I am new to the community. I am lookinf for support and for people who can understand what I go through on a daily basis. When my son(now 6) was 2 years old we found out that he had a condition called VPI. That is where the soft palate is too short and greatly affects speech. At the age of 2 he had no non-verbal communication and very little verbal. He never babbled or cooed. Started smiling at 6 months and even then it was rare. We meet with a speech therapist who recognized the VPI and said possible Aspergers. We all kinda brushed off the Aspergers and blamed everythin on the VPI, which I really can't separate the symptoms of the two. When he was 4 the Dr agreed to do surgery. Now my son could talk understandabley. However we were still having problems and last summer they got worse to where we wanted to seek help. He has major meltdowns at the drop of a hat, spazzes out if things change, is super literal, doesn't get sarcasm or hummor. He has also started baby talking and mumbling lately, when I know he can soeak clearly. He had 4 years of speech therapy to do so. Mostly this is when he is nervous, shy, upset, sad... He chews on stuff when he is upset. Mostly his blue blankie and T shirts. He also dosent seem to understand certain thing and I have to phrase in a positive manner if it is something negative. He is high functioning, so I know it's not near what some deal with. That's a little background on my son, of course there is more. Over all he is a smart, cute little man and I love him like crazy, but at times I feel like I am hanging by a thread and at a loss at what to do. I also have an 8 year old daughter who is ADHD and I would rather deal with her than my son at their worse times. I know it sounds bad, her stuff is just easier.
Please feel free to leave your thoughts, suggestion, question or whatever. I am an open book. ;-)