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Pretty pissed at my pediatrician!

Posted by on Mar. 12, 2014 at 2:01 AM
  • 16 Replies

I specifically went in to go see my pediatrician to have my daughter checked for autism and not only did he not do the Denver test that they used but he blamed her tantrums on me slacking on discplining her and dismissed my autism concerns.  He has seen her for her ENTIRE life and yet even after I mentioned her hand flapping, which is like the number one warning sign of autism given that she was over 3 yrs old at the time and is expected to have matured out of that by then, he STILL dismissed it!  I ignored his diagnosis and did the follow-up evaluation with our early intervention team and they said that she was definitely on the spectrum and even recommended intensive pre-k for her to start immediately!  I am going to find another pediatrician for her and also one with more understanding of kids with ASD but was wondering whether you would take it a step farther and file a complaint with the medical board?  How many other children could he have let slip through his fingers with this disability and are not getting the help they need because the parents took him at his word??!

by on Mar. 12, 2014 at 2:01 AM
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Replies (1-10):
darbyakeep45
by Darby on Mar. 12, 2014 at 7:12 AM
1 mom liked this

Personally, I'd find a new pediatrician and move on.  Focus on the future.  Good luck!

Momof4AEMW
by Platinum Member on Mar. 12, 2014 at 9:11 AM

De ja vu!!!  Our pedi denied me for 3 years that my son could have ASD,  I finally went around her, made my own developmental pedi appt, and asked for eval.  That doc said within 5 minutes of reading his paperwork she knew he had it before even meeting him.  Mama's most times are right.  I'd ask for a developmental pedi referral, and then find a new regular pedi.  I for one know the diagnostic journey can be a long one and sucks.  Just hang in there and stand your ground.  Hugs!!!

alexmom826
by on Mar. 12, 2014 at 9:52 AM

Our old Ped was the same way. We fought with them for 3 weeks along with me going to there office bitching them out about NOT doing anything. After that we found a great Ped and he was tested and diagnosed within 2 weeks and next month we are going for our IEP.

mypbandj
by Jen on Mar. 12, 2014 at 10:14 AM
Just as an FYI, the Denver test is actually considered dead to all early childhood professionals. I used to be certified to administer it as it was a requirement of my job but there is nobody out there keeping up with it (lots of studies and testing are required to keep the test "normed" or otherwise valid) and since that isn't being done anymore, the screening is considered dead or non-valid. Now we use the ASQ-3 and ASQ-SE.

My pediatricians office actually still uses it though. Actually many ped's in my town do. It's kind of irritating.

The other thing is that the Denver is no good at detecting ASD. It's all that was done on my oldest son and ASD was never detected. I had to figure it out on my own and it took till age seven to get a Dx of aspergers.

I guess I don't really put too much faith into a pediatrician past letting them diagnosis ear infections and rashes, ya know?

I'm sorry you had that poor experience. I will give kudos to my ped who referred me to a neurogist for Liam when I brought up ASD concerns. I'm glad he was able to admit that was not his "thing."

It makes me so mad when ped's try to assure parents there is nothing to worry about when they actually have no idea.

Have you considered taking her to a neuropsychologist? Or a devopmental pediatrician? Was she tested by the school district?
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SamMom912
by Platinum Member on Mar. 12, 2014 at 10:27 AM

thats an issue with a lot of pediatricians... thats why you need a developmental pediatrican. We had that same issue... im sorry. it sucks. My OLD ped office had a neurologist IN her practice that Dxd Sam as ASD, and STILL for 2 years after she would say "i just DONT see it.".... and Id say.. well, for the TOTAL of 2 hours you see him a YEAR, its NOT really YOUR call... until the day she FLAT out insulted me, she was our ped.... it was a waste of my time and Im mad I stayed so long...
But no, I think it is a typical mistake for PEOPLE in general to make... so in essence, youd be wasting your breath. YOU may want to write a letter suggesting he just direct parents asking him THOSE questions to get a second opinion... but I think thats the BEST your going to do. This isnt malpractice..
Move on- focus on your little girl...

Bobcatridge
by Carol on Mar. 12, 2014 at 11:01 AM

Our pediatrician was no help in getting our daughter diagnosed.  The whole pediatrician's office staff recognized our daughter was different but there was never even a suggestion that we get her tested.  No referrals - nothing.  I think they just aren't qualified or don't feel qualified to diagnose the problems in that area.  I think asking for a referral is sometimes possible but in your case I would find another source to test her on your own. The suggestions of going to a neuropsychiatrist or developmental pediatrician are good options.

MixedCooke
by Group Admin on Mar. 12, 2014 at 11:35 AM
Yes she was tested by the school district so they only give a generalized ASD diagnosis rather than specifically identifying which type. I'm still overwhelmed with the whole thing because what they had issues with I did not. I've even considered home-schooling her myself and becoming a stay-at-home Mom. I just have had a really hard life and I just wish for once I would be cut a break instead of constantly being dragged back down again and again and again!

