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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

New to the Group and needing some advice.

Posted by on Feb. 14, 2013 at 8:01 PM
  • 11 Replies

Hi!! My name is Nickhole, but I usually go by Nicky. I am 26yrs old and I am a divorced mom of 2 little boys. While I am not married anymore, I am not single. I do have a boyfriend. His name is Daniel and he is 21.

Austin Jr is my oldest and he is 5yrs old and he is the one with special needs. He gets speech therapy from his school. I also suspect he has Autism but his teacher refuses to recommend the testing. Because of his age I have to go through the school to get it done.I am not the only one who sees the signs. My Ex-MIL sees the same signs that she saw in my Ex-BIL who is now 17 who has Aspergers. He has had the correct therapy and what not because he was disgnosed at a young age...but I am afraid that it's going to be too late for my oldest by the time something is done...any advice on what to do? Because it's not like his father keeps the same rules for his house that they have here, they live with me, they see him 6 days a month...and his rules are no where near the same...so I think that is one of the reasons that my oldest acts out so much...he doesn't have structure. He's the blond on Dan's lap.

Ronald...AKA Ronie is my youngest and he is 3yrs old. He doesn't have any delays of any kind and he's actually ahead on everything according to the school. So, that's good. He doesn't have the same problems that his brother has when coming home after a visit to thier dads house.

But, that's us in a nutshell!!! :)

by on Feb. 14, 2013 at 8:01 PM
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Replies (1-10):
JTMOM422
by Brenda on Feb. 14, 2013 at 8:15 PM

Welcome to the group momma. Keep pushing the school for testing. I would talk to the principal and the school psychologist to get it done. If they won't do it then what about you pediatrician. My ds was dx by a specialist in our area but the school still has to do their own to see if ds qualifies for developmental preschool. 

CreziaMommyTo2
by on Feb. 14, 2013 at 8:15 PM

if you feel your DS is onthe spectrum, you do NOT need a recommendation from your school.  you can go to a nuerologist and have them test, your insurance should cover it.  if he does test on the spectrum , then you the dr. will send the scores to your district and they will need to abide by them.

with that said. welcome.

dawncs
by Dawn on Feb. 14, 2013 at 8:18 PM

I recommend getting an outside evaluation for Autism besides an evaluation at school for Special Education services and therapies. You can find a doctor who specializes in Autism through your state chapter of the Autism Society (http://www.autism-society.org/) and Autism Speaks (http://www.autismspeaks.org/). To get an evaluation for Special Education services (http://www.wrightslaw.com/), you need to send to the school in writing a request for Special Education Services for your son. I recommend reading http://www.aspergersyndrome.org/). You might also find your local chapter of Easter Seals (http://www.easterseals.org/) very helpful.

Dawn
Beautifully Talanted Asperger Syndrome Writer
Diagnosed Asperger Syndrome as an adult
Diagnosed Edema (since young)
Author Page: http://www.toyboxunlimited.com/

MomOfOneCoolKid
by Gold Member on Feb. 14, 2013 at 8:24 PM

 


Quoting CreziaMommyTo2:

if you feel your DS is onthe spectrum, you do NOT need a recommendation from your school.  you can go to a nuerologist and have them test, your insurance should cover it.  if he does test on the spectrum , then you the dr. will send the scores to your district and they will need to abide by them.

with that said. welcome.

yup :)

 

MomOfOneCoolKid
by Gold Member on Feb. 14, 2013 at 8:25 PM

And welcome to the group :)

AustinRonMommy
by New Member on Feb. 14, 2013 at 8:32 PM
1 mom liked this

Thank you all very much. You were all very helpful.

Charizma77
by Carissa on Feb. 14, 2013 at 8:41 PM

Welcome To he group. Go with your gut and look into other options to get him tested, if there are any or just keep pushing it with the school. 

Charizma77
by Carissa on Feb. 14, 2013 at 8:42 PM

This group is very helpful.  Feel free to post about anything! 


Quoting AustinRonMommy:

Thank you all very much. You were all very helpful.



TheJerseyGirl
by Michele on Feb. 16, 2013 at 5:53 AM

 It's never too late...It's just important that now he's in school, that he get the proper therapy and education plan. Push for it and don't back down! A parent has ever right to request their child be tested...you can also go to your pediatrician and ask for a referral to an autism specialist for a diagnosis and take that straight to your school's child study team.

Years ago our school thought my son was fine and it took me getting his diagnosis on my own and bringing them recommendations for the correct education plan to get the CST off their butts. He was only in preschool then...Sometimes a teacher can't see what we do or doesn't know the significance of the proper treatment. Like I said, just keep pushing for it!

AustinRonMommy
by New Member on Feb. 16, 2013 at 4:30 PM

 

Quoting TheJerseyGirl:

 It's never too late...It's just important that now he's in school, that he get the proper therapy and education plan. Push for it and don't back down! A parent has ever right to request their child be tested...you can also go to your pediatrician and ask for a referral to an autism specialist for a diagnosis and take that straight to your school's child study team.

Years ago our school thought my son was fine and it took me getting his diagnosis on my own and bringing them recommendations for the correct education plan to get the CST off their butts. He was only in preschool then...Sometimes a teacher can't see what we do or doesn't know the significance of the proper treatment. Like I said, just keep pushing for it!

 Thank you. I will definately be talking to his school. I was thinking of waiting til we move since we will be in a different district. The school he will be going to is the one that I went to and I know that that district will do the test the very first time I ask.

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