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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

The results and the interpretations are as complicated as your kid!

Posted by on Feb. 14, 2014 at 5:29 PM
  • 24 Replies

That is what the OT told us this morning when she came to discuss the scoring of the sensory test. It was just a  questionary that we had to fill out, and identical questionary was filled out by his daycare teachers. The good news is, we gave identical answers to most of the questions.

According to the scores, DS does have some sensory issues, though the "out of normal range" scores were not very far from the normal. But all makes sense! DS falls under "low registration" and "sensory seeking". OT will be giving us tips of  how to give him appropriate sensory input so he stay awake and focused.

Currently DS gets OT once a week, the therapist goes to the daycare. And that is great, because she sees DS in a social setting and tries to help his social skills (that is really what he lacks the most). She has been there several times now. She agrees that DS displays some Asperger's behavior and thinks we are doing the right thing by getting him evaluated.

Now what worries me is the following. OT also talked about options after DS ages out of EI (he turns 3 middle of July), if he still needs therapies. Where we live there are no resources for kids like DS. She is pretty certain he would not qualify for therapy through the public school system. And there aren't  private therapy options either. We will have to travel for at least 75 miles! Will do if I have to, of course. But another thing is, finances. How much do private therapies cost? I beleive we will have to pay out of pocket. And we don't really have much. Both me and DH are still grad students. We have some savings, but I suspect it won't last long.

I am sorry this got long. I just needed to talk to someone. And I do have a question, if you don't mind sharing. How much private therapies can cost? Hit me, ladies!

Oh, one more question. Does anyone have experience with summer SPD schools? OT mentioned there may be some organized this summer. What was your experience? And again, how much did that cost you?

Thank you ladies, and I apologize again for this long post. I just don't know how ti synthesize things better, I guess.

I hope you all are having a great Valentine's day!

by on Feb. 14, 2014 at 5:29 PM
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Replies (1-10):
jowen905
by Jan on Feb. 14, 2014 at 6:42 PM

 Happy Valentine's Day to you, too!  My 12 year old with HFAD doesn't quality for services in school (though we're in the process of fighting that determination).  Right now he attends a social skills group - $540 for 12 weeks (one hour a week) at a private OT facility near our home.  We've had one-on-one therapy for him at the same place and it's $85 per hour.  Cha-ching, we pay out of pocket, this facility doesn't accept our insurance.  Cost will vary, depending where you live, also.  A lot of these moms have younger children, so they can give you more information.  Best of luck to you!

Momof4AEMW
by Gold Member on Feb. 14, 2014 at 10:42 PM

I understand your worries.  Therapies are expensive!!!  If my kids did not have medicaid, I could not do it for three.  Now, remember when you read my therapy costs that I have triplets, so obviously it would be less for one child.  And this amount includes (in 1 month) 12 speech therapy sessions, 12 OT sessions, and 4 PT sessions, but if I had no insurance coverage it would be in the $8000 range.  Even with insurance with $40 co-pay per session it would be $1120 for us.

I hope you can find out a way to get school services or something.  Good luck!

samomama
by Sally on Feb. 14, 2014 at 10:47 PM

$85 per hour. Wow that's high. The social skills group cost, we could handle that. I will be thankful if we find such therapies available. Thanks for sharing! 

Quoting jowen905:

 Happy Valentine's Day to you, too!  My 12 year old with HFAD doesn't quality for services in school (though we're in the process of fighting that determination).  Right now he attends a social skills group - $540 for 12 weeks (one hour a week) at a private OT facility near our home.  We've had one-on-one therapy for him at the same place and it's $85 per hour.  Cha-ching, we pay out of pocket, this facility doesn't accept our insurance.  Cost will vary, depending where you live, also.  A lot of these moms have younger children, so they can give you more information.  Best of luck to you!


TheJerseyGirl
by Michele on Feb. 14, 2014 at 11:01 PM

 Why does she think he wouldn't qualify? What you need is testing and recommendations from a pediatric specialist in SPD, PDD or ASD and get the ball rolling with your public school. He will then be able to attend preschool there and get whatever therapies they offer FREE.

My son is almost 13 and back then nothing was paid for so he only got therapy thru school, which stunk. We never paid for private therapy. But insurances a re better now so maybe there is something or part of it they pay for.

I tried the Summer school (ESY)  his first year thinking it would be fun but it was awful...just awful. We lasted a day and not even a full one! BUT that is OUR school system so don't take my word for it...you need to really see for yourself and see if it's something that makes you feel good about sending him.

Hope you had a happy Valentine's Day!

samomama
by Sally on Feb. 14, 2014 at 11:04 PM

OMG, I am so glad you have medicaid! We are in a screwd up range of income. We don't make much, but we make just a little too much to qualify for medicaid or for another financial assistance. Therapies are so expensive! I hope in the future that changes ... Anyways, thanks for sharing! We will do what  we have to for DS to get what he needs. 

Quoting Momof4AEMW:

I understand your worries.  Therapies are expensive!!!  If my kids did not have medicaid, I could not do it for three.  Now, remember when you read my therapy costs that I have triplets, so obviously it would be less for one child.  And this amount includes (in 1 month) 12 speech therapy sessions, 12 OT sessions, and 4 PT sessions, but if I had no insurance coverage it would be in the $8000 range.  Even with insurance with $40 co-pay per session it would be $1120 for us.

I hope you can find out a way to get school services or something.  Good luck!


lillettemomma
by on Feb. 14, 2014 at 11:11 PM
I am about 6 months ahead of your situation and unfortunetly all your fears we are going thru..... odd turned 3 in December. ... before that she was getting 12 hours a week of therapy thru EI..... we had her evaled by the school and she was denied services.... private therapy isn't an option really for us so we are fighting the school system to giver her the recommended placement.... we have to do a bunch of independent evals through tufts hospital if we can convince the school system to pay for it (by law they have to cover evals bit they can deny a specific hospital for a cheaper one)....and then we have to travel about an hour for the evals.... she has a diagnosis of autism spd and speech disorder as well as failure to thrive allergies and stomach problems....
samomama
by Sally on Feb. 14, 2014 at 11:18 PM

She thinks he won't qualify because he is highly verbal. Self help, also good. His issues are possible SPD and he's socially off. As long as his quirks don't present a problem for him to advance academically, he won't qualify for any help. That is what she said, anyways. I am not 100% sold and we will for sure do the testing and see if qualifies for anything. But my other worry is the quality of serveces through the school system, even if he qualifies. I heard all the SN kids are in 1  pile, regardless of their different needs and abilities. I have a friend who left her job here because she didn't find apprpriate school for her then 10 y. old Aspie. That was 3 years ago, and no services for HFA kids were available, no aids to help them.

We do have the ball rolling. We are on a waiting list for evaluation. I hope we get a date as soon as he turns 3. From there we will see what we'll be looking at. I am hoping we get a chanse to move to another state where there are better service options. NM is not a good spot for SN kids for sure.

Thank you!

Quoting TheJerseyGirl:

 Why does she think he wouldn't qualify? What you need is testing and recommendations from a pediatric specialist in SPD, PDD or ASD and get the ball rolling with your public school. He will then be able to attend preschool there and get whatever therapies they offer FREE.

My son is almost 13 and back then nothing was paid for so he only got therapy thru school, which stunk. We never paid for private therapy. But insurances a re better now so maybe there is something or part of it they pay for.

I tried the Summer school (ESY)  his first year thinking it would be fun but it was awful...just awful. We lasted a day and not even a full one! BUT that is OUR school system so don't take my word for it...you need to really see for yourself and see if it's something that makes you feel good about sending him.

Hope you had a happy Valentine's Day!


Momof4AEMW
by Gold Member on Feb. 14, 2014 at 11:26 PM

Yes, me too.  We couldn't do it all without.  I actually quit my job after they were born because of the triplets needs, and have not been able to return.  But if I did go back to work, we wouldn't qualify either.  Since two of the 3 are on waivers they would keep their medicaid, but the 3rd would not.  It is just so expensive!!  Seems like all services for special needs kiddos are!!

Quoting samomama:

OMG, I am so glad you have medicaid! We are in a screwd up range of income. We don't make much, but we make just a little too much to qualify for medicaid or for another financial assistance. Therapies are so expensive! I hope in the future that changes ... Anyways, thanks for sharing! We will do what  we have to for DS to get what he needs. 

Quoting Momof4AEMW:

I understand your worries.  Therapies are expensive!!!  If my kids did not have medicaid, I could not do it for three.  Now, remember when you read my therapy costs that I have triplets, so obviously it would be less for one child.  And this amount includes (in 1 month) 12 speech therapy sessions, 12 OT sessions, and 4 PT sessions, but if I had no insurance coverage it would be in the $8000 range.  Even with insurance with $40 co-pay per session it would be $1120 for us.

I hope you can find out a way to get school services or something.  Good luck!


 

samomama
by Sally on Feb. 14, 2014 at 11:46 PM

I can't believe they deny her services with all those diagnoses. Something doesn't sound right there. I do hope you win the fight!!! Yes, I see us there in about half a year.

Quoting lillettemomma: I am about 6 months ahead of your situation and unfortunetly all your fears we are going thru..... odd turned 3 in December. ... before that she was getting 12 hours a week of therapy thru EI..... we had her evaled by the school and she was denied services.... private therapy isn't an option really for us so we are fighting the school system to giver her the recommended placement.... we have to do a bunch of independent evals through tufts hospital if we can convince the school system to pay for it (by law they have to cover evals bit they can deny a specific hospital for a cheaper one)....and then we have to travel about an hour for the evals.... she has a diagnosis of autism spd and speech disorder as well as failure to thrive allergies and stomach problems....


Bobcatridge
by Carol on Feb. 15, 2014 at 11:33 AM

We do private therapy and pay for it ourselves.  We are rural and there are few if any therapists that are in-network for our insurance.  We pay $85/weekly social skills group therapy.  Sometimes we have additional private sessions with the social skills therapist for the cost of $100/session.  The cognitive behavior therapist is $150 per weekly session.  The cognitive behavior therapist is worth every penny.  The social skills group and therapist - well not as quality.  We have also done art therapy group at about $90/weekly session.

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