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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

So finally...

Posted by on May. 17, 2013 at 11:57 PM
  • 7 Replies
We well Carlos is being evaluated!! I was so excited a friend of mine told me who to call through our school district which i hadn't considered bc hes still to young for school and i was under the impression he couldn't start head start yet either well this was the right person!!And we have an appt on July 3rd then i go back July 12 th to set goals! But ever since ive been thinking autism i had a million questions to ask the drs and lots to tell them too and of coarae when i talked to her my mind went blank lol so anything you ladies can think of??
by on May. 17, 2013 at 11:57 PM
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johnns
by Johnna on May. 18, 2013 at 7:28 AM
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My advice is to have pen/paper handy and write things down as it comes to you. You will have at least 500 questions to fill out, ( I'm in the process of filling out AGAIN for new doc!) Plus, they will ask a LOT if questions. Its a little overwhelming. Plus, if your dh goes, he will think one way, you another. The darn process almost destroys brain cells! Lol
Also, just have a glance at all of these posts, and something might grab you, get you to remember things. But just like a doc appt, have notes with you, and take notes.
I too have my child in special ed preschool- great teacher, been God sent for us. My Sally has grown leaps & bounds in just 5 months!
Good luck, and be sure to keep us posted on all the progress that about to happen for your child!
KatyTylersMom
by on May. 18, 2013 at 6:43 PM
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In terms of what to tell any doctor who is evaluating your kiddo for autism, I recommend kind of making a report yourself and just bringing it into the appointment b/c they're going to ask you this stuff anyway (if they're good) and if they DON'T ask then they SHOULD ask so you'll have it for them anyway. 

Go back to day 1 and write down his milestones - when he did what, how well he did it vs. how hard it was for him, feeding concerns, motor/balance concerns, when he started crawling, walking, talking, what his first words were, what his first phrases were (if this applies - doesn't yet for my nearly 3 year old!), how he is with other kids, does he understand commands (go get your shoes!), does he do ok with transitions or unplanned outings, does he know his letters/numbers, rides a bike/trike, can he answer "where/what/why/who" questions (the why is particularly hard for kids with autism), does he have sensitivities to sound/touch/light/heat/cold/textures/light or deep pressure, does he like books and sit still for them, does he seek to engage people vs. allow himself to engage only after a lot of effort on the other persons' part...

Then write down what you feel are his greatest strengths - this can be stuff like "he's a fast learner" or "he's always happy" (cannot be understated!) or "he's very determined".  Then write down what you see as his main issues which could be "doesn't talk or understand when I talk" or "cannot participate in activities due to sensory issues". 

Make a binder with a section for speech/language, OT, PT, school evals, ABA, and whatever other therapies your kid may have received in the past or get through the school.  Then put copies of every piece of paper related to each section and bring that binder to EVERYTHING.  Also stick a super cute pic of your kiddo on the cover and have a copy of that picture for every meeting you go to for the therpist or doctor to keep so everyone sees WHO you're working for - not a faceless diagnosis, a cute kid with a name and personality! 

Ask to observe every therapy at least once, every type of potential classroom he might be placed in, and how the therapists/teachers communicate with each other and with you.  That way you can see where YOU think he'll do best b/c you know him best.  Some classrooms/therapies may fit him on paper but not HIM in person.  

Read read read.  There are so many great books on autism out there and most are also on Kindle.  Here's a link to a discussion of what books moms on this forum have enjoyed but I'm sure there are thousands more out there:)    http://www.cafemom.com/group/112775/forums/read/18321948/Literature_suggestions

dawncs
by Dawn on May. 18, 2013 at 6:55 PM
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There are some great resources that are either activities or services in your local community to help Carlos besides the school district. You might want to check out your local chapters of http://www.easterseals.org/, http://www.autism-society.org/, http://www.autismspeaks.org/, http://www.thearc.org/, http://www.specialolympics.org/, and http://www.vsarts.org/. I also recommend reading http://www.wrightslaw.com/ which is a great free resource on the education system in regards to educating a disabled child.

Dawn


Group owner of Different Learners Support Group (http://www.cafemom.com/group/118648)

lucasmadre
by Kari on May. 18, 2013 at 10:27 PM
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You could make a list of things you have noticed that made you want to have him evaluated. You could ask what you can do at home to help him prepare for school. You can ask what services are provided in your area to help him and for you too. Often there are support groups or places where you can share with other parents and he can meet kids like himself :) Good luck!!!!

darbyakeep45
by Darby on May. 19, 2013 at 3:35 PM
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Good luck mama!

dani.0809
by on May. 21, 2013 at 1:54 AM
Just getting back on but thanks everyone for the advice i appreciate it all i have thought of the list and i actually have one started ! Should i take a copy of the report from when he was first evaluated?
darbyakeep45
by Darby on May. 21, 2013 at 5:25 AM
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Definitely!

Quoting dani.0809:

Just getting back on but thanks everyone for the advice i appreciate it all i have thought of the list and i actually have one started ! Should i take a copy of the report from when he was first evaluated?


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