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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

We started the gluten free/cassein free diet a couple months ago to see if it would help with my sons cronic constipation.  It did actually work and I was very pleased.  We stuck to the diet but now the constipation has returned.  At first I was really on top of getting him to eat fruits high in fiber.  Then i backed off a little once he was doing better so I am wondering if that is the reason for the regression.

   Has anyone ever heard of the specific carbohydrate diet.  I think its similar to gluten/cassein free but you cut out all starches.  I don't think I could go that far.

   Does anyone use probiotics or other suppliments.  What about magnesium?

THanks!!!

by on Jun. 29, 2013 at 8:21 PM
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Replies (1-10):
KatyTylersMom
by Silver Member on Jun. 29, 2013 at 8:39 PM

So that's great that he initially responded so well to the GFCF diet!  If the constipation has returned it can be for several reasons:  1) he has further food sensitivities that need to be diagnosed with allergy testing and eliminated, 2) he needs more fiber (honestly supplements are very easy to give in his water/juice drinks, we give a full dose of fiber every day to my two kids and it helps a LOT), and 3) he may have yeast and/or baterial overgrowth which is leading to the consipation - a stool test can tell you if he has bacterial overgrowth, parasites (think more protozoa not worms), or yeast overgrowth. 

I can tell you that for my son his constipation is 90% resolved by GFCF diet with additional problematic foods also removed (currently only soy, nuts, and all grains except corn).  But the 10% that's left is almost always caused by a bacterial overgrowth which is greatly helped by two probiotics (one liquid called Cytoflora and one capsule that we break open into his daily meds), fiber each and every day and keeping him on Nystatin (a gut-only yeast medication).  Without the Nystatin his yeast issue is instantly back so until his gut fully heals and his digestion is better such that his body isn't fermenting every little bit of sugar left in his intestines for more than 2 seconds, we'll stay on the Nystatin.  It cannot harm his liver or kidneys as it is not a systemic drug so that's at least good. 

As for the SC Diet yes I have heard of it and have considered doing it and may still try it sometime soon.  It's not as restrictive as you might think as it allows all the simple carbs found in natural foods (read: fruits and veggies) just no processed carbs or grains (no corn, rice, wheat, blah blah carbs).  Meats are of course just dandy as are fats and some oils (coconut is a big one they like to use, olive oil is also ok but obviously corn oil etc. are out).  Pretty sure Violet'sMom does this diet with her daughter to great effect! 

philipmommy4834
by Bronze Member on Jun. 29, 2013 at 8:53 PM

That is one of my questions should i be cutting out corn and corn products?

KatyTylersMom
by Silver Member on Jun. 30, 2013 at 1:20 AM
1 mom liked this

Please go to alletess labs and order an IgG ELISA blood test kit bc that is a great way to know what foods to avoid.  We have done the 96 food panel test for our kids and avoiding all reactive foods really helped.  

Quoting philipmommy4834:

That is one of my questions should i be cutting out corn and corn products?



brennan5882300
by Member on Jun. 30, 2013 at 7:20 AM

My son was GFCFSoyF for 2.5 years with nice results, but we saw real wows (e.g. pretend play and GI improvement) with the SCD.  He was on that strictly for 3 years.  I think in his case it really helped combat the yeast as mentioned in KatyTylersMom's post.   It was very difficult in the beginning but eventually I found it easier than GFCF. 

You may have looked at pecanbread.com for info on the SCD, but I recommend joining the pecanbread yahoo group if you seriously consider trying it--there is a ton of support there.

XSummersXmommyX
by on Jun. 30, 2013 at 7:46 AM

Ok...all I can speak from is my own experience..but I too have my daughter on a gluten/casein/preservative free diet and for her it worked very well. Along with the diet I started her on supplements...my daughters diet was VERY small to begin with but once she started the go/cf/pf diet she limited her tastes even MORE!!!!! She eats rice cakes..gf/cf chicken nuggets..and I make her smoothies with coconut milk and coconut milk yogurt, fresh fruit, and. Veggies. 

   My daughter also had real bowel problems, and I took her to pediatric GI specialist who dx'd her with "Leakey gut". The supplements helped with the constipation and her diarrhea..and even helped her BM's become regular.


  An amazing book that you really NEED to read is The Autism Book by Dr. Sears.

  The supplements I have my daughter on are : GABA, Taurine, L-Glutamine, Omega 3*6*9, DHA, EPA, probiotics, calcium/magnesium,fiber and zinc.

when giving your child supplements, and when you implement dietary intervention (ie: the gf/cf diet) you can NOT do it only a "little"....it won't work yknow? If your kid is having major constipation and its the only draw back of the diet perhaps trying a mild laxative like Miralax..could help. I used it with my DD an it helped. 

Please message me if you'd like someone to talk to :)

   ALWAYS DISCUSS changes in diet/supplementation with a GI professional, pediatric doctors or nutrionist.



philipmommy4834
by Bronze Member on Jun. 30, 2013 at 6:38 PM

Thanks everyone

VioletsMomTown
by Robyn on Jun. 30, 2013 at 7:47 PM

Yes, the SC diet has taken my daughters health to a new level. We also got stuck after several months on GFCF, it ended up being because of too much grain, starch and sugar which was still feeding yeast in the gut. It was tricky, but its just been all progress since I started it, and no more gut issues. We do probiotics and magnesium, along with many other supplements. Check out pecanbread.com or pick up the book Breaking The Vicious Cycle to read more about it. You can replace flour with coconut flour or almond flour, but unfortunately you will become Betty Crocker because you can no longer buy any premade foods, and its pretty much all made from scratch. Its so worth it though. I would recommend it to anyone, its been better for me too, no more migraines! If you have any questions, message me, we have been on this diet for almost a year now. I also have a Pinterest account under the name Autism Healer, with a ton of great grain free, dairy free and sugar free recipes.

Violet's Mom



philipmommy4834
by Bronze Member on Jun. 30, 2013 at 8:15 PM

I looked on the website and I think it is just too much for us right now.  We are going to stick with gluten and cassein free for a while.  I am still going back and forth about going to a DAN doctor or not.

KatyTylersMom
by Silver Member on Jun. 30, 2013 at 10:30 PM

100% yes on the DAN! Doctor, they are so worth it and if you get all the bloodwork run and don't feel that there is anything of medical significance that needs to be addressed then you've at least determined that your kid is healthy.  For the dietary changes really after going GFCFSF and allergy testing with eliminating any other reactive foods then it can be a gradual shift to lower carb and far fewer grains/processed foods.  While GFCFSF does have to be all or nothing, SCD can take time and finding foods that work for your family.  I think the idea is to always keep yeast and bad bacteria in mind when deciding whether to give the kids grains and carbs - a little can be ok but if your GFCFSF diet looks like wheat-replacement grain and processed food heaven then you are likely only addressing half the gut issues and adding fuel to the fire for the other half of the gut imbalances.  

Quoting philipmommy4834:

I looked on the website and I think it is just too much for us right now.  We are going to stick with gluten and cassein free for a while.  I am still going back and forth about going to a DAN doctor or not.



TheJerseyGirl
by Michele on Jul. 1, 2013 at 6:34 AM

 I have no experience with that...sorry!

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