Quoting mypbandj: Just as an FYI, the Denver test is actually considered dead to all early childhood professionals. I used to be certified to administer it as it was a requirement of my job but there is nobody out there keeping up with it (lots of studies and testing are required to keep the test "normed" or otherwise valid) and since that isn't being done anymore, the screening is considered dead or non-valid. Now we use the ASQ-3 and ASQ-SE. My pediatricians office actually still uses it though. Actually many ped's in my town do. It's kind of irritating. The other thing is that the Denver is no good at detecting ASD. It's all that was done on my oldest son and ASD was never detected. I had to figure it out on my own and it took till age seven to get a Dx of aspergers. I guess I don't really put too much faith into a pediatrician past letting them diagnosis ear infections and rashes, ya know? I'm sorry you had that poor experience. I will give kudos to my ped who referred me to a neurogist for Liam when I brought up ASD concerns. I'm glad he was able to admit that was not his "thing." It makes me so mad when ped's try to assure parents there is nothing to worry about when they actually have no idea. Have you considered taking her to a neuropsychologist? Or a devopmental pediatrician? Was she tested by the school district?
mypbandj
by Jen on Mar. 12, 2014 at 11:50 AM
Hugs!! I'm glad she qualified for preschool though. That is a start. What were the schools concerns? Do you disagree with them?

Quoting MixedCooke: Yes she was tested by the school district so they only give a generalized ASD diagnosis rather than specifically identifying which type. I'm still overwhelmed with the whole thing because what they had issues with I did not. I've even considered home-schooling her myself and becoming a stay-at-home Mom. I just have had a really hard life and I just wish for once I would be cut a break instead of constantly being dragged back down again and again and again!

Quoting mypbandj: Just as an FYI, the Denver test is actually considered dead to all early childhood professionals. I used to be certified to administer it as it was a requirement of my job but there is nobody out there keeping up with it (lots of studies and testing are required to keep the test "normed" or otherwise valid) and since that isn't being done anymore, the screening is considered dead or non-valid. Now we use the ASQ-3 and ASQ-SE. My pediatricians office actually still uses it though. Actually many ped's in my town do. It's kind of irritating. The other thing is that the Denver is no good at detecting ASD. It's all that was done on my oldest son and ASD was never detected. I had to figure it out on my own and it took till age seven to get a Dx of aspergers. I guess I don't really put too much faith into a pediatrician past letting them diagnosis ear infections and rashes, ya know? I'm sorry you had that poor experience. I will give kudos to my ped who referred me to a neurogist for Liam when I brought up ASD concerns. I'm glad he was able to admit that was not his "thing." It makes me so mad when ped's try to assure parents there is nothing to worry about when they actually have no idea. Have you considered taking her to a neuropsychologist? Or a devopmental pediatrician? Was she tested by the school district?
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MixedCooke
by Group Admin on Mar. 12, 2014 at 11:54 AM
That she doesn't make eye contact-she does with us. I even have a "crazy eyes" game that she LOVES! Initiating play, she does more of it lately. I do agree as far as her not having a vocabulary comparable to her age regarding sentence use.

Quoting mypbandj: Hugs!! I'm glad she qualified for preschool though. That is a start. What were the schools concerns? Do you disagree with them?

Quoting MixedCooke: Yes she was tested by the school district so they only give a generalized ASD diagnosis rather than specifically identifying which type. I'm still overwhelmed with the whole thing because what they had issues with I did not. I've even considered home-schooling her myself and becoming a stay-at-home Mom. I just have had a really hard life and I just wish for once I would be cut a break instead of constantly being dragged back down again and again and again!

Quoting mypbandj: Just as an FYI, the Denver test is actually considered dead to all early childhood professionals. I used to be certified to administer it as it was a requirement of my job but there is nobody out there keeping up with it (lots of studies and testing are required to keep the test "normed" or otherwise valid) and since that isn't being done anymore, the screening is considered dead or non-valid. Now we use the ASQ-3 and ASQ-SE. My pediatricians office actually still uses it though. Actually many ped's in my town do. It's kind of irritating. The other thing is that the Denver is no good at detecting ASD. It's all that was done on my oldest son and ASD was never detected. I had to figure it out on my own and it took till age seven to get a Dx of aspergers. I guess I don't really put too much faith into a pediatrician past letting them diagnosis ear infections and rashes, ya know? I'm sorry you had that poor experience. I will give kudos to my ped who referred me to a neurogist for Liam when I brought up ASD concerns. I'm glad he was able to admit that was not his "thing." It makes me so mad when ped's try to assure parents there is nothing to worry about when they actually have no idea. Have you considered taking her to a neuropsychologist? Or a devopmental pediatrician? Was she tested by the school district?
emarin77
by Gold Member on Mar. 12, 2014 at 12:15 PM

I understand your anger but the best to diagnose are doctors or psychologists that specialise in diagnosing Autism.

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