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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

Hey! Just found out my little guy was pdd-nos, please we need some advice!

Posted by on Jan. 13, 2014 at 12:18 PM
  • 9 Replies

Hello everyone! My 5 yr old was just diagnosed with pdd-nos, add/adhd, and the adjustment disorder.. They suggested at home therapy for him, and gave us the butterfly effetcs, or the may institute as a suggestion...but im not sure who to call. :( can anyone give me some advice please? We're in the jacksonville, NC area.

by on Jan. 13, 2014 at 12:18 PM
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Replies (1-9):
amonkeymom
by Amy on Jan. 13, 2014 at 1:36 PM

I don't have any advice for you, but maybe this will help: 

State-by-State Resources: Find information on intervention, health services, advocates, and much more for your state: http://www.autismspeaks.org/community/fsdb/search.php?chgst=true

JTMOM422
by Brenda on Jan. 13, 2014 at 1:46 PM

Welcome to the group. I have not heard of either of these groups. I am going to guess that they are therapy groups. I would google them and find who has the best rating from actual parents. I am in Tn so I can't be a lot of help sorry

JTMOM422
by Brenda on Jan. 13, 2014 at 1:46 PM

Amy has some good advice about checking out Autism speaks

tictacmama
by Arlea on Jan. 13, 2014 at 2:08 PM

There is a chat group called "My Autism Team" also. It's parents of autistic children helping each other. You could reach out to parents in the NC area on there or you could also look up places that are recommended through the site. Good luck, welcome to the group, and remember to take it a day at a time. I know it can be overwhelming at first.

dawncs
by Dawn on Jan. 13, 2014 at 5:03 PM

Welcome to the group! Congratulations on his recent diagnosis! It is good he was diagnosed early even though it does not seem like it right now. It does help him reach his full potential in life. You need to request from his school or your local school district an evaluation for Special Education services (http://www.wrightslaw.com/) if you have not done so in the past because it is free. I also recommend checking out http://www.autism-society.org/ and http://www.autismspeaks.org/.  For outside Autism stuff, I recommend http://www.thearc.org/ and http://www.specialolympics.org/.

Lumbeediva
by on Jan. 14, 2014 at 8:51 AM

Thanks everyone :) We always knew there was something slightly off about him but we just thought he was a little quirky lol It wasnt until he hit his little sister in the face over messing up his puzzle that we knew we needed to have him seen. We're a military family so we have a ton of resources around here. Im just trying to figure out the best route to take with him. Getting him enrolled into our special program through the military has been a pain trying to track down all the stuff to get signed but we're getting there. My husband is just returning home from afghanistan so it has been a huge adjustment for all of us but mostly him. We are trying to take it one day at a time :)

dawncs
by Dawn on Jan. 14, 2014 at 8:56 AM

 You have among the best health insurance plans through the military. I recommend staying in the military as long as you can. I know this from a friend who's son I practice with Special Olympics. I know the deployments are bad at times.

Quoting Lumbeediva:

Thanks everyone :) We always knew there was something slightly off about him but we just thought he was a little quirky lol It wasnt until he hit his little sister in the face over messing up his puzzle that we knew we needed to have him seen. We're a military family so we have a ton of resources around here. Im just trying to figure out the best route to take with him. Getting him enrolled into our special program through the military has been a pain trying to track down all the stuff to get signed but we're getting there. My husband is just returning home from afghanistan so it has been a huge adjustment for all of us but mostly him. We are trying to take it one day at a time :)

 

Macphee
by Bronze Member on Jan. 14, 2014 at 11:27 AM
Welcome to the group. Butterfly effects is a behavioral therapy provider. My son has that diagnosis since 2010. Early detection is the best step, because intervention services helps catch up
jaydensmom1726
by Bronze Member on Jan. 14, 2014 at 11:52 AM

i know this sounds weird but call your local infant toddler program and they should be able to point you in the right direction

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