan. 25, 2013 at 10:19 PM
  • 9 Replies
1 mom liked this

Holland Schmolland
By Laura Krueger Crawford

E-mail: Laura@atticusproductions.com

If you have a child with autism, which I do, and if you troll the Internet for information, which I have done, you will come across a certain inspirational analogy. It goes like this: Imagine that you are planning a trip to Italy. You read all the latest travel books, you consult with friends about what to pack, and you develop an elaborate itinerary for your glorious trip. The day arrives. You board the plane and settle in with your in-flight magazine, dreaming of trattorias, gondola rides and gelato. However, when the plane lands you discover, much to your surprise, you are not in Italy -- you are in Holland. You are greatly dismayed at this abrupt and unexpected change in plans. You rant and rave to the travel agency, but it does no good. You are stuck. After a while, you tire of fighting and begin to look at what Holland has to offer. You notice the beautiful tulips, the kindly people in wooden shoes, the French fries and mayonnaise, and you think, "This isn't exactly what I planned, but it's not so bad. It's just different." Having a child with autism is supposed to be like this -- not any worse than having a typical child -- just different.

When I read that, my son was almost three, completely non-verbal and was hitting me over a hundred times a day. While I appreciated the intention of the story, I couldn't help but think, "Are they kidding? We are not in some peaceful countryside dotted with windmills. We are in a country under siege -- dodging bombs, trying to board overloaded helicopters, bribing officials -- all the while thinking, "What happened to our beautiful life?"

That was 5 years ago. My son is now 8 and though we have come to accept that he will always have autism, we no longer feel like citizens of a battle torn nation. With the help of countless dedicated therapists and teachers, biological interventions, and an enormously supportive family, my son has become a fun-loving, affectionate boy with many endearing qualities and skills. In the process we've created... well... our own country, with its own unique traditions and customs.

It's not a war zone, but it's still not Holland. Let's call it Schmolland.

In Schmolland, it is perfectly customary to lick walls, rub cold pieces of metal across your mouth and line up all your toys end to end. You can show affection by giving a "pointy chin." A "pointy chin" is when you act like you are going to hug someone and just when you are really close, you jam your chin into the other person's shoulder. For the person giving the "pointy chin" this feels really good, for the receiver not so much - but you get used to it. For citizens of Schmolland, it is quite normal to repeat lines from videos to express emotion. If you are sad, you can look downcast and say "Oh Pongo." When mad or anxious, you might shout, "Snow can't stop me!" or "Duchess, kittens, come on!" Sometimes, "And now our feature presentation" says it all. In Schmolland, there's not a lot to do, so our citizens find amusement wherever they can. Bouncing on the couch for hours, methodically pulling feathers out of down pillows, and laughing hysterically in bed at 4:00am, are all traditional Schmutch pastimes.

The hard part about living in our country is dealing with people from other countries. We try to assimilate ourselves and mimic their customs, but we aren't always successful. It's perfectly understandable that an 8-year-old boy from Schmolland would steal a train from a toddler at the Thomas the Tank Engine Train Table at Barnes and Noble. But this is clearly not understandable or acceptable in other countries, and so we must drag our 8 year old out of the store kicking and screaming while all the customers look on with stark, pitying stares. But we ignore these looks and focus on the exit sign because we are a proud people. Where we live, it is not surprising when an 8-year-old boy reaches for the fleshy part of a woman's upper torso and says, "Do we touch boodoo?" We simply say, "No we don't touch boodoo" and go on about our business. It's a bit more startling in other countries, however, and can cause all sorts of cross-cultural misunderstandings. And, though most foreigners can get a drop of water on their pants and still carry on, this is intolerable to certain citizens in Schmolland who insist that the pants must come off no matter where they are, and regardless of whether another pair of pants are present.

Other families who are affected by autism are familiar and comforting to us, yet are still separate entities. Together we make up a federation of countries, kind of like Scandinavia. Like a person from Denmark talking with a person from Norway, (or in our case someone from Schmenmark talking with someone from Schmorway), we share enough similarities in our language and customs to understand each other, but conversations inevitably highlight the diversity of our traditions. "Oh your child is a runner? Mine won't go to the bathroom without asking permission." "My child eats paper. Yesterday he ate a whole video box." "My daughter only eats 4 foods, all of them white." "My son wants to blow on everyone." "My son can't stand to hear the word no. We can't use any negatives at all in our house." "We finally had to lock up the VCR because my son was obsessed with the rewind button."

