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EEG soon... Anyone else had one?

Posted by on Jul. 14, 2013 at 8:15 PM
  • 17 Replies
Ds has an EEG at the end of the month. He has had some staring spells and many tics plus his aunt has epilepsy so they want to check him out. I'm not convinced they are seizures but I'm not sure. After reading articles online it seems so many symptoms could be normal or seizure activity. Anyone in the same position?
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by on Jul. 14, 2013 at 8:15 PM
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kinshipcaremama
by Member on Jul. 14, 2013 at 8:26 PM
My son's life skills teacher in grade school was convinced he was having absence seizures when he was younger. We had the eeg and it was negative. Its a noninvasive test, although time consuming. The hardest part for us was keeping him up all night!
Momof4AEMW
by Silver Member on Jul. 14, 2013 at 8:33 PM
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My daughter had an EEG after she had a seizure.  They just put some electrodes on her and wanted her to fall asleep so they could compare patterns while awake and asleep.  I was lucky she actually went to sleep on them.  It really wasn't that bad of a test, she didn't mind it at all.

Charizma77
by Carissa on Jul. 14, 2013 at 9:16 PM

Ashton as never had one. Good luck!

Jnc91
by Bronze Member on Jul. 14, 2013 at 11:43 PM
Quoting kinshipcaremama:

My son's life skills teacher in grade school was convinced he was having absence seizures when he was younger. We had the eeg and it was negative. Its a noninvasive test, although time consuming. The hardest part for us was keeping him up all night!


Ya his therapist is concerned his checking out is an absence seizure but it may not be. Ive only noticed it a few times. And only once that freaked me out( he was walking and talking and he stopped talking and spaced out but continued walking) but that only Happened once. Most times it in the middle of play and apparently my mom sees it happen more than me.

We live an hour + away so it'll be hard keeping him up on the drive there!
Jnc91
by Bronze Member on Jul. 14, 2013 at 11:46 PM
Quoting Momof4AEMW:

My daughter had an EEG after she had a seizure.  They just put some electrodes on her and wanted her to fall asleep so they could compare patterns while awake and asleep.  I was lucky she actually went to sleep on them.  It really wasn't that bad of a test, she didn't mind it at all.



Zachary is pretty good with doctors so we are pretty lucky. he will just ask a million questions lol. It's just a little freaky knowing that he may be having seizures we don't know about.

If you don't mind me asking.. What type of seizure did your daughter have?
Jenalide
by Member on Jul. 14, 2013 at 11:59 PM

We went through all of that at the beginning of the summer.  Although during the EEG my son did not have any seizures, they do think he is having absence seizure activity.  He has fallen to the ground once, and eyes have rolled back while sitting and playing several times.  At this time, we are continuing to watch, and will use anti-seizure meds if the duration or frequency increases, or if he falls during them again.

After the EEG, they noticed abnormal spots on his brain activity in the upper right quadrant of his brain.  That was the worst part!  He had to have an MRI after that to check for abnormalities on his brain.  The pediatric neurologist called me to tell me the results of the EEG, and to schedule the MRI.  On the phone he said, "I am not saying that I think he has a brain tumor..."  I hadn't even thought that until he said it!  That was a difficult 2 week wait to get in for that test.  Thankfully, everything is fine!

Jenn8604
by Jennifer on Jul. 15, 2013 at 12:01 AM
I've never had this w my son. He has no tics or staring spells. But he had an EEG when he was dxd w autism since so many kids also have seizures to eliminate that possibility.
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Jnc91
by Bronze Member on Jul. 15, 2013 at 1:11 AM
Quoting Jenn8604:

I've never had this w my son. He has no tics or staring spells. But he had an EEG when he was dxd w autism since so many kids also have seizures to eliminate that possibility.


I've also heard epilepsy is much more common in our kiddos ... Makes me more nervous. If I thought differentiating Stims and tics were hard, adding in seizures will make it impossible.

Zachary is SUCH a twitchy kid. Stims only really include spinning and finger running/posturing. The tic list includes(or has been a tic at one time) shoulder shrugging, eye blinks, air gulping, face grimacing, head jerking, body tensing, etc. Some of these tics could be seizure activity (simple partial seizures as they can resemble tics)
blessedhappymom
by Bronze Member on Jul. 15, 2013 at 2:24 AM
Weve had 2 eegs befor. This most recent one went well. It was an hour and ds did well. They concluded some abnormal brain waves and developmental pedi put him on anti seizure medication. It helps the brainwaves and keeps them from misfiring. Weve beeb doing the meds for about a month abd we can see a difference already. Hes present with us and his language skills are drastically improving.

Good luck with the eeg!
Mommyandliam
by on Jul. 15, 2013 at 4:35 AM
This is actually how we found my son was autistic! While at the doctor for a CLD check up, Liam froze and stared off blankly a few times. While doing so or afterwards he would twitch his eyes and/or one side of his face. This activity lead the doctor to think he was having absence seizures! He wouldn't respond to his name either. Liam was admitted to the hospital. While there they gave him anti seizure meds as well as did an EEG (those are no fun!) it showed no seizure activity. So then began the specialist...one after another! Then it became more and more clear that it was autism.

My husband had absent seizures as a child and I have an uncle with epilepsy so it was natural to start there.
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