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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

Hi and help!

Posted by on Apr. 3, 2014 at 6:19 PM
  • 5 Replies
Hi all. My name is Jess and it has recently been brought to my attention that my son may have Aspergers or be some where on the spectrum so we were referred to the Autism clinic by us. Some of his behaviors include horrific melt downs, self hitting (punching), need for a strict routine, not wanting to be touched unless he initiates, social awkwardness and missed social cues. The biggest being the unpredictable melt downs and self harm.

I am up against a lot of people who seem to think my son's behavior will pass with time (he is 6). My ex thinks I am making it all up (even though these behaviors happen at his house as well). But, I lnow these extreme behaviors are not normal.

Today was his worst melt down yet. He was full fisted punching himself and when I tried to calm him he turned on me and started punching me, then the dog. I am at a loss and just want help for my son. I do have a dear friend helping me as she has two Aspergers children herself. How did those of you who had opposition stay strong? What steps did you take to get your child help? I feel so lost.
by on Apr. 3, 2014 at 6:19 PM
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Replies (1-5):
dawncs
by Dawn on Apr. 3, 2014 at 7:02 PM

 Welcome to the group! You have to realize it is normal for some to believe a child is normal if they had the same characteristics growing up. In addition, he is not facing the day to day struggles you face with him. I recommend http://www.wrightslaw.com/, http://www.autismspeaks.org/, http://www.aspergersyndrome.org/, and http://www.thearc.org/.

november117
by on Apr. 3, 2014 at 7:22 PM
Thank you! I will look at these.

Quoting dawncs:

 Welcome to the group! You have to realize it is normal for some to believe a child is normal if they had the same characteristics growing up. In addition, he is not facing the day to day struggles you face with him. I recommend http://www.wrightslaw.com/, http://www.autismspeaks.org/, http://www.aspergersyndrome.org/, and http://www.thearc.org/.

Momof4AEMW
by Gold Member on Apr. 3, 2014 at 7:22 PM
1 mom liked this

Well, first of all you've come to the right place.  This is a great supportive group and can help you through anything.  The opposition I ran into was our pedi, original teacher, therapists, and initial psych that did not feel my son had ASD.  We saw it for 3 years before it was finally recognized by his teachers and finally a developmental pedi that then said it was so obvious she did not see why it had been missed, and then the therapists came around.  We also had/have some grandparents that were very resistant to seeing it. It does not feel good to not have the support  from key people and disagree with those close, but I just forged on through as it was what my son needed.  We mamas know our kids, follow your instincts.  You're probably right.  Hugs Mama!!  Let us know how the appt goes!

november117
by on Apr. 3, 2014 at 7:35 PM
Thank you! My mil is supportive as she is a counselor who works with kids who have developmental issues. My step mil runs a center for kids with Autism/who are on the spectrum and is willing to help as well. I am not sure it is aspergers but that is the thing his behaviors point closest to. My ex is the most resistant as he believes this behavior is all my fault. That my home is unloving and unstable. Cps has been here twice and he even went as far as to file criminal charges against me for child abuse. All, obviously, untrue. He takes his personal vendetta against me out through our son unfortunately and I feel he is part of the problem. I

Quoting Momof4AEMW:

Well, first of all you've come to the right place.  This is a great supportive group and can help you through anything.  The opposition I ran into was our pedi, original teacher, therapists, and initial psych that did not feel my son had ASD.  We saw it for 3 years before it was finally recognized by his teachers and finally a developmental pedi that then said it was so obvious she did not see why it had been missed, and then the therapists came around.  We also had/have some grandparents that were very resistant to seeing it. It does not feel good to not have the support  from key people and disagree with those close, but I just forged on through as it was what my son needed.  We mamas know our kids, follow your instincts.  You're probably right.  Hugs Mama!!  Let us know how the appt goes!

Momof4AEMW
by Gold Member on Apr. 3, 2014 at 7:43 PM

What great resources for you in your MILs.  Sorry about your ex.  Sounds like a not great situation.  hope it improves!!  Hugs! 

Quoting november117: Thank you! My mil is supportive as she is a counselor who works with kids who have developmental issues. My step mil runs a center for kids with Autism/who are on the spectrum and is willing to help as well. I am not sure it is aspergers but that is the thing his behaviors point closest to. My ex is the most resistant as he believes this behavior is all my fault. That my home is unloving and unstable. Cps has been here twice and he even went as far as to file criminal charges against me for child abuse. All, obviously, untrue. He takes his personal vendetta against me out through our son unfortunately and I feel he is part of the problem. I
Quoting Momof4AEMW:

Well, first of all you've come to the right place.  This is a great supportive group and can help you through anything.  The opposition I ran into was our pedi, original teacher, therapists, and initial psych that did not feel my son had ASD.  We saw it for 3 years before it was finally recognized by his teachers and finally a developmental pedi that then said it was so obvious she did not see why it had been missed, and then the therapists came around.  We also had/have some grandparents that were very resistant to seeing it. It does not feel good to not have the support  from key people and disagree with those close, but I just forged on through as it was what my son needed.  We mamas know our kids, follow your instincts.  You're probably right.  Hugs Mama!!  Let us know how the appt goes!

 

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