Befor we knew Jacob had autism. He got speech 1 day a week. We did not have anyone at 1st point out that why he stopped talking. Find out he has autism. I was told by family well that better cause he will get all of this therapy now. Took him to therapy and told her he has autism. She did not say anything about not seeing him ever again. Called later to set up next week and they say no more therapy. I had run around cause they said medicaid wont pay. I called a lawyer and talked to a lady. She said if true medicaid needs to send me a letter. Talk to medicaid. he can get therapy still. Called therapy back. He was not talking so no more.Get on waiting list that is 45 minute drive. Then by time we get in its fall. She saw him a few times. But then winter. She did want his school to try a speech device.Got that on loan. The speech lady gave up after 1 day. She said it was too hard for him.We found out the next day cause had our iep meeting. We ask how it went and she said she sent it back after 1 day. He still got very little speech at school. The place out of town to long of waiting list.And she says school could help alot. So we gave up on other people helping him. I been working with my boys everyday. I think his little brother helping him learn to talk. Cause jacob is talking more. Even in summer school and he told his kindergarden teacher his colors.
I personally feel being diagnosed is a huge help - even if you dont' go through extensive and expensive therapies. Just knowing is helpful, you can change things in your life to accomodate quirks and work around them rather than trying to force your way being normal when you can't be.
I think it helps. My son was able to qualify for aba services and he got into special education preschool with his dx. With the ABA alone I have seen major improvements in my son.
I think it helps. I agree with all that has been posted ...it opens doors for interventions. But most important I have a better understanding of why my son does what he does. I can quit blaming and shaming and move on with supporting him and meeting him "where he's at"...
It allows the child to attain services he needs that he wouldn't able to without the diagnosis. That is the reason for diagnosis, not to hurt a child.
A lot of people say that the diagnosis is only important because it brings services, but I disagree. I think that there is a huge value in knowing that you are not the only one experiencing life in this way. My life was extremely confusing and difficult before being diagnosed, and I remember that I frequently described it as "being alone in a crowded room", and I didn't know why I felt that way. I thought that I was the only one, and I thought that I either did it to myself, or that I was somehow damaged. Being diagnosed has opened up the door to finding people that I can relate to and understand for the first time in my life. I'm able to give up on trying to be like everyone else, and concentrate my efforts on finding people who I'm already like - now that I know where to look.
Definitely helps. In addition to all of the services that it opens doors for, it also lets me into a community of some awesome people and some great resources that have allowed me to become a better parent, since I can understand better what makes my son do what he does sometimes.
I personally don't feel like it hurts my child personally. I know he doesn't understand right now. But it is helpful to me. I was devastated when I heard the news 3 years ago, but without it I think he would have been worse off. Knowing what I know now (which isn't a lot) the diagnosis helps me to move on and do anything and everything in my power to help educate him and people around him.
Im sad that I don't know what his future will hold and I worry his little sister will one day take a large role in his adult life but I try not to dwell on it too much. We work hard as parents to provide for our kids and without a diagnosis how can we do more? I'm not embarrassed anymore. I've grown to accept my son as he is and love him more everyday. He is my first born and only son I enjoy every moment especially all his quirks. So I feel it's helpful fr my son and especially me to know
Connect with CafeMom:
Switch to Mobile Site
Getting Started Guide
Frequently Asked Questions
Part of the CafeMom family of sites
© 2014 CMI Marketing, Inc. All rights reserved.