We received my son's ASD dx over the summer after school was already out. This was after 3 years of us knowing he probably had ASD but having it denied by our normal pedi and early intervention/therapists we already had in place for speech and OT delays. So, I went over my pedi's head and took my son to a developmental pediatrician on my own for testing without a referral. And I was right.
But my question is for anyone of you that have been doing this for a while, who guides your journey now. I am at the point where I feel it is all me driven, and maybe that is how it is to be. But I feel the dev pedi basically gave me the dx, and now it's up to me to figure out where to go from here. I've searched the internet, read some books, gotten pamphlets at a local autism support place. And I'm glad there's options we never knew about: ABA, floortime program, Son-rise, biomedical, GFCF diet, suppliments, horse therapy, music therapy, art therapy, etc. But I feel like no one is helping guide which of those may really be helpful for my son. I mean right now I have no pedi, and mine before was useless on this issue. The dev pedi was really just the dx. His already in place therapists are still working on their issues but can give me little direction on this - doesn't help most of these ASD therapies do not exist for us unless I drive a minimum of an hour away. And school is out and he didn't have the dx prior so not sure if they will change anything or not to his IEP now. I'm just wondering is it just me that doesn't know who should be helping guide this journey or is it really just up to the parents to try something, if it doesn't work try something else, do all the research on our own, etc. I feel like someone with knowledge should be kind of coordinating things, making referrals and recommendations, but I really think it's just me. Anyone else have this issue?