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Newly diagnosed and risperdal

Posted by on Mar. 26, 2013 at 5:36 PM
  • 29 Replies

I'll start off by introducing myself. I'm Hollie. I'm 25 years old and live with my wonderful fiance and my son Kameron who is 5 years old. We live in pennsylvania. Kameron has had speech problems since he was about 1. He was in speech therapy before but has greatly improved. We have had difficulty with kam since he was born with mood swings, hyperactivity, focusing, and aggresion. He is my first child so I thought it was just him being a boy and he would grow out of it. Recently, it has been alot worse. He used to bang his head when he was younger and that resurfaced. He will also hit, bite, push, and through things when he is mad which is quite often. We are strict with him, taking away things for bad behavior. I have tried almost everything and nothing seems to make a difference. Behavior charts, time outs, taking away toys, giving the chance of earning awards, nothing seems to work.

We made an appointment with a therapist who he has been seeing for a little over 3 months now. She has been wonderful and supportive. I also made an appointment with a developmental pediatrician. Kameron had a psych eval completed by a psychiatrist who diagnosed him with autism and adhd. We went back for our second appointment today and the doctor recommended risperdal. I was leary on starting medication but we can't get very far in other services currently because of his behaviors. I was wondering if anyone had experience with risperdal and could offer any advice about it. Also if anyone has any suggestions about things to try at home to help him cope with his anger.

It pains me to see him struggling so much. It always confuses me bc I'm not sure which behaviors I should try to correct or ones I should let be. I'm also worried about how he is acting bc sometimes it gets dangerous. We had a very difficult time at the doctors today and its gotten to the point where it is very difficult to take him out of the house. I'm kinda at my wits end and not sure how to help him.

by on Mar. 26, 2013 at 5:36 PM
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Replies (1-10):
LaurieMomof4
by on Mar. 26, 2013 at 6:11 PM
1 mom liked this

I'm so sorry you are having a hard time :( I also have a 5 year old boy with Autism/ADHD. I'm not familiar with risperdal but we've started our son on Tenex and we've seen quite an improvement in his impulsivity, hyperactivity, and aggression. We will also be starting intensive ABA to address many of the behavioral issues.

conejoazul
by Member on Mar. 26, 2013 at 6:17 PM

Hi Mama. I opened your post out of curiosity because I didn´t recognize the term in the title.  Have you asked in the Austism Support Across the Spectrum group? (here is the link: http://www.cafemom.com/group/112775 ) .  I am a member there because we have some suspicions with our son, but not his evaluations are not yet complete.  I hope you get feedback from someone with experience with this medication.

conejoazul
by Member on Mar. 26, 2013 at 6:23 PM

Also , before I forget, I know in the group I mention above, they have discussed that most children* that are correctly diagnosed with autism will test positive for antibodies AGAINST folic acid - after which their children receive a prescription for folate acid (I think).  The members which have gone through that testing and begun the alternate supplement have discussed improvements in their children, so that is something else you may want to touch on with your provider if it hasn´t come up already. I don´t know if it would be relative for ADHD, however.

*If I remember correctly, they were discussing that 90% or so of the children test positive for the antibodies AGAINST folic acid.  Good luck to you and your son!

silentdreamer
by Member on Mar. 26, 2013 at 6:47 PM

isn't that the group I'm posting in currently?

Quoting conejoazul:

Hi Mama. I opened your post out of curiosity because I didn´t recognize the term in the title.  Have you asked in the Austism Support Across the Spectrum group? (here is the link: http://www.cafemom.com/group/112775 ) .  I am a member there because we have some suspicions with our son, but not his evaluations are not yet complete.  I hope you get feedback from someone with experience with this medication.


silentdreamer
by Member on Mar. 26, 2013 at 6:49 PM

I haven't heard about the antibodies against folic acid. I know my son's psychiatrist had bloodwork done and everything came back normal. I'm not positive if they tested for that. I will have to ask. Thanks.

Quoting conejoazul:

Also , before I forget, I know in the group I mention above, they have discussed that most children* that are correctly diagnosed with autism will test positive for antibodies AGAINST folic acid - after which their children receive a prescription for folate acid (I think).  The members which have gone through that testing and begun the alternate supplement have discussed improvements in their children, so that is something else you may want to touch on with your provider if it hasn´t come up already. I don´t know if it would be relative for ADHD, however.

*If I remember correctly, they were discussing that 90% or so of the children test positive for the antibodies AGAINST folic acid.  Good luck to you and your son!


conejoazul
by Member on Mar. 26, 2013 at 7:01 PM

Um - yeah - That was a total preggo-brain-fart on my part - I had been reading in the Natural Birth and Parenting Group and I didn´t realize I had shifted to this group when I opened your post - Not sure how I missed that. Sorry!!!

Quoting silentdreamer:

isn't that the group I'm posting in currently?

Quoting conejoazul:

Hi Mama. I opened your post out of curiosity because I didn´t recognize the term in the title.  Have you asked in the Austism Support Across the Spectrum group? (here is the link: http://www.cafemom.com/group/112775 ) .  I am a member there because we have some suspicions with our son, but not his evaluations are not yet complete.  I hope you get feedback from someone with experience with this medication.



MomOfOneCoolKid
by Gold Member on Mar. 26, 2013 at 7:04 PM

Hugs mom. My son also has autism and adhd. He is on Adderall. That has helped him. I've read a lot on here about kids on risperderal. From what i've read, its helped out a lot of kids. Your doc probably told you this, the biggest side effect from risperderal is MAJOR weight gain, but in medication, often you just have to have some trial and error.

 

The other thing that has helped my son the most is ABA.

conejoazul
by Member on Mar. 26, 2013 at 7:06 PM

I found the post within this group where I first read about it. The link follows. Group member Koltie6   describes the test about half way down the first page on March 1.  Good luck.

http://www.cafemom.com/group/112775/forums/read/18142926/4_ways_you_can_try_to_prevent_Autism_Now

Quoting silentdreamer:

I haven't heard about the antibodies against folic acid. I know my son's psychiatrist had bloodwork done and everything came back normal. I'm not positive if they tested for that. I will have to ask. Thanks.

Quoting conejoazul:

Also , before I forget, ...



dawncs
by Dawn on Mar. 26, 2013 at 8:56 PM

Welcome to the group! You have found a wonderful group of ladies to learn things to help your son reach his full potential in life. You need to contact his school in writing and request an evaluation for Special Education services (http://www.wrightslaw.com/). You can learn about local resources through a support group offered through Autism Speaks (http://www.autismspeaks.org/), Easter Seals (http://www.easterseals.org/), and Autism Society (http://www.autism-society.org/). You can find activities for him to do through Special Olympics (http://www.specialolympics.org/), TOPSoccer (http://www.topsoccer.us/), and TheARC (http://www.thearc.org/).

Dawn


Group owner of Different Learners Support Group (http://www.cafemom.com/group/118648)

TheJerseyGirl
by Michele on Mar. 26, 2013 at 8:57 PM
Welcome to the group, Holly! My son isn't on any meds so I can't help you... But I see you've done everything in your power to help him on your own. I hope someone else here has the advice you need.

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