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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

I failed on early intervention

Posted by on Jan. 27, 2013 at 3:05 PM
  • 35 Replies

Since my son was 5 we were told he had A.D.H.D. That was 7 yrs ago. We only recently got his diagnosis of ASD. Throughout the years there were signs of Autism but I was in denial. Total denial. He's almost 12 and will just now be starting his therapies. I try to stay optimistic but every time I read anything on the subject I always see the words "early intervention".  I feel so sad today. I feel like I have failed my son by waiting this long to get him to proper help he needs. I feel like everyone else in the world has gotten their kids help by the time they were 5-6 yrs old. ......not 12.

by on Jan. 27, 2013 at 3:05 PM
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jeda1429
by Member on Jan. 27, 2013 at 3:29 PM
1 mom liked this

My son wasn't diagnosed until he was seven and I had wondered about it since he was a baby. I went through a huge guilty phase, where I went through all of the what ifs. But what I learned is that intervention is helpful at any age. I don't believe there is a" window of opportunity" like some people will say. Especially if your son is high functioning which it sounds like he is, since he went this long without a diagnosis. You are never too old to start developing better social skills and learning new habits. You have not failed, what's important is what you do now. Keep moving forward and don't look back!

Jenn8604
by on Jan. 27, 2013 at 3:33 PM
The lil boy I babysat wasn't dxd til 6. His mom tried EI but he wasn't behind enough to even fit in. Hence why it took til he was 6 and in kindergarten to realize he had more problems than just a slight delay in speech.
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dawncs
by Dawn on Jan. 27, 2013 at 3:37 PM

Your son will still benefit from having therapies at his age. I recommend updating your school in writing with his recent diagnosis for Special Education (http://www.wrightslaw.com/) services. You can find a local support group through your local Autism Society (http://www.autism-society.org/) and Easter Seals (http://www.easterseals.org/). You can find activities for him through TheARC (http://www.thearc.org/), Special Olympics (http://www.specialolympics.org/), and Variety Club (http://www.varietyclub.org/).

Dawn
Beautifully Talanted Autistic Social Story Author
Diagnosed Asperger Syndrome as an adult
Diagnosed Edema (since young)
Author Page: http://www.toyboxunlimited.com/ (has discounts)

bugsmama149
by on Jan. 27, 2013 at 3:38 PM

Thank you so much for your reply. It is hard to live with all the "what ifs". I hate thinking that I could've affected my son's life negatively by not moving fast enough. He is pretty high functioning. People outside the family can't really tell he's autistic. But you're right. We just gotta move forward, and help at any age is good. Encouragement like yours is just what I need right now. Thank you.


Quoting jeda1429:

My son wasn't diagnosed until he was seven and I had wondered about it since he was a baby. I went through a huge guilty phase, where I went through all of the what ifs. But what I learned is that intervention is helpful at any age. I don't believe there is a" window of opportunity" like some people will say. Especially if your son is high functioning which it sounds like he is, since he went this long without a diagnosis. You are never too old to start developing better social skills and learning new habits. You have not failed, what's important is what you do now. Keep moving forward and don't look back!



bugsmama149
by on Jan. 27, 2013 at 3:40 PM

Thank you! We actually got his diagnosis through Easter Seals and we will start getting his therapies through them also. Thankfully we have an Easter Seals only a half hour away from us!

Quoting dawncs:

Your son will still benefit from having therapies at his age. I recommend updating your school in writing with his recent diagnosis for Special Education services (http://www.wrightslaw.com/). You can find a local support group through your local Autism Society (http://www.autism-society.org/) and Easter Seals (http://www.easterseals.org/). You can find activities for him through TheARC (http://www.thearc.org/), Special Olympics (http://www.specialolympics.org/), and Variety Club (http://www.varietyclub.org/).



dawncs
by Dawn on Jan. 27, 2013 at 4:01 PM

 You're welcome! You also might be interested in http://www.aspergersyndrome.org/, and I have been familiar with the organization since 1996 or 1997. It has a wonderful database there of information gathered through the years of advice. I also recommend checking out CHADD (http://www.chadd.org/).

Quoting bugsmama149:

Thank you! We actually got his diagnosis through Easter Seals and we will start getting his therapies through them also. Thankfully we have an Easter Seals only a half hour away from us!

Quoting dawncs:

Your son will still benefit from having therapies at his age. I recommend updating your school in writing with his recent diagnosis for Special Education services (http://www.wrightslaw.com/). You can find a local support group through your local Autism Society (http://www.autism-society.org/) and Easter Seals (http://www.easterseals.org/). You can find activities for him through TheARC (http://www.thearc.org/), Special Olympics (http://www.specialolympics.org/), and Variety Club (http://www.varietyclub.org/).

 


 

Dawn
Beautifully Talanted Autistic Social Story Author
Diagnosed Asperger Syndrome as an adult
Diagnosed Edema (since young)
Author Page: http://www.toyboxunlimited.com/ (has discounts)

kajira
by Emma on Jan. 27, 2013 at 4:43 PM

I wasnt diagnosed until an adult and I have classic autism. i had regular therapies and behavioral classes growing up because of symptoms with out a label, but it's NEVER too late for a label.


JTMOM422
by Brenda on Jan. 27, 2013 at 11:23 PM
1 mom liked this

You didn't fail your son. You had a dx of ADHD and that is what you believed it to be. There is nothing wrong with you guys getting his dx at 12. He will get the therapies that he needs. I know that its hard thinking that you saw those signs and were in denial but you trusted the doctor who gave the first dx. You had no reason to believe that he was wrong. You are a great mom. Just give it time to sink in a little. Try not to be too hard on yourself.  Things will get better mommahugs

CherylAnne9
by on Jan. 28, 2013 at 12:03 AM

I agree....sounds like he is high functioning....which in my opinion means he is perfectly fine. He is just going to need help understanding that some things are not ok and to accept that other people do not think like he does.  It means that can do and be what ever he wants. It means that will have the SAME opportunities as every other kid. It means he now has a name to why he thinks the way he does. It means that he perfectly NORMAL, it is the way he was made.  That nothing needs fixed!  And that goes for you too mom. You don't need fixed, or to even think twice. This is a huge step for you as now you will start putting pieces together and have a great deal better understanding how you son "works".  Why he has done and thought "quirky" things in the past.  They always made since to him....now they will make sence you! :)  

I refused to have my son officially "diagnosed". I don't want it to hold him back by being in his medical file in anyway.  There is nothing wrong, lacking, or missing from kidos that have aspergers.  Most of the time the are just smarter than the rest of us "normal" people. :)

Go with the flow, learn all you can! Thats all you can do.

VioletsMomTown
by on Jan. 28, 2013 at 12:10 AM
1 mom liked this

I'm pretty sure if you made it that far without you or anyone else realizing, then he must be doing ok. Most of the early intervention done is done because its blatantly obvious that something is awry. Count your blessings he's made it so far without needing intervention. It's never too late to understand your son better, now you can.

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