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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

PIOG - What if the school and our doctor disagree on dx?

Posted by on May. 4, 2014 at 11:11 AM
  • 8 Replies

School currently has my son at Language Delay on his IEP.  They suspected something else, so we agreed to the reevaluation.  Now they say ASD.

Our doctor, who is very well-known, and specializes in ASD, says he has traits of ASD, but nothing that needs a dx, but has Social Anxiety instead.

So, now what happens when we go back to the school and tell them this?

by on May. 4, 2014 at 11:11 AM
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Replies (1-8):
SamMom912
by Gold Member on May. 4, 2014 at 12:00 PM

Well, what are they willing to offer your son for accomodations at school based on their new educational diagnosis. Providing they dont have him listed as ASD on his IEP, but just OHI (other health impaired) and he gets more services and you are happy about that... then Id let the school think WHAT ever the heck they want...Its just an educational eval.. not medical.. and it means NOTHING on his medical records=== (just their school psychologists opinion). Id see if perhaps youre happier with what they offer as support services based on this new "educational dx" before disagreeing with their eval. Maybe you'll be happier and youre son will recieve some "social support" with this new Dx? Which would be great for him and for you.
I would just ask them NOT to classify him as ASD student... as I wouldnt want that on the record IF you disagree.

darbyakeep45
by Darby on May. 4, 2014 at 3:03 PM

I agree with the comment above.  Good luck mama!

patnic
by Bronze Member on May. 4, 2014 at 3:55 PM

He will receive "direct contact with a social worker in the school".  60-90 minutes a month.Here is what they have as goals - 

1) Will identify situations that cause him to feel stressed, anxious, or frustrated.

2) Will identify 3 strategies he can utilize when he is feeling at a three or above on a 5 point scale.

3) He will initiate an interaction with peers for the purpose of play.

This is what I get for putting the label of ASD on him. I'd rather pay out of pocket to get him help with these things rather than a wrong label.  

emarin77
by Silver Member on May. 4, 2014 at 5:11 PM
1 mom liked this

One thing to remember, school diagnoses cannot be used for the public use, only in school.  Just give the school the specialist's diagnose.  The diagnose of the specialist's is the real diagnose.

SamMom912
by Gold Member on May. 4, 2014 at 8:28 PM

With an ASD lable does he not get OT? Does he not get extra test taking time? Does he not get a lunch bunch buddy to help him navigate thru lunch/recess? A quiet place to eat lunch (less senosry?) access to a sensory room for quiet time? Sensory input? A pass to walk the halls if he needs a break? Or a break card? 

Quoting patnic:

He will receive "direct contact with a social worker in the school".  60-90 minutes a month.Here is what they have as goals - 

1) Will identify situations that cause him to feel stressed, anxious, or frustrated.

2) Will identify 3 strategies he can utilize when he is feeling at a three or above on a 5 point scale.

3) He will initiate an interaction with peers for the purpose of play.

This is what I get for putting the label of ASD on him. I'd rather pay out of pocket to get him help with these things rather than a wrong label.  


MomOfOneCoolKid
by Gold Member on May. 4, 2014 at 9:55 PM
Imo, don't worry about the label, just about learning social and emotional, behavioral skills. That's tough even for nts.

If the doc & the school can agree on what's best for him, resources & placement wise, that would be the best case scenario.

Hugs mom
lucasmadre
by Kari on May. 5, 2014 at 3:08 AM

I think this happens a lot. My son is under diagnosed in my opinion but as long as I feel he is getting the services he needs then I don't worry too much about who calls it what. I really think with brain disorders it is kind of a guessing game as scary as that sounds. You know him better than any professional so make sure he is getting help with the things you see him struggling with, then see what happens as he matures. If you have a good team at school they will incorporate what your doctor says and use it along with what they feel he needs. Sounds like he could use a little more special ed than he is getting...good luck! xo

TheJerseyGirl
by Michele on May. 5, 2014 at 5:29 AM

 D wouldn't have received what he has from school if he didn;t have his autism dx. Without a true dx, the school isn;t bound to do a thing for them, so to me it only hurts your child.

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