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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

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Posted by on Feb. 2, 2013 at 7:53 PM
  • 13 Replies
My name is Erin, I am a 26 year old mom of two kids, my youngest is two. Starting at four months old she began to bang her head on anything that she could and screaming over everything. Then at six months began the repetition of things, followed by excessive fits. She has no regard for personal safety. She will hurt herself on purpose and not care. The doctors said she would grow out of it. Now she will start these tantrums over nothing, screaming fits that last two hours and she's made herself bleed. She stacks toys and barely talks. She doesn't initiate eye contact and hates loud noises. Her pediatrician decided she definitely needs to be evaluated, so Monday is the big day. I'm scared for her because she's so out of control.

Her name is Lilly.
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by on Feb. 2, 2013 at 7:53 PM
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she-ra2000
by on Feb. 2, 2013 at 8:09 PM

Atleast you're starting early, Erin. My son is 8 and has Aspbergers and ADHD.I just got him evaluated yesterday. Hopefully you can get all the help you need to help your baby. Stay encouraged!

kaygarcia97
by on Feb. 2, 2013 at 8:18 PM
Thank you. I'm not even sure what is up with her but I know it isn't normal.

What signs did your son have


Quoting she-ra2000:

Atleast you're starting early, Erin. My son is 8 and has Aspbergers and ADHD.I just got him evaluated yesterday. Hopefully you can get all the help you need to help your baby. Stay encouraged!

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she-ra2000
by on Feb. 2, 2013 at 8:27 PM

yw. he was always sensitive to light and loud noise. He would get freaked out it his shoes weren't the way he organized them. He hated loud noises, even in church. We were in denial for awhile. He would also repeat stuff he watched on tv or the computer,constantly.And he has a very proper speech, and he was born and raised in the south. Just those little things,etc.

dawncs
by Dawn on Feb. 2, 2013 at 8:33 PM
1 mom liked this

Welcome to the group and good luck on Monday! It is fantastic you are getting her diagnosed early because time is very precious in helping your daughter reach her full potential in life. If her disability is severe, you can get child support past high school and for the rest of her life, so it would be well worth getting a modification one day for it. She could qualify based on her diagnosis and your income for SSI through Social Security Administration (http://www.ssa.gov/). You should contact your school district in writing for an evaluation for Special Education services (http://www.wrightslaw.com/). You can find good information and local support groups through Autism Speaks (http://www.autismspeaks.org/), Easter Seals (http://www.easterseals.org/), and Autism Society (http://www.autism-society.org/). You can find recreational programs through TheARC (http://www.thearc.org/), Special Olympics (http://www.specialolympics.org/), and Variety Club (http://www.usvariety.org/).

Dawn
Beautifully Talanted Autistic Social Story Author
Diagnosed Asperger Syndrome as an adult
Diagnosed Edema (since young)
Author Page: http://www.toyboxunlimited.com/ (has discounts)

kajira
by Emma on Feb. 2, 2013 at 8:43 PM
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Good luck. I got diagnosed as an adult and I have classic autism... my eye contact is horrible and I have some speech issues, but I've got 2 kids and a loving husband and live an independant life with our family. :)

So, I know it seems scary now, but you never know what the future will bring.


With that said, my son was one of the worst toddlers i've ever seen, screaming fits lasting for hours, epic meltdowns, breaking things, destruction, running, you name it.

He was diagnosed with autism at 8 then rediagnosed with schizo-affective recently.... 

There's so many different things it could be, and at this age, especially with out communication, it can be so hard to know what path to take, what I can say is getting evaluated and some tools to help you handle stuff better will be the first step.

Toddlers get frustrated and have trouble talking even when they are NT - my NT toddler gets upset and screams occasionally, but NOTHING like my son did. there were days when my son was a toddler I really thought I wouldn't survive the day because he'd been screaming for so long and so loud.

I survived it - and he's doing better now.

You'll get through this, don't be afraid to make friends and build a support system for yourself.


The hardest part was dealing with my son alone and not having any help or understanding what was even going on with him... and trying to make it work with none of the normal child-rearing suggestions from family, doctors, teachers, etc working for him.  (And, they do on my NT toddler.)


MommaHubbard
by on Feb. 2, 2013 at 9:12 PM

My son didn't do anything too noticeable until he turned 5 yrs old. Looking back now, there were subtle signs but the self-injurious behavior didn't happen until kindergarten. He turned 5 in May and after that he started to throw bad fits that resulted in him hurting me or someone else. It got even worse when he started kindergarten and was expected to sit in a seat all day and be around a bunch of other kids he didn't know. He was able to read at around 4 yrs old. Instead of a normal SpongeBob book at the library he would only have interest in reference books (once he made me read him a book about parasites-he was fascinated with the tapeworms and horse flies). But, his big thing is the solar system. I'd say that fascination started shortly after he turned 5 as well. But yeah, it was nothing like my girls and it was honestly pretty scary sometimes. But, the dx will help get the therapy you need. I hope the day tomorrow isn't too stressful on either of you and you get the help you need as a result!

mommy4lyf
by on Feb. 2, 2013 at 9:41 PM

Get help early. I can still hear my son's pediatrician voice (he's fine, he's a boy, he'll talk late, he's a late talker blah blah blah). Well, he's wrong, my son is now 11 years old with mild symptoms of autism. As they grow older, some of the signs are not noticeable (Some). That's why, don't wait....

VioletsMomTown
by on Feb. 2, 2013 at 9:48 PM

Good luck on Monday! Let us know how it goes. My daughter was diagnosed at 4, but we went through some awful stuff at age 2. Its great she's getting help, it does kind of sound like autism to me, but I'm just going by the few things you mentioned. I guess you will know soon, knowing is better than not knowing!

Violet's Mom

Twitter @autismnotebook

mypbandj
by Jen on Feb. 2, 2013 at 10:45 PM
Welcome! I have 3 kids. My oldest is 15 and has aspergers. My youngest is 2 and is in early intervention now. We are in the process of figuring him out.
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scarlita88
by on Feb. 3, 2013 at 2:00 AM

it will be okay because you know its not normal. she is telling you the best she can how frustrated she is. and it sounds like you will get answers sooner as opposed to later and be able to get her some help. poor little baby. my son is on the spectrum as of this past november. he is six and because he was born at 27 weeks and had early interventions and is high functioning it was close to impossible to get anyone to see what i saw. they kept telling me he was okay and doing well for being so premature. but he gnashed and grinds his teeth. can not dress or bath himself. can not follow 2 or 3 part directions. has sensitivity to food texture and temp, loud noises, bright light, dark., water on body,hands and face,runs and hurls himself into things,people, slaps himself, spanks himself(i know!?) gets in everyones personal space, cant stop talking,has obsessions with monsterhigh and mermaids( (dont ask) and so much other eccentric or odd or frustrating(for him and/or me) behaviors that i cant name or remember them all. but the great thing is this: there is so much more that can be done to help your little girl than ever before. so get going and good luck. we are all here for you!

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