There is one thing we all agree on: we are a growing population.

10 years ago, 1 in 10,000 children had autism.

Today the rate is approximately 1 in 250 (as of 2008 it was 1 in 150).

Something is dreadfully wrong. Though the causes of the increase are still being hotly debated, a number of parents and professionals believe genetic pre-disposition has collided with too many environment insults -- toxins, chemicals, anti-biotics, vaccines -- to create immunological chaos in the nervous systems of developing children. One medical journalist speculated that these children are like the proverbial "canary in the coal mine" here to alert us to the growing dangers in our environment. While this is certainly not a view shared by all in the autism community, it feels true to me.

I hope that researchers discover the magic bullet we all so desperately crave. And I will never stop investigating new treatments and therapies that might help my son. But more and more my priorities are shifting from what "could be" to "what is." I look around at this country my family has created, with all its unique customs, and it feels like home. For us, any time spent "nation-building" is time well spent.

by on Jan. 25, 2013 at 10:19 PM
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Replies (1-9):
MomOfOneCoolKid
by Gold Member on Jan. 25, 2013 at 10:23 PM

i read this when i first started coming here to this group. it was wonderful to read. its wonderful to re-read. i hope you all enjoy it as much as i do :)

JTMOM422
by Brenda on Jan. 25, 2013 at 11:06 PM
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This is the world that I live in daily. It's not what I planned on but what was planned for me. I have become a sensory tool for my son. He thinks the dog is his personal chair. He loves his blocks with numbers and letters on them. He puts them into positions that only he understands. He can be screaming one moment and loving the next. He is Autistic and I love him just the way he is.

Thank you so much for sharing this. I am going to copy and put on my pinterest. I know my MIL will love it.

MomOfOneCoolKid
by Gold Member on Jan. 26, 2013 at 5:39 PM

i'm going to give this a little bump :)

VioletsMomTown
by Robyn on Jan. 26, 2013 at 8:51 PM
1 mom liked this

That's cute. I love the part where she says when mad or anxious they might shout "snow can't stop me" or you'll sometimes hear "now for our feature presentation" lol

In our house when mad or anxious we get the "ABCD" shouted or "No More Monkeys!!" and when excited its "now on DVD" lol its so funny cause its true!

MomOfOneCoolKid
by Gold Member on Jan. 26, 2013 at 8:54 PM
1 mom liked this

 

 

Quoting VioletsMomTown:

That's cute. I love the part where she says when mad or anxious they might shout "snow can't stop me" or you'll sometimes hear "now for our feature presentation" lol

In our house when mad or anxious we get the "ABCD" shouted or "No More Monkeys!!" and when excited its "now on DVD" lol its so funny cause its true!

Yeah, when my son is frustrated he says, "no, thats not correct" and "thats not a choice"

i have no idea where he got the 1st quote from but i know he heard it somewhere and the 2nd one is a staple at preschool from his teacher -- lol

 

GrammaJane46
by Member on Jan. 26, 2013 at 9:41 PM
1 mom liked this

What a wonderful piece of literature.  Thank you.

kris0921
by on Jan. 26, 2013 at 10:45 PM
1 mom liked this

I love this!

MomtoLou
by on Jan. 26, 2013 at 10:52 PM
1 mom liked this

I loved reading this!  When there are nervous or sad emotions at my house its "nationwide is on your side." We favor commercials and infomercials here. 

Leobaby2007
by on Jan. 26, 2013 at 11:48 PM
1 mom liked this

I love this too because I have always HATED the Italy/Holland comparison everyone always posts on every "parents of special needs children" board everywhere on the Internet.

Annoying as it is, my Aunt by marriage emailed it to me not too long ago, as if I had never read the darn thing before and as if it was really going to help, although I realize her intentions were good.

I've been to both Italy AND Holland. BOTH are perfectly LOVELY places that anyone would enjoy visiting, whether they "meant" to end up there or not.

So, Holland, Schmolland indeed! Lol

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