I guess things could def be worse. As most of you know we spent a week at children's hosp of Philadelphia. I keep having to bring Samuel to his ped as he isn't improving. Last night was our 3rd visit to the dr. Samuel is wheezing, coughing, and has horrible diarrhea with a diaper rash now. The dr switched his formula once again to soy and told me to add rice cereal. His Zantac is increased to 3x a day. We got new butt creams. His lungs sounds have worsened so he gave us albuterol with a Nebulizer. He has gained a few ounces so I'm grateful. We are being referred to GI specialist at chop now. The Nebulizer went horribly wrong. He was gittery which I expected as Ryan was on albuterol as well but it made his tic worse so I had to stop it. Well Samuel was hysterical for 20min after his treatment. He couldn't catch his breath. Samuel seriously never cries so it was so hard to see. We tried one more treatment and it went the same. I called the dr and he said to stop. So now I'm just doing his chest PTs and we go back for a weight check. Through all of this Samuel is a fighter who still smiles. I'm truly lucky to have him. Thank you all for your prayers and support while Samuel was in the hospital and now too.