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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

Autism Suspected

Posted by on May. 3, 2014 at 2:05 AM
  • 7 Replies
Hello my name is Jessica and I'm the mother of a beautiful 2 year old girl named Haven. For the past year we have had issues with her sleeping and what we thought were night terrors. She would wake up and start these fits of blood curdling screams and crying, sometimes looking like she was having a seizure. They began getting more frequent and worse. We went to our pediatrician and talked to him about it. While in the office we had a meltdown, wether it was the car ride down (we live a rural area and takes 30 minutes to get to office) or what, the doctor talked to us about her possibly being autistic. We are being referred to a specialist which is scheduling out into the fall. We just suspected her meltdowns during the day were caused by terrible twos. They would be brought on by not getting her way or something not going as planned. We just suspected she was going through the terrible twos. Not everyday was like this. We would go days without any incident, both night and day. Her language, we felt was normal, making sentences and knowing site words then the next minute babble. She is so smart when it comes to everything else, loves children, loves to sing and dance and play pretend. Of course now that we were told this we see both sides of line with being autistic and not. I have searched the internet more times than not in the last few days since this suspected diagnosis has come to us. I was hoping and wondering if any mother has any advice or their child was similar to mine in the early stages leading to diagnosis. Thank you for your time.

Jessica
by on May. 3, 2014 at 2:05 AM
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Replies (1-7):
darbyakeep45
by Darby on May. 3, 2014 at 6:48 AM
1 mom liked this

Welcome mama!  Love her name:)

Have you had her evaluated by a developmental pediatrician yet?  That would be your first move.  Good luck!

SamMom912
by Gold Member on May. 3, 2014 at 7:31 AM
1 mom liked this

My son who is 7 was a lot like your little one. His language was always great. Spoke at 9 months with mom, ball, pup.. And by almost 2 was speaking in full sentences. He does like other children, but by 3.5 his play didnt progress along with theirs, He had difficulty with rigid thinking, unmet expectations, and this got in his way in daily life as well as the flexibility needed to interact with others as he is easily frustrated and then has difficulty calming himself down. My son also around 3 started showing sensory issues which also had an effect on him. Playgrounds became too crowded, noisy and chaotic and he was uncomfortable. Other children were unpredictable, and he was smart enough to avoid situations that were uncomfortable for him. Preschool had a few bumps of again, delayed social navigation and misinterpretations of others. His fine motor and gross motor skills have always been delayed, so he is clumsy and writing is a big challenge for him. In that, physically playing with the other boys presents a challenge, since he cant keep up, is off balance, and other boys bump and push for fun.. And Sam easily falls, gets hurt, has difficulty calming down,, and a light bump or brush feels like a full on attack... 

I def. Suggest you see a dev pediatrician for a full eval. I will say, at 3.5 we recieved a diagnosis of aspergers, which is no longer in the DSM. Its all falls under high functioning autism. 

jlldas
by on May. 3, 2014 at 9:01 AM
Thank you ladies, we are on a waiting list for the specialist in Latham New York, but they are scheduling out into the fall so we are on cancellation list. I can't believe we would have to wait this long, I was very upset with this. In meantime we are being referred to a pediatric neurologist and a sleep study clinic, at our request. Our pediatrician also requested that she start an anti-seizure medication. Have you or anyone else heard of this? He said it was off her 'rage' but I'm not one for meds and basically drugging my child through life. We were very confused by this. We both have extensive medical backgrounds and spoke to some of the doctors my boyfriend (her father) work with. They were beyond confused and strongly urged us not to give her any medication until we have a full diagnosis. It's just so much to take in all at once. She loves children, loves being in public, has no issues so far with changes/textures/sounds. This will be our third time seeing a specialist with her after being seen by this pediatrician. When she was born he said she had a hole in heart which turned out to be her PDA wasn't fully developed yet, then we saw an endocrinologist for precocious puberty which was also not diagnosed. Now this. Could the physician really see this in her or just being over cautious? He state she had suspected this for a year now, why wait to say something now, when we could be already seeing the specialist. Sorry for the side rant. We have yet to tell a lot of people besides our family until we have a diagnosis. Thanks again for the responses, you both are amazing women/mothers :) <3
SamMom912
by Gold Member on May. 3, 2014 at 9:16 AM

Have you tried melatonin as a sleep aide? 

Quoting jlldas: Thank you ladies, we are on a waiting list for the specialist in Latham New York, but they are scheduling out into the fall so we are on cancellation list. I can't believe we would have to wait this long, I was very upset with this. In meantime we are being referred to a pediatric neurologist and a sleep study clinic, at our request. Our pediatrician also requested that she start an anti-seizure medication. Have you or anyone else heard of this? He said it was off her 'rage' but I'm not one for meds and basically drugging my child through life. We were very confused by this. We both have extensive medical backgrounds and spoke to some of the doctors my boyfriend (her father) work with. They were beyond confused and strongly urged us not to give her any medication until we have a full diagnosis. It's just so much to take in all at once. She loves children, loves being in public, has no issues so far with changes/textures/sounds. This will be our third time seeing a specialist with her after being seen by this pediatrician. When she was born he said she had a hole in heart which turned out to be her PDA wasn't fully developed yet, then we saw an endocrinologist for precocious puberty which was also not diagnosed. Now this. Could the physician really see this in her or just being over cautious? He state she had suspected this for a year now, why wait to say something now, when we could be already seeing the specialist. Sorry for the side rant. We have yet to tell a lot of people besides our family until we have a diagnosis. Thanks again for the responses, you both are amazing women/mothers :) <3


Logansmom1999
by Kristina on May. 3, 2014 at 9:17 AM
1 mom liked this

Hi Jessica,

I am originally from Saratoga, NY. My son had more dire symptoms than Haven. My daughter on the other hand is high functioning and her early signs were very close to those of your daughter. That is not to mean that your daughter is definitely on the spectrum. You are kind of at the mercy of the dev ped schedule. All you can do is take things one day at a time.

My biggest piece of advice is that she is still the same little girl you know and love...with or without a diagnosis. If you do get an ASD diagnosis, it is not the end of the world. You will just know a little bit more about your beautiful daughter. {{{HUGS}}}

~Kristina
jlldas
by on May. 3, 2014 at 9:58 AM
Yes, she takes melatonin 3mg before bed and when she wakes up again we were told to give her another 3mg. It worked for a while, but she hasn't slept through the night since she was born. We thought maybe it was the milk at night we were giving her, so switched to juice. She loves her diary though. We were told if anything she would be on the low spectrum of things. Still not fully understanding how the spectrum works. I just hate having to wait. I'm an impatient momma. No matter what the outcome is, you're right Logansmom1999 she is still our daughter that we fell in love that evening she was born. Thank you all {{hugs}}
jlldas
by on May. 3, 2014 at 10:01 AM
Logansmom1999, we are about 45 minutes from the Canadian border, so it's going to be quite the trip with her down there, we have done well on the trip to Burlington before, but this is a bit longer. We don't do well in car rides, unless we are occupied with something, so I've been searching Pinterest to see if I can make something to occupy along with having a movie playing.
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