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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

Official Diagnosis

Posted by on Aug. 31, 2013 at 4:23 PM
  • 18 Replies

My son recently went through the evaluation and falls on the spectrum.  He was evaluated by a private innovative therapy service and hasn't been officially diagnosed by his doctor because his doctor told us to do early intervention and wait it out.  Well waiting it out means that we have to pay over 1000 a month in therapy and don't qualify for the programs that are free or low cost (except for birth to three) because we don't have a diagnosis (this is my understanding please correct me if I am wrong but this is what I was told) so should we skip what our doctor is saying and find a developmental pedatrician to get a diagnosis from since we know based on the evaluation we got privately that he falls on the spectrum.  We will have our official evaluation report in hand next week.  Any advice on what we should do? Should we wait it out? Like our pediatrician said and just do whatever therapy we can in the meantime and try to get involved in a birth to three program in the new county we wil be living in?  Should we demand to have the pediatrician evaluate him? She knows that there are concerns that is why she referred us to start birth to three to begin with.  The service we used did a global assessment by the way.


(p.s we do qualify for birth to three in our county but we are now in the middle of a move and switching everything over, however there are many more services our state offers but it is for children that have been diagnosed and we haven't been officially and with the move we also haven't been able to do the birth to three yet as we are still getting things swtiched over so we made the difficult choice to pay out of pocket for therapy for now)

He is 26 months old and he has almost all of the 9-12 month skills and some of the 12-15 month skills but not very many.  He uses 10-15 words but not reguarily, he darts back in forth over and over, he stims constantly, he doesn't make eye contact if he does its for less than a second, He doesn't communicate sentences or verbalize his needs, he has frequent temper tantrums (most 2 year olds probably do), he doens't call me mommy and never has, he allows us to cuddle sometimes but not often, he spins in circles (not as much anymore), he looks out of the corner of his eye (lower corner of his eyes), he can't transition from one thing to the next, his mind goes and he can't focus, he sometimes doesn't respond to his name (I used to think he was deaf), he seemed to be developing normal at first and then things changed, he covers his eyes and ears when its too loud or too much sensory, he is a happy child, loving, funny and full of life and based on these "symptoms" you wouldn't think so but really he really is.. some people cannot even tell.. only professional people with insight about autism can tell.  That is just a little info about him.

by on Aug. 31, 2013 at 4:23 PM
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Replies (1-10):
Stephanie88B
by on Aug. 31, 2013 at 4:26 PM

he is two years old so I know some suggest school board but I don't know if the do that for two year olds.

kajira
by Emma on Aug. 31, 2013 at 4:29 PM
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I would just demand a referral from your doctor. Tell them its not their job and if early intervention is needed, you want a developmental pediatrician to follow up while you sort this out.

If your doctor refuses, find a new doctor, or just ask for a refferal for a name from someone at the birth to three office. They should have a list of resources available too.

It's not your doctors place to tell you to "wait it out."

Stephanie88B
by on Aug. 31, 2013 at 4:49 PM

Ok, because I think the doctor feels we are jumping the gun but really she doesn't know the extent of his delays because we used a private service for evaluation because we didnt feel we should just blindly do birth to three we felt we should know what was truly going on.  I will def call after the holiday to get information on getting a referal... do we have to have one to see a developmental ped?

emarin77
by Silver Member on Aug. 31, 2013 at 5:04 PM

Have someone who is experienced at diagnosing Autism.  A child psychologist diagnosed for my son at age 3 but I've heard 2 year olds being diagnosed too.  Always ask the person who is looking over your child how much experience they have.

My son's neurologist thought our son didn't have Autism but he clearly did.  He had all the symptoms from when he was 10 months to 3 years.  When a mother knows she knows.  The earlier you start services the better for your child and your family.

Stephanie88B
by on Aug. 31, 2013 at 5:19 PM

the service that did his evaluation felt strongly he was on the spectrum but could it be that they are wrong? I listed his "symptoms" above.  I see that some people have gotten the wrond Diagnosis so I just wonder based on what I shared above does it sound like they could be wrong thinking is has Autism Spectrum Disorder

kajira
by Emma on Aug. 31, 2013 at 5:21 PM

You need to see a child specialist who can officially diagnose. It's possible he could have learning disabilities, or even early child mental illness that is causing delays, but you won't know until you've done a full screening by a specialist.

If they suspect autism, you should really have an autism specialist evaluate and diagnose him, and then you won't have to worry about what if's anymore.

thriftymom35
by on Aug. 31, 2013 at 5:32 PM
1 mom liked this

 

Quoting kajira:

I would just demand a referral from your doctor. Tell them its not their job and if early intervention is needed, you want a developmental pediatrician to follow up while you sort this out.

If your doctor refuses, find a new doctor, or just ask for a refferal for a name from someone at the birth to three office. They should have a list of resources available too.

It's not your doctors place to tell you to "wait it out."

 Waiting it out is the worst thing you can do.......we lost two yrs with an idiot pediatrician.

darbyakeep45
by Darby on Aug. 31, 2013 at 6:34 PM

Yep...totally agree with Emma on this one!  Hugs mama!

mypbandj
by Jen on Aug. 31, 2013 at 6:51 PM
Get an appointment with a developmental pediatrician and don't go off what your ped is saying. Waiting is the worst thing you can do and besides, you ped is trained in things like ear infections and immunizations. Not autism. Go to someone who specializes in the area of your concerns.
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JTMOM422
by Brenda on Aug. 31, 2013 at 9:27 PM

Your doctor is not qualified to dx your son. I would demand a referral for someone who can dx your child. if your doctor doesn't give it to you then find one who will. The earlier our children get the dx and the earlier they start therapies or treatments the better. That is why they are pushing so much on the early intervention. You are your son's biggest advocate. Fight for that testing. Welcome to the group. 

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