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Questions about getting diagnosed for Autism as an adult

Posted by on May. 31, 2013 at 11:13 PM
  • 13 Replies

I was wondering if any of you thought about getting diagnosed.  I have 2 ds diagnosed with PDD-Nos and ADHD and other disorders. They have different fathers. I've been noticing that I have similar difficulties and have had them since I can remenber ( I'm 41)  and have been to mental health clinics and doctors and they keep diagnosing depression and social anxiety, but never try to get to the root of it.  I've tried to tell them that the meds they keep putting me on don't work and they know about my sons.  Does anyone know of any testing that could be available in Pa.  I just know there's something else going on and no one will listen or give me time to explain all of the difficulties.  Any suggestions??

by on May. 31, 2013 at 11:13 PM
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Replies (1-10):
kajira
by Emma on May. 31, 2013 at 11:51 PM
1 mom liked this

I was diagnosed as an adult.... I had mislabels as a child, and medication didn't work for me. Environmental changes, understanding my self better and having support in my spouse was key for me. I don't take meds now, don't really have depression, and don't really have any anxiety issues that would be a problem at this point in my life... but being diagnosed and environmental changes were the key to that.

kinshipcaremama
by on Jun. 1, 2013 at 12:05 AM
I have also been diagnosed with anxiety and depression but I don't believe I am on the spectrum. I do believe the autism comes from my side of the family. My dad had a lot of behaviors. My grandmother's brother was institutionalized as a child and grandma's description of her brother sounded a lot like classic autism. My brother is in his mid forties and lives in a camper in my parents pasture. My mom has to remind him to shower. He gets beat up by his "friends" because he can't understand they are using him and thinks they are just "joking". I'm interested in the answers you will get to your question because I'd like to know how to help my brother get a DX. I worry what will happenwwhen my parents can't take care of him anymore.
AMom29
by Bronze Member on Jun. 1, 2013 at 12:14 AM

I'd like to get formally diagnosed; I think I'm an Aspie.  Then again, what really would it help me to do now?

A_McCool
by on Jun. 1, 2013 at 7:44 AM
1 mom liked this

I was diagnosed as an adult.  I ended up being evaluated at a local college.  They have a psychological center run by graduate students, and they are supervised by clinical psychologists.  They actually did a much more thorough job than I had expected. 

http://www.aspergersyndrome.org/Local.aspx

If you look at that link, you can find professionals in your area that can diagnose an ASD.

girl_incognito
by on Jun. 1, 2013 at 7:47 AM

I am suppose to be getting evaluated this summer. I just know the right people, through my son, so.... I am having a psychologist do the testing, one that is well versed in autism.

I have a list of different mental illnesses I was dx with, none of which I was ever formally evaluated for, but were based on a checklist. (OCD, depression, bipolar, PTSD, anxiety, etc...) The meds never worked, actually they made everything worse.... I've been seeing therapists and doctors on and off for nearly two decades. I have yet to find what the hell is so different about me, ya know?

 When my husband approached me and told me he thought I was on the spectrum, we started adjusting my life like we adjusted for our son... most things are environmentally triggered for me. Things have smoothed out... I was having multiple breakdowns a week, lots of panic attacks... once my environment was adjusted, things have decreased SO MUCH... 

I need the diagnosis because I have communication issues and it really impedes my life at this point.

lady_katie
by on Jun. 1, 2013 at 12:56 PM
1 mom liked this

I was diagnosed as an adult this past fall at the age of 28. I would recommend starting with your primary care doctor and having them refer you to an autism specialist. They absolutely need to be a specialist, or you could very well go around the misdiagnosis mountain all over again. Having a diagnosis has changed my life for the better, and I would recommend pursuing one. I've been in cognitive behavioral therapy ever since, and I'm finding it to be helpful (but certainly not a magic "cure"). I've also joined a group for women with Asperger's, which has been an incredible experience. It's such a relief to learn that I'm not completely alone in my experiences, as I once thought. 

she-ra2000
by on Jun. 1, 2013 at 2:13 PM
Sorry I don't know of any in Pa or SC. My hubby has a lot of the same symptoms and has been going through a lot these past few yrs. He was going to mh, but his anxiety has gotten so bad that he doesn't even want to go there, and same as you, the meds don't do anything. Our son was dx there, and we told them but his therapist won't dx him with it. I think it's hard to get a dx for adults, let alone they're just starting to really recognize it in children. Good luck and keep us posted.
she-ra2000
by on Jun. 1, 2013 at 2:22 PM
Lady Kate In SC it's so hard to even get in with a dev. pediatrician for my son. I asked his primary ped.for a referral and they said they faxed one in, but it can take up to 6 months for an appt., it's been a couple already. And I called the hosp. in Augusta,Ga, across the river from us, and they have a 5-6 mth waiting list too. Somethings gotta give:(
Quoting lady_katie:

I was diagnosed as an adult this past fall at the age of 28. I would recommend starting with your primary care doctor and having them refer you to an autism specialist. They absolutely need to be a specialist, or you could very well go around the misdiagnosis mountain all over again. Having a diagnosis has changed my life for the better, and I would recommend pursuing one. I've been in cognitive behavioral therapy ever since, and I'm finding it to be helpful (but certainly not a magic "cure"). I've also joined a group for women with Asperger's, which has been an incredible experience. It's such a relief to learn that I'm not completely alone in my experiences, as I once thought. 


A_McCool
by on Jun. 1, 2013 at 2:32 PM

A specialist wasn't really an option for me, either.  Luckily, a college about 25 miles from where I live has a psychological center.    

Anyway, the center was designed to mostly provide counseling and evaluations for students at the college, but they will see anyone from the surrounding area and charge on a sliding scale.

When I was searching for someone that could diagnose in my area, I stumbled across their website, and it had a list of things they are most often asked to help with.  Aspergers was on that list so I got lucky that they had at least some experience with it.


Quoting she-ra2000:

Lady Kate In SC it's so hard to even get in with a dev. pediatrician for my son. I asked his primary ped.for a referral and they said they faxed one in, but it can take up to 6 months for an appt., it's been a couple already. And I called the hosp. in Augusta,Ga, across the river from us, and they have a 5-6 mth waiting list too. Somethings gotta give:(
Quoting lady_katie:

I was diagnosed as an adult this past fall at the age of 28. I would recommend starting with your primary care doctor and having them refer you to an autism specialist. They absolutely need to be a specialist, or you could very well go around the misdiagnosis mountain all over again. Having a diagnosis has changed my life for the better, and I would recommend pursuing one. I've been in cognitive behavioral therapy ever since, and I'm finding it to be helpful (but certainly not a magic "cure"). I've also joined a group for women with Asperger's, which has been an incredible experience. It's such a relief to learn that I'm not completely alone in my experiences, as I once thought. 




lady_katie
by on Jun. 1, 2013 at 2:43 PM

It's like that here in NY for the kids too. The waiting list at the local developmental pediatrician's office is currently 2 years long. I searched for months for a specialist and came up completely empty handed. It wasn't until I saw my primary care doctor that they were able to find one for me. It turned out that there was one just 20 minutes away, but they didn't advertise anywhere so I had no way of finding them on my own. 

Quoting she-ra2000:

Lady Kate In SC it's so hard to even get in with a dev. pediatrician for my son. I asked his primary ped.for a referral and they said they faxed one in, but it can take up to 6 months for an appt., it's been a couple already. And I called the hosp. in Augusta,Ga, across the river from us, and they have a 5-6 mth waiting list too. Somethings gotta give:(
Quoting lady_katie:

I was diagnosed as an adult this past fall at the age of 28. I would recommend starting with your primary care doctor and having them refer you to an autism specialist. They absolutely need to be a specialist, or you could very well go around the misdiagnosis mountain all over again. Having a diagnosis has changed my life for the better, and I would recommend pursuing one. I've been in cognitive behavioral therapy ever since, and I'm finding it to be helpful (but certainly not a magic "cure"). I've also joined a group for women with Asperger's, which has been an incredible experience. It's such a relief to learn that I'm not completely alone in my experiences, as I once thought. 